Practical support for women with breast cancer
Abstract
Although emotional, social and informational support are well recognized needs among women with breast cancer, practical support has not attracted serious research attention. However, consumer advocates and researchers studying the subjective experience of breast cancer note that practical support may be a particular concern for some women. In order to document some aspects of the practical support issue and begin to render this element of the experience visible, a community-based consumer group conducted a preliminary survey of practical support needs of women who were living with or had experienced breast cancer. Among the 100 women who responded to this survey, there was considerable evidence that practical support may well remain an unmet need in the current health care climate.
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Batt S. (1994). Patient no more: The politics of breast cancer.
Charlottetown, PEI: Gynergy Books.
Bilodeau, B.A. & Degner, L.F. (1996). Information needs, sources
of information, and decisional roles in women with breast cancer.
Oncology Nursing Forum, 23, 691-696.
Carlsson, M. & Hamrin, E. (1994). Psychological and
psychosocial aspects of breast cancer and breast cancer treatment:
A literature review. Cancer Nursing, 17, 418-428.
Cimprich, B. (1998). Age and extent of surgery affect attention in
women treated for breast cancer. Research in Nursing & Health,
, 229-238.
Colyer, H. (1996). Women’s experience of living with cancer.
Journal of Advanced Nursing, 23, 496-501.
Cope, D.G. (1995). Functions of a breast cancer support group as
perceived by the participants: An ethnographic study. Cancer
Nursing, 18, 472-478.
Degner, L. F., Kristjanson, L. J., Bowman, D., Sloan, J. A.,
Carriere, K.C., O’Neil, J., Bilodeau, B., Watson, P. & Mueller, B.
(1997). Information needs and decisional preferences in women
with breast cancer. JAMA, 277, 1485-1492
Ferrans, C.E. (1994). Quality of life through the eyes of survivors
of breast cancer. Oncology Nursing Forum, 21, 1645-1652.
Ferrell, B.R., Grant, M., Dean, G.E., Funk, B. & Ly, J. (1996).
“Bone tired:†The experience of fatigue and its impact on quality
of life. Oncology Nursing Forum, 23, 1539-1547.
Fredette, S.L. (1995). Breast cancer survivors: Concerns and
coping. Cancer Nursing, 18, 35-46.
Glanz, K. & Lerman, C. (1992). Psychosocial impact of breast
cancer: A critical review. Annals of Behavioral Medicine, 14(3),
-212.
Health Canada (1994). Report on the National Forum on Breast
Cancer. Ottawa: Minister of Supply & Services.
Hilton, B.A. (1996). Getting back to normal. The family
experience during early stage breast cancer. Oncology Nursing
Forum, 23, 605-614.
Hoskins, C.N., Baker, S., Sherman, D., Bohlander, J., Bookbinder,
M., Budin, W., Ekstrom, D., Knauer, C. & Maislin, G. (1996).
Social support and patterns of adjustment to breast cancer.
Scholarly Inquiry for Nursing Practice, 10(2), 99-123.
Irvine, D.M., Vincent, L., Graydon, J.E. & Bubela, N. (1998).
Fatigue in women with breast cancer receiving radiation therapy.
Cancer Nursing, 21, 127-135.
Lugton, J. (1997). The nature of social support as experienced by
women treated for breast cancer. Journal of Advanced Nursing,
, 1184-1191.
Mast, M.E. (1998). Correlates of fatigue in survivors of breast
cancer. Cancer Nursing, 21, 136-142.
Northouse, L. (1990). Longitudinal study of the adjustment of
patients and husbands to breast cancer. Oncology Nursing
Forum, 17(3), 39-43.
Olivotto I., Gelmon K. and Kuusk U. (Eds.) (1996). Intelligent
patient guide to breast cancer. Vancouver, BC: Intelligent Patient
Guide.
Pålsson, M-B. E. & Norberg, A. (1995). Breast cancer patients’
experiences of nursing care with the focus on emotional support:
The implementation of a nursing intervention. Journal of
Advanced Nursing, 21, 277-285.
Payne, D.K., Sullivan, M.D. & Massie, M.J. (1996). Women’s
psychological reactions to breast cancer. Seminars in Oncology,
(1) (Suppl. 2), 89-97.
Samarel, N. & Fawcett, J. (1992). Enhancing adaptation to breast
cancer: The addition of coaching to support groups. Oncology
Nursing Forum, 19, 591-596.
Smyth, M.M., McCaughan, E., & Harrisson, S. (1995). Women’s
perceptions of their experiences with breast cancer: Are their needs
being addressed? European Journal of Cancer Care, 4, 86-92.
Suominen, T., Leino-Kilpi, H. & Laippala, P. (1995). Who
provides support and how?: Breast cancer patients and nurses
evaluate patient support. Cancer Nursing, 18, 278-285
Williams, T.R., O’Sullivan, M., Snodgrass, S.E. & Love, N.
(1995). Psychosocial issues in breast cancer: Helping patients get
the support they need. Postgraduate Medicine, 98(4), 97-110.
Winningham, M.L., Nail, L.N., Burke, M.B., Brophy, L.,
Cimprich, B., Jones, L.S., Pickard-Holley, S., Rhodes, V., St.
Pierre, B., Beck, S., Glass, E.C., Mock, V.L., Mooney, K.H., &
Piper, B. (1994). Fatigue and the cancer experience: The state of
the knowledge. Oncology Nursing Forum, 21, 23-35.
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