Partnership between patients, nurse leaders and researchers: Outcomes of a web-based KT strategy for hospital discharge planning and care transitions in oncology

Hélène Lefebvre, Isabelle Brault, Odette Roy, Marie-Josée Levert, Dan Lecocq, Maryse Larrivière, Michelle Proulx

Abstract


A research project brought together patient partners, nurse leaders from six clinical settings in Quebec and researchers to develop and test a web technology, the Forum for Knowledge Exchange (FKE), in order to improve discharge planning practices and oncological care transitions. The project led to the creation of a FKE accessible to the oncology sector of the Francophonie. It revealed an innovative strategy of knowledge transfer (KT) based on the FKE and was fed by collaborative work among partners, where the patient partners played a vital role. The results highlighted the importance, for health research, of giving a voice to patient partners in close collaboration with clinicians and researchers so that clinical practices are better adapted to the actual needs of patients and of their relatives.


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Bartonova, A. (2012). How can scientists bring research to use: The HENVINET experience. Environmental Health, 11(Suppl. 1), S2.

Brett, J., Stanislas, S., Mockford, C., Herron-Marx, S., ... Suleman, R. (2014). A systematic review of the impact of patient and public involvement on service users, researchers and community. Patient, 7, 387–395.

Burge, F.I., Lawson, B., & Critchley, P (2005). Transitions in care during the end of life: Changes experienced following enrolment in a comprehensive palliative care program. BMC Palliative Care, 4(3), 1–7.

Centre de pédagogie appliquée aux sciences de la santé de l’Université de Montréal (CPASS) (2013). Guide d’implantation du partenariat de soins et de services, vers une collaboration optimale entre intervenants et avec le patient. Québec : Université de Montréal, Direction de collaboration et partenariat patient/CPASS.

Centre de santé et de services sociaux de Laval. Ensemble en réseau, pour vaincre le cancer. Plan d’action en cancérologie 2013–2015. Toronto : ministère de la Santé et des Soins de longue durée.

Comité consultatif concernant les hospitalisations évitables (2011). Améliorer le continuum de soins. Toronto : ministère de la Santé et des Soins de longue durée. Cothrel, J., & Williams, R.L. (1999). On-line communities: helping them form and grow. Journal of Clinical Oncology, 3(1), 54–60.

Damschroder, L.J., Aron, D.C., Keith, R.E, Kirsh, S.R., ... Lowery, J.C. (2009). Fostering implementation of health services research findings into practice: A consolidated framework for advancing implementation science. Implementation Science, 450.

Davidson, B.J., Moore, K.N., MacMillan, H., & Wiens, K. (2004). Patient evaluation of a discharge program following a radical prostatectomy, Urologic Nursing, 24(6), 483–489.

Davies, N.J., & Batehup, L. (2011). Towards a personalized approach to aftercare: A review of cancer follow-up in the UK. Journal of Cancer Education, 5, 142–151.

Domecq, J.P., Prutsky, G., Elraiyah, T., ... Murad, M.H. (2014). Patient engagement in research: A systematic review. BMC Health Serv Res, 14(1), 89.

Dunn, J., Eisen, K., Wayne, J., & Crighton, F. (2004). The creation of a state and national cancer resource web site for patients and professionals. Oncology Nursing Forum, 31(4), 679–682.

Farrell, M.M., La Porta, M., Gallagher, A., Vinson, C., & Bernal, S.B. (2014). Research to reality: Moving evidence into practice through an online community of practice. Preventive Chronic Disease, 11, 130272.

Fixsen, D.L., Naoom, S.F., Blase, K.A., Friedman, R.M., & Wallace, F. (2005). Implementation research: A synthesis of the literature. Tampa Florida: University of South Florida.

Ganz, A., Casillas, J., & Hahn, E.E. (2008). Ensuring quality care for cancer survivors: Implementing the survivor care plan. Practice Nurse, 24(3), 208–217.

Garderet, L., Olivier, M-P., Najman, A., & Gorin, N.-C. (2006). L’annonce d’une mauvaise nouvelle. Revue de littérature. Oncologie, 8, HS126–HS131.

