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Cartographier le cheminement, dans le système de soins, des patients atteints de cancer. Partie 1: Élaboration de la question de recherche
Abstract
Il s’agit du premier article d’une série rapportant les résultats detravaux de recherche qui élaboraient, à partir des sources de données disponibles, un historique complet des interactions avec le système de santé de tous les patients diagnostiqués en 1990, au Manitoba, de tumeurs primitives mammaires, colorectales ou pulmonaires et ce, à partir d’un an avant le diagnostic jusqu’à deux ans après ce dernier. Cet article présente la motivation derrière cet axe de recherche ainsi que sa genèse. L’étude qui avait pour point de départ la question “Qu’est-ce qui arrive à la personne diagnostiquée d’un cancer?†s’est transformée en une initiative de recherche majeure englobant un large éventail de questions de recherche philosophiques et cliniques. Une équipe interdisciplinaire a élaboré en collaboration les méthodes opérationnelles permettant de combiner des sources de données existantes afin de présenter sous un format uniforme les antécédents des patients atteints de cancer.
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