Prix de conférence à la mémoire de Helene Hudson : L’adoption d’une approche « en amont » dans les soins aux patients mourant du cancer : les mérites d’une approche palliative

Kelli Stajduhar, Carolyn Tayler

Abstract


Les progrès au niveau de la technologie et des pharmacothérapies font en sorte que les patients atteints de cancers malins vivent plus longtemps qu’auparavant. Cependant, la plupart d’entre eux sont loin d’atteindre l’espérance de vie de la population générale. L’adoption d’une « approche palliative » est une innovation qui pourrait promouvoir à la fois une meilleure planification de fin de vie et la fourniture de soins de meilleure qualité en fin de vie. Pourtant, dans une bonne partie du monde occidental, cette orientation en amont est rare. La tendance à dispenser des soins palliatifs tard dans la trajectoire de la maladie a entraîné de nombreuses difficultés au niveau des soins prodigués aux personnes atteintes d’un cancer avancé. Cet article décrit une initiative de recherche infirmière—l’iPANEL (Initiative pour une approche palliative en soins infirmiers : données probantes et leadership)—dont l’objectif est de générer des données probantes qui faciliteront l’intégration d’une approche palliative dans les soins aux personnes atteintes de conditions chroniques réduisant l’espérance de vie. Les infirmières en oncologie ont un rôle important à jouer dans la facilitation d’une approche palliative, puisqu’elles peuvent transformer les façons dont les patients atteints de cancer sont traités dans notre système de santé.


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References


Bakitas, M., Byock, I.R., Ahles, T.A., Lyons, K.D., Hegel, M.T., Balan, S.,

… Tosteson, T.D. (2009). Effects of a palliative care intervention

on clinical outcomes in patients with advanced cancer: The

project ENABLE II randomized controlled trial. JAMA: The

Journal of the American Medical Association, 302(7), 741–749.

Buss, M.K., Lessen, D.S., Sullivan, A.M., Von Roenn, J., Arnold, R.M.,

& Block, S.D. (2007). A study of oncology fellows’ training in endof-

life care. The Journal of Supportive Oncology, 5(5), 237.

Canadian Association of Nurses in Oncology. (2006). Practice

Standards and Competencies for the Specialized Oncology Nurse.

Vancouver, BC: Author.

Coventry, P.A., Grande, G.E., Richards, D.A., & Todd, C.J. (2005).

Prediction of appropriate timing of palliative care for older

adults with non-malignant life-threatening disease: A systematic

review. Age and Ageing, 34(3), 218–227.

Davis, S., Kristjanson, L.J., & Blight, J. (2003). Communicating with

families of patients in an acute hospital with advanced cancer.

Cancer Nursing, 26(5), 337–345.

Ferrell, B., Virani, R. Malloy, P., & Kelly, K. (2010). The preparation of

oncology nurses in palliative care. Seminars in Oncology Nursing,

(4), 259-265.

Gattellari, M., Voigt, K.J., Butow, P.N., & Tattersall, M.H.N. (2002).

When the treatment goal is not cure: Are cancer patients

equipped to make informed decisions? Journal of Clinical

Oncology, 20(2), 503–513.

Gofton, T.E., Jog, M.S., & Schulz, V. (2009). A palliative approach to

neurological care: A literature review. The Canadian Journal of

Neurological Sciences, 36(3), 296–302.

Hardin, K.A., Meyers, F., & Louie, S. (2008). Integrating palliative

care in severe chronic obstructive lung disease. COPD: Journal of

Chronic Obstructive Pulmonary Disease, 5(4), 207–220.

Hauser, J., Harney, C., Bass, K., Rodrigue, M.K., Sileo, M., Araneta, N.,

… Thibodaux, L. (2011). Navigation and palliative care. Cancer,

(S15), 3583–3589.

Jackson, K., Mooney, C., & Campbell, D. (2009). The development

and implementation of the pathway for improving the care of

the dying in general medical wards. Internal Medicine Journal,

(10), 695–699.

Kristjanson, L.J. (2005). Directions in palliative care nursing

research: Impeccable care, timing, and complexity. The Canadian

Journal of Nursing Research, 37(2), 13–13.

Lamont, E.B., & Christakis, N.A. (2002). Physician factors in the

timing of cancer patient referral to hospice palliative care.

Cancer, 94(10), 2733–2737.

Liang, W., Burnett, C.B., Rowland, J.H., Meropol, N.J., Eggert, L.,

Hwang, Y., … Mandelblatt, J.S. (2002). Communication between

physicians and older women with localized breast cancer:

Implications for treatment and patient satisfaction. Journal of

Clinical Oncology: Official Journal of the American Society of

Clinical Oncology, 20(4), 1008–1016.

