Perspectives des conjoints de femmes atteintes d’un cancer du sein : besoins d’information
Abstract
La majorité des femmes diagnostiquées d’un cancer du sein se tournent vers leur conjoint à des fins de soutien. Cependant, le diagnostic et le traitement de cette maladie ont également un impact sur le conjoint et peuvent influencer sa capacité d’offrir du soutien. Cette étude a été menée dans le but d’explorer les besoins d’information perçus des conjoints de femmes diagnostiquées d’un cancer du sein. Les entrevues en profondeur fournissent une riche description de la nature des besoins d’information de ces hommes dans le contexte d’un grand bouleversement et d’évènements imprévus. Les 15 conjoints de cette étude ont décrit