Grau, I., Grajales, I.F.J., Gene-Badia, J., Siso, A., & de Semir, M. (2013). Forum clinic: The shaping of virtual communities to assist patients with chronic diseases. Studies in Health Technology & Informatics. 183, 271–275.

Guba, E.G., & Lincoln, Y.S. (1989). Fourth Generation Evaluation. California: Thousand Oaks: SAGE Publications.

Hewitt, M.E., & Simone, J.V. (1999). Ensuring quality cancer care. Washington, DC, Academy Press, 256 p.

Ho, K., Bloch, R., Gondocz, T., Elizabeth, F., & Wenghofer, E.F. (2004). Technology-enabled knowledge translation: Frameworks to promote research and practice. Journal of Continuing Education in the Health Professions, 24(2), 90–99.

Iedema, R.A., & Angell, B. (2015). What are patients’ care experience priorities? BMJ Qual Saf, 24(5), 356–359.

Institut de la statistique du Québec (2014). Études et documents. La lutte contre le cancer au Québec et en Ontario : une approche centrée sur le patient. Québec : Gouvernement du Québec. ERP 978-2-550-70445-4

Kantsiper, M., McDonald, E.L., Geller, G., Shockney, L., Snyder, C., & Wolff, A. (2009). Transitioning to breast cancer survivorship: Perspectives of patient, cancer specialists and primary care providers. Journal of General Internal Medicine, 24, 2, 459–466.

Langelier, L. (2005). Travailler, apprendre et collaborer en réseau. Guide de mise en place et d’animation de communautés de pratique intentionnelles. Québec : Centre de recherche et d’innovation dans les organisations (CEFRIO). ISBN pour le dépôt légal : 2-923278-14-3.

Lavoie-Tremblay, M., O’Connor, P., MacGibbon, B., & Fréchette, J. (2016). The experience of patients engaged in co-designing care processes. The Health Care Manager, 35(4), 284–293.

Lefebvre, H., Brault, I., Levert, M-.J., Roy, O., ... Larivière, M. (2015). Une innovation pour un meilleur continuum de soin en oncologie : développement et implantation d’un portail web d’échange des savoirs. Revue francophone internationale de recherche infirmière, 1–10. doi:10.1016/j.pec.2008.07.016

Loutfi, A., & Laflamme, B. (2006). Rapport d’activités 2005–2006. Direction de lutte contre le cancer. Toronto : ministère de la Santé et des Soins de longue durée. ISBN-2-550-48138-6

Marsan, J., Paré, G., & Wybo, M.D. (2012). Has open source software been institutionalized in organizations or not? Information and Software Technology, 54, 1308–1316.

Ministère de la santé et des services sociaux (MSSS), (2013). Ensemble en réseau, pour vaincre le cancer. Plan d’action en cancérologie 2013–2015.

Paillé, P. (1994). Pour une méthodologie de la complexité en éducation : le cas d’une recherche-action-formation. Revue Canadienne de l’Éducation, 19(3), 215–230.

Pan, S.L., & Leidner, D.E. 2003). Bridging communities of practice with information technology in pursuit of global knowledge sharing. Journal of Strategic Information Systems, 12, 71–88.

Sanchez, M.A., Vinson, C.A., La Porta, M., Viswanatah, K., ... Glasgow, R.E. (2012). Evolution of cancer control P.L.A.N.E.T. Application des résultats de la recherche. Cancer 1994, 23, 1205–1212.

South, A., Hanley, B.G., Gafos, M., Cromarty, B., ... Vale, C.L. (2016). Models and impact of patient and public involvement in studies carried out by the Medical Research Council Clinical Trial Unit at University College London: Findings from ten case studies. Trials, 17(376), 1–13. doi:10.1186/s1211-016-1488-9

Sylvain, H. (2008). Le devis constructiviste : une méthodologie de choix en sciences infirmières. L’infirmière clinicienne, 5(1), 11 p.

Woolf, S.H., Zimmerman, E., Haley, A., & Krist, A. (2016). Authentic engagement of patient and communities can transform research, practice, and policy. Health Aff, 35(4), 590–594.


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