Information needs of adolescents when a mother is diagnosed with breast cancer
Abstract
This pilot study was undertaken to increase our understanding of the information needs of adolescents when a mother is diagnosed with breast cancer. In-depth interviews with 13 adolescents provided insight into the types of questions they had at the time of their mother’s diagnosis and how satisfied they were with the access they had to information. These adolescents had many questions about cancer and its treatment, specific questions about their mother’s disease and survival, and concerns about their own risk. Each sought information on their own in addition to conversations with one or both parents. They identified their most pressing concern as the need to know about their mother’s survival. All felt it was important to have access to information and to have someone with whom they could talk about what was happening. This person needed to be someone with whom they were comfortable and whom, in turn, had both credibility and comfort with emotions. Clearly, adolescents experience needs for information when their mother is diagnosed with breast cancer. Cancer nurses can assist women diagnosed with breast cancer plan how to support their adolescent children and meet the needs for information.
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Armsden, G.C., & Lewis, F.M. (1993). The child’s adaptation to
parental medical illness: Theory and clinical applications. Patient
Education and Counselling, 22, 153-165.
Barnes, J., Kroll, L., Burke, O., Lee, J., Jones, A., & Stein, A. (2000).
Qualitative interview study of communication between parents
and children about maternal breast cancer. Western Journal of
Medicine, 173, 385-389.
Berman, H., Cragg, C.E., & Kuenzig, L. (1988). Having a parent die
of cancer: Adolescents’ reactions. Oncology Nursing Forum,
(2), 159-163.
Chalmers, K.I., Kristjanson, L.J., Woodgate, R., Taylor-Brown, J.,
Nelson, F., Ramservan, S., et al. (2000). Perceptions of the role of
school in providing information and support to adolescent children
of women with breast cancer. Journal of Advanced Nursing,
(6), 1430-8.
Compas, B.E., Worsham, N.L., Epping-Jordan, J.E., Grant, K.E.,
Mireault, G., Howell, D.C., et al. (1994). When mom or dad has
cancer: Markers of psychological distress in cancer patients,
spouses and children. Health Psychology, 13(6), 507-515.
Fitch, M.I., Bunston, T., & Elliott, M. (1999). When mom’s sick:
Changes in a mother’s role and family after her diagnosis of
cancer. Cancer Nursing, 22(1), 58-63.
Fitch, M.I., & Allard, M.L. (in press). Perspectives of husbands of
women with breast cancer: Information needs. Canadian
Oncology Nursing Journal.
Galloway, S.C. (1990). Young adults’ reactions to the death of a
parent. Oncology Nursing Forum, 17(6), 899-904.
Gould, J., James, P., Gray, R., & Fitch, M. (2003). Nothing fit me:
Cross-support needs of young women with breast cancer. Psycho-
Oncology, 12(4, Suppl.), S146-7.
Gray, R.E., Greenberg, M., Fitch, M., Sawka, C., Hampson, A.,
Labrecque, M., et al. (1998). “Information needs of women with
metastatic breast cancer. Cancer Prevention and Control, 2(2),
-62.
Helgeson, V.S., Cohen, S., Schulz, R., & Yasko, J. (2001). Long-term
effects of educational and peer discussion group interventions on
adjustment to breast cancer. Health Psychology, 20(5), 387-92.
Hilton, B.A. (1993). Issues, problems and challenges for families coping
with breast cancer. Seminars in Oncology Nursing, 9(2), 88-100.
Issel, M.L., Ersek, M., & Lewis, F.M. (1990). How children cope with
mother’s breast cancer. Oncology Nursing Forum, 17(3, Suppl.),
-13.
Kristjanson, L., & Ashcroft, T. (1994). The family’s cancer journey:
A literature review. Cancer Nursing, 17(1), 1-17.
Kristjanson, L.J., Chalmers, K.I., & Wood, R. (2004). Information
and support needs of adolescent children of women with breast
cancer. Oncology Nursing Forum, 31(1), 111-119.
Lewis, F.M., & Hammond, M.A. (1996). The father’s, mother’s and
adolescents’ adjustment to a mother’s breast cancer. Family
Relations, 45, 456-65.
Lewis, F.M., Ellison, E.S., & Woods, N.F. (1985). The impact of
breast cancer on the family. Seminars in Oncology Nursing, 1(3),
-13.
Lewis, F.M., Woods, N.F., Hough, E.E., & Bensley, L.S. (1989). The
family’s functioning with chronic illness in the mother: The
spouses’ perspective. Social Science and Medicine, 29, 1261-69.
McGuire, P. (1981). The repercussions of mastectomy on the family.
International Journal of Family Psychiatry, 1, 485-503.
National Cancer Institute of Canada. (2005). Canadian cancer
statistics 2005. Toronto: Author.
Northouse, L. (1988). Social support in patients’ and husbands’
adjustment to breast cancer. Nursing Research, 37, 91-5.
Northouse, L.L., Cracchiolo-Caraway, A., & Appel, C.P. (1991).
Psychological consequences of breast cancer on partner and
family. Seminars in Oncology Nursing, 7(3), 216-223.
Quinn-Beers, J. (2001). Attachment needs of adolescent daughters of
women with cancer. Journal of Psychosocial Oncology, 19(1),
-48.
Silverman, D. (2000). Doing qualitative research: A practical
handbook. London: Sage.
Shrands, M., Lewis, F., & Zahlis, E. (2000). Mother and child
interactions about the mother’s breast cancer: An interview study.
Oncology Nursing Forum, 27, 77-85.
Welch, A.S., Wadsworth, M.E., & Compas, B.E. (1996). Adjustment
of children and adolescents to parental cancer: Parents’ and
children’s’ perspectives. Cancer, 77, 1409-18.
Wellisch, D.K., Jamieson, K.R., & Pasnau, R.O. (1978).
Psychosocial aspects of mastectomy II: The man’s perspective.
American Journal of Psychiatry, 135, 543-546.
Woods, N.F., & Lewis, F.M. (1995). Women with chronic illness:
Their views of their families’ adaptation. Health Care for Women
International, 16(2), 135-148.
Yates, P. (1999). Family coping: Issues and challenges for cancer
nursing. Cancer Nursing, 22(1), 63-71.
Zahlis, E.H., & Lewis, F.M. (1998). Mothers’ stories of the school age
child’s experience with the mother’s breast cancer. Journal of
Psychosocial Oncology, 16(2), 25-43.
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