Shielding and being shielded: Children’s perspectives on coping with their mother’s cancer and chemotherapy

B. Ann Hilton, Kris Gustavson

Abstract


Little research has examined children’s perceptions of what it was like when their mother was diagnosed and treated with chemotherapy for breast cancer. This research aimed to describe the children’s perspectives and to suggest interventions to assist children to manage the experience with less stress. Qualitative naturalistic inquiry methods were used. Purposive sampling was used to recruit children whose mothers had chemotherapy for breast cancer in the prior two years. Eleven children were interviewed individually or with siblings. Children were between seven to 21 years of age. The major theme that emerged was Shielding and Being Shielded. Shielding refers to how children protected themselves from their thoughts and feelings and protected themselves from others. Being Shielded refers to what others did to protect the children. Shielding and Being Shielded each had components reflective of knowing/understanding, acknowledging/feeling, sharing, and shifting/helping. Recommendations directed towards assisting children, parents, and nurses and other health care professionals are suggested.


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References


Birenbaum, L.K., Yancey, D.Z., Phillips, D.S., Chand, N., & Huster,

G. (1999). School-age children’s and adolescents’ adjustment

when a parent has cancer. Oncology Nursing Forum, 26(10),

-1645.

Brown, J. (1992). The experience of teenagers living with a parent

with advanced cancer. Unpublished Master’s thesis, University

of British Columbia, Vancouver, BC.

Compas, B.E., Worsham, N.L., Epping-Jordan, J.E., Grant, K.E.,

Mireault, G., Howell, D.C., & Malcarne, V.L. (1994). When mom

or dad has cancer: Markers of psychological distress in cancer

patients, spouses, and children. Health Psychology, 13, 507-515.

Denzin, N., & Lincoln, Y. (Eds.). (1994). Handbook of qualitative

research. Thousand Oaks, CA: Sage.

Elsegood, J. (1996). Breaking bad news to children. In B. Lindsay &

J. Elsegood (Eds.), Working with children in grief and loss (pp.

-55). London, UK: Bailliere Tindall.

Erlandson, D.A., Harris, E.L., Skipper, B.L., & Allen, S.D. (1993).

Doing naturalistic inquiry. Newbury Park, CA: Sage.

Hilton, B.A. (1996). Getting back to normal: The family experience

during early stage breast cancer. Oncology Nursing Forum,

(4), 605-614.

Hilton, B.A., Brown, J., Ho, A., Holwerda, E., Rechner, M., &

Sample. S. (1996). Creative intervention report:

Developing creative interventions to assist young families

to meet the challenges of chemotherapy for breast cancer.

Unpublished manuscript, University of British Columbia at

Vancouver.

Hilton, B.A., & Elfert, H. (1996). Children’s experiences with

mothers’ early breast cancer. Cancer Practice, 4(2), 96-104.

Howe, M.J., Hoke, I., Winterbottom, M., & Delafield, D. (1994).

Psychosocial effects of breast cancer on patient’s children.

Journal of Psychosocial Oncology, 12, 1-21.

Hymovich, D.P. (1993). Child-rearing concerns of parents with

cancer. Oncology Nursing Forum, 20, 1355-1360.

Issel, L.M., Ersek, M., & Lewis, F.M. (1990). How children cope

with mother’s breast cancer. Oncology Nursing Forum,

(suppl.), 5-13.

Jewett, C. (1994). Helping children cope with separation and loss.

London, UK: Batsford.

Kalish, R.A. (1985). The final transition. Farmingdale, NY:

Baywood, Publishing Co.

Lewis, F.M., Zahlis, E.H., Shands, M.E., Sinsheimer, J.A., & Hammond,

M.A. (1996). The functioning of single women with breast cancer

and their school-aged children. Cancer Practice, 4, 15-24.

Lichtman, R.R., Taylor, S.E., Wood, J.V., Bluming, A.Z., Dosik,

G.M., & Leibowitz, R.L. (1984). Relations with children after

breast cancer. The mother-daughter relationship at risk. Journal of

Psychosocial Oncology, 2(3/4), 1-19.

Lincoln, Y., & Guba, E. (1985). Naturalistic inquiry. Beverly Hills,

CA: Sage.

McTaggart, D.L. (2000). Breast cancer experience: Mothers,

adolescent daughters and the mother-daughter relationship.

Doctoral dissertation, University of British Columbia, Vancouver.

Nelson, E., Sloper, P., Charlton, A., & While, D. (1994). Children who

have a parent with cancer: A pilot study. Journal of Cancer

Education, 9(1), 30-36.

Rosenfeld, A., & Caplan, G. (1983). Adaptation of children of parents

suffering from cancer: A preliminary study of a new field for

primary prevention research. Journal of Primary Prevention, 3,

-250.

Rosenheim, E., & Reicher, R. (1985). Informing children about a

parent’s terminal illness. Journal of Child Psychology and

Psychiatry, 26, 995-998.

Shands, M.E., Lewis, F.M., & Zahlis, E.H. (2000). Mother and child

interactions about the mother’s breast cancer: An interview study.

Oncology Nursing Forum, 27(1), 77-85.

Strauss, A., & Corbin, J. (1990). Basics of qualitative research:

Grounded theory procedures and techniques. Newbury Park,

CA: Sage.

Wellisch, D.K., Gritz, E.R., Schain, W., Wang, H., & Siau, J. (1991).

Psychological functioning of daughters of breast cancer patients:

Part I: Daughters and comparison subjects, Psychosomatics,

(3), 324-336.

Wellisch, D.K., Gritz, E.R., Schain, W., Wang, H., & Siau, J. (1992).

Psychological functioning of daughters of breast cancer patients:

Part II: Characterizing the distressed daughter of the breast cancer

patient. Psychosomatics, 33(2), 171-179.

Whittham, E.H. (1993). Terminal care of the dying child.

Psychosocial implications of care. Cancer, 71, 3450-3462.

Zahlis, E.H. (2001). The child’s worries about the mother’s breast

cancer: Sources of distress in school-age children. Oncology

Nursing Forum, 28(6),1019-1025.


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