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Évaluation d’un programme d’éducation à l’intention des soignants des personnes diagnostiquées d’un gliome malin
Abstract
Contexte : S’occuper d’un être cher atteint d’un gliome malin peut être une énorme responsabilité. Le pronostic réservé, les effets secondaires des traitements et les changements dans le fonctionnement cérébral, la personnalité et le comportement constituent des défis de taille dans la prestation de soins par des membres de la famille. Les établissements de santé offrant des programmes d’éducation à l’intention des soignants naturels de personnes atteintes d’un gliome malin sont rares.
Objectif : Évaluer l’incidence d’un programme d’éducation offert aux soignants naturels de patients diagnostiqués d’un gliome malin.
Méthodes : Nous avons mis au point un programme d’éducation structuré à l’intention des soignants naturels de patients atteints d’une tumeur cérébrale. Le programme était basé sur les opinions de spécialistes des domaines concernés et sur les commentaires de soignants naturels. Vingt-quatre soignants naturels ont participé au programme. Nous avons évalué leur niveau de connaissances à trois reprises : avant le programme, immédiatement après et de quatre à six semaines plus tard. Nous avons utilisé des questions ouvertes pour explorer les expériences des soignants naturels ainsi que d’autres avantages découlant du programme.
Résultats : Les scores d’évaluation des connaissances affichaient une hausse statistiquement significative immédiatement après le programme (2e test) et de quatre à six semaines plus tard (3e test) par comparaison avec les scores de référence (1er test), avec un certain recul entre le 2e et le 3e test. Ces résultats démontrent l’existence d’un transfert efficace de connaissances (rappel de l’information) immédiatement après le programme d’éducation et de quatre à six semaines plus tard. Des données qualitatives et quantitatives particulières servent de base pour comprendre les besoins et les expériences des soignants.
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