The promise of virtual navigation in cancer care: Insights from patients and health care providers

Kristen R. Haase, Fay Strohschein, Virginia Lee, Carmen G. Loiselle

Abstract


Virtual navigation (VN) in health care is a proactive process by which patients obtain information and support via Internet resources to manage their illness demands. The objective of this analysis was to explore converging and diverging perspectives of key stakeholders: patients with cancer and Health Care Providers (HCPs), about a cancer-related VN tool called the Oncology Interactive Navigator (OIN™). A qualitative secondary analysis was performed combining data sets from two prior studies exploring perspectives of VN among patients (study 1, n=20) and HCPs (study 2, n=13). An inductive approach was used to explore converging and diverging views across groups. Findings explore how patients’ and HCPs’ views converge and diverge and the processes necessary to ensure optimal uptake of VN innovations in cancer care.


Full Text:

PDF

References


Aalbers, T., Baars, M.A., & Rikkert, M.G. (2011). Characteristics of effective internet-mediated interventions to change lifestyle in people aged 50 and older: A systematic review. Ageing Research Review, 10(4), 10.

Annunziata, M.A., Muzzatti, B., & Bidoli, E. (2011). Psychological distress and needs of cancer patients: A prospective comparison between the diagnostic and therapeutic phase. Supportive Care in Cancer, 19, 5.

Arora, N., Hesse, B., Rimer, B., Viswanath, K., Clayman, M., & Croyle, R. (2008). Frustrated and confused: The American public rates its cancer-related information-seeking experiences. Journal Of General Internal Medicine, 23(3), 223–228. doi:10.1007/s11606-007-0406-y

Berry, S.R., Bell, C.M., Ubel, P.A., Evans, W.K., Nadler, E., Strevel, E.L., & Neumann, P.J. (2010). Continental divide? The attitudes of US and Canadian oncologists on the costs, cost-effectiveness, and health policies associated with new cancer drugs. Journal of Clinical Oncology, 28(27), 4149–4153. doi:10.1200/jco.2010.29.1625

Braun, V., & Clarke, V. (2008). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 24.

Canadian Cancer Society. (2014). Canadian Cancer Statistics 2014. Toronto, ON.

Canadian Partnership Against Cancer. (2010). Guide to implementating navigation. Toronto, ON.

Carroll, J K., Humiston, S.G., Meldrum, S.C., Salamone, C.M., Jean-Pierre, P., Epstein, R.M., & Fiscella, K. (2010). Patients experiences with navigation for cancer care. Patient Education and Counseling, 80(2), 241–247. doi:10.1016/j.pec.2009.10.024

Cote, J. (2007). Using interactive health communication technology in a renewed approach to nursing. CJNR (Canadian Journal of Nursing Research), 39(1), 135–136.

Davis, K., Schoenbaum, S.C., & Audet, A. (2005). A 2020 vision of patient-centered primary care. Journal of General Internal Medicine, 20(10), 953–957. doi:10.1111/j.1525-1497.2005.0178.x

Fillion, L., de Serres, M., Lapointe-Goupil, R., Bairati, I., Gagnon, P., Deschamps, M., … Demers, G. (2006). Implementing the role of a patient-navigator nurse at a university hospital centre. Canadian Oncology Nursing Journal, 16, 12.

Griffiths, F. (2006). Why are health care interventions delivered over the internet? A systematic review of the published literature. Journal of Medical Internet Research, 8(2).

Haase, K.R., & Loiselle, C.G. (2012). Oncology team members’ perceptions of a virtual navigational tool for cancer patients. International Journal of Medical Informatics, 81(6), 8.

Harrison, J., Young, J., Price, M., Butow, P., & Solomon, M. (2009). What are the unmet supportive care needs of people with cancer? A systematic review. Supportive Care in Cancer, 17(8), 1117–1128. doi:10.1007/s00520-009-0615-5

Heaton, J. (2008). Secondary analysis of qualitative data: An overview. Historical Social Research/Historische Sozialforschung, 33–45.

Helft, P.R., Hlubocky, F., & Daugherty, C.K. (2003). American pncologists’ view of internet use by cancer patients: A mail survey of American society of clinical oncology members. Journal of Clinical Oncology, 21(5), 5.

IWS. (2014). Internet World Stats: Usage and population statistics. Retrieved from http://www.internetworldstats.com

Jack Digitals Productions. (2008). Jack Digitals Productions: Oncology Interactive Navigator.

James, N., Daniels, H., Rahman, R., McConkey, C., Derry, J., & Young, A.J. (2007). A study of information seeking by cancer patients and their carers. Clinical Oncology, 19, 6.

Lee, K., Hoti, K., Hughes, J.D., & Emmerton, L. (2014). Dr Google and the consumer: A qualitative study exploring the navigational needs and online health information-seeking behaviors of consumers with chronic health conditions. Journal of Medical Internet Research, 16(12).

Leykin, Y., Thekdi, S.M., Shumay, D.M., Muñoz, R.F., Riba, M., & Dunn, L.B. (2011). Internet interventions for improving psychological well-being in psycho-oncology: Review and recommendations. Psycho-Oncology. doi:0.1002/pon.1993

Li, W.W.Y., Lam, W.W.T., Au, A.H.Y., Ye, M., Law, W.L., Poon, J., … Fielding, R. (2012 ). Interpreting differences in paterns of supportive care needs between patients with breast cancer and patients with colorectal cancer. Psycho-Oncology, (e-pub ahead of print). doi:10.1002/pon.3068

Loiselle, C.G. (2010). Virtual navigation in cancer: A pilot study. Retrieved from http://www.cancerview.ca/idc/groups/public/documents/webcontent/virtual_navigation_report.pdf

Loiselle, C.G., & Dubois, S. (2003). Getting wired for interactive health communication. Canadian Nurse, 99(4), 4.