Lynn, J. (2005). Living long in fragile health: The new demographics

shape end of life care. In Improving end of life care: Why has it

been so difficult? Hastings Center Report Special Report, 35(6),

S14–S18.

Mackillop, W.J., Stewart, W.E. & Ginsberg, A.D. (1988). Cancer

patients’ perceptions of their disease and its treatment. British

Journal of Cancer Care, 58(3), 355–358.

Mathew, A., Cowley, S., Bliss, J., & Thistlewood, G. (2003). The

development of palliative care in national government policy in

England, 1986–2000. Palliative Medicine, 17(3), 270–282.

Mitra, S. & Vadivelu, N. (2013). Multidisciplinary approach and

coordination of care. In A.D. Kaye & J.M. Berger (Eds.), Essentials

of Palliative Care. New York, NY: Springer.

Morita, T., Akechi, T., Ikenaga, M., Kizawa, Y., Kohara, H.,

Mukaiyama, T….Uchitomi, Y. (2004). Communication about

ending of anticancer treatment and transition to palliative care.

Annals of Oncology, 15(10), 1551–1557.

Morrison, R.A., & Meier, D. (2004). Palliative care. New England

Journal of Medicine, 350(25), 2582–2590.

Osta, B.E., Palmer, J.L., Paraskevopoulos, T., Pei, B., Roberts, L.E.,

Poulter, V.A., … Bruera, E. (2008). Interval between first palliative

care consult and death in patients diagnosed with advanced

cancer at a comprehensive cancer center. Journal of Palliative

Medicine, 11(1), 51–57.

Ronaldson, S., & Devery, K. (2001). The experience of transition

to palliative care services: perspectives of patients and nurses.

International Journal of Palliative Nursing, 7(4), 171–177.

Saunders, C.M., Dame. (2006). Cicely Saunders: Selected writings

-2004. Oxford: Oxford University Press.

Schofield, P., Carey, M., Love, A., Nehill, C., & Wein, S. (2006). ‘Would

you like to talk about your future treatment options?’ Discussing

the transition from curative cancer treatment to palliative care.

Palliative Medicine, 20, 397–406.

Stajduhar, K.I. (2011). Chronic illness, palliative care, and the

problematic nature of dying. The Canadian Journal of Nursing

Research, 43(3), 7–15.

Stajduhar, K.I., Thorne, S.E., McGuinness, L., & Kim-Sing, C. (2010).

Patient perceptions of helpful communication in the context of

advanced cancer: Patient perceptions of helpful communication.

Journal of Clinical Nursing, 19(13–14), 2039–2047.

Statistics Canada. (2012). Seniors. In Canada Year Book 2012.

Statistics Canada Catalogue no. 89-611-XIE. Ottawa, Ontario,

–423.

Temel, J.S., Pirl, W.F., Billings, J.A., Lynch, T.J., Greer, J.A.,

Muzikansky, A., … Jacobsen, J. (2010). Early palliative care for

patients with metastatic non-small-cell lung cancer. The New

England Journal of Medicine, 363(8), 733–742.

Thorne, S.E., & Stajduhar, K.I. (2012). Patient perceptions of

communications on the threshold of cancer survivorship:

Implications for provider responses. Journal of Cancer

Survivorship: Research and Practice, 6(2), 229–237.

Waller, A., & Caroline, N.L. (2000). Handbook of palliative care in

cancer (2nd ed.). Oxford, England: Butterworth-Heinemann.

Wenrich, M., Curtis, J., Shannon, S., Carline, J., Ambrozy, D., &

Ramsey, P. (2001). Communicating with dying patients within

the spectrum of medical care from terminal diagnosis to death.

Archives of Internal Medicine, 161(6), 868–874.

Widger, K., Cadell, S., Davis, B., Siden, H., & Steele, R. (2012).

Pediatric palliative care in Canada. In C. Knapp, V. Madden & S.

Fowler-Kerry (Eds.), Pediatric Palliative Care: Global Perspectives.

New York, NY: Springer.

World Health Organization. (2014). Global Atlas of palliative care at

the end of life. Retrieved from Worldwide palliative care alliance/

World Health Organization: http://www.who.int/nmh/Global_

Atlas_of_Palliative_Care.pdf?ua=1

Zachariae, R., Pedersen, C.G., Jensen, A.B., Ehrnrooth, E., Rossen, P.B.,

& von der Maase, H. (2003). Association of perceived physician

communication style with patient satisfaction, distress, cancerrelated

self-efficacy, and perceived control over the disease.

British Journal of Cancer, 88(5), 658–665.

Zimmermann, C., Swami, N., Krzyzanowska, M., Hannon, B., Leighl,

N., Oza, A., … Lo, C. (2014). Early palliative care for patients with

advanced cancer: A cluster-randomised controlled trial. Lancet.

Advance online publication. doi:10.1016/S0140-6736(13)62416-2


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