Loiselle, C.G., Edgar, L., Batist, G., Lu, J., & Lauzier, S. (2010). The impact of a multimedia informational intervention on psychosocial adjustment among individuals with newly diagnosed breast or prostate cancer: A feasibility study. Patient Education and Counseling, 80(1), 48–55. doi:10.1016/j.pec.2009.09.026

Loiselle, C.G., Peters, O., Haase, K.R., Girouard, L., Koerner, A., Wiljer, D., & Fitch, M. (2013). Virtual navigation in colorectal cancer and melanoma: Exploration of patients’ views. Supportive Care in Cancer, 21(8), 7.

Lustria, M.L.A., Cortese, J., Noar, S.M., & Glueckauf, R.L. (2009). Computer-tailored health interventions delivered over the web: Review and analysis of key components. Patient Education and Counseling, 74(2), 156-173. doi:10.1016/j.pec.2008.08.023

Mulcahy, C.M., Parry, D.C., & Glover, T.D. (2010). The “Patient Patientâ€: The trauma of waiting and the power of resistance for people living with cancer. Qualitative Health Research, 20(8), 1062–1075. doi:10.1177/1049732310369139

Murray, E., Burns, J., SeeTai, S., Lai, R., & Nazareth, I. (2005). Interactive health communication applications for people with chronic disease. Cochrane Database of Systematic Reviews(4). doi:10.1002/14651858.CD004274.pub4.

Newnham, G.M., Burns, W.I., Snyder, R.D., Dowling, A.J., Ranieri, N.F., Gray, E.L., & McLachlan, S. (2005). Attitudes of oncology health professionals to information from the internet and other media. Medical Journal of Australia, 183(4), 3.

Pedersen, A.F., & Hack, T.F. (2010). Pilots of oncology health care: A concept analysis of the patient navigator role. Oncology Nursing Forum, 37(1), 55–60. doi:10.1188/10.onf.55-60

Pratt-Chapman, M., Simon, M.A., Patterson, A.K., Risendal, B.C., & Patierno, S. (2011). Survivorship navigation outcome measures. Cancer, 117(S15), 3573–3582. doi:10.1002/cncr.26261

Rutten, L.J.F. (2005). Information needs and sources of information among cancer patients: A systematic review of research (1980–2003). Patient Education and Counseling, 57(3), 250.

Sandelowski, M. (2000). Whatever happened to qualitative description? Research in Nursing & Health, 23, 6.

Shea–Budgell, M.A., Kostaras, X., Myhill, K.P., & Hagen, N.A. (2014). Information needs and sources of information for patients during cancer follow-up. Current oncology, 21(4), 165.

Suggs, L.S. (2006). A 10-year retrospective of research in new technologies for health communication. Journal of Health Communication, 11(1), 13.

Sutcliffe, P., Martin, S., Sturt, J., Powell, J., Griffiths, F., Adams, A., & Dale, J. (2011). Systematic review of communication technologies to promote access and engagement of young people with diabetes into healthcare. BMC Endocrine Disorders, 11(1). doi:10.1186/1472-6823-11-1

Thorne, S. (1994). Secondary analysis in qualitative research: Issues and implications In J.M. Morse (Ed.), Critical issues in qualitative research methods. Sage.

Thorne, S. (1998). Ethical and representational issues in qualitative secondary analysis. Qual Health Res, 8(4), 8.

Thorne, S. (2008). Interpretive description. Walnut Creek, CA: Left Coast Press.

Ventura, F., Ohlen, J., & Koinberg, I. (2012). An integrative review of supportive e-health programs in cancer care. European Journal of Cancer Care, epub ahead of print. doi:10.1016/j.ejon.2012.10.007

Walkinshaw, E. (2011). Patient navigators becoming the norm in Canada. Canadian Medical Association Journal, 183(15), E1109–E1110. doi:10.1503/cmaj.109-3974

Webb, T.L., Joseph, J., Yardley, L., & Michie, S. (2010). Using the internet to promote health behavior change: A systematic review and meta-analysis of the impact of theretical basism use of behaviors change techniques, and mode of delivery on efficacy. Journal of Medical Internet Research, 12(1).

Wells, K.J., Battaglia, T.A., Dudley, D.J., Garcia, R., Greene, A., Calhoun, E., … Raich, P.C. (2008). Patient navigation: State of the art or is it science? Cancer, 113(8), 1999–2010.

World Health Organization. (2008). Cancer mortality and morbidity. Global Health Observatory (GHO). Geneva, Switzerland: World Health Organization.

Yancik, R. (2005). Population aging and cancer: A cross-national concern. The Cancer Journal, 11(6), 437.

Ziebland, S., Chapple, A., Dumelow, C., Evans, J., Prinjha, S., & Rozmovits, L. (2004). How the internet affects patients’ experience of cancer: A qualitative study. BMJ, 328(7439), 564.


Refbacks

  • There are currently no refbacks.


Bookmark and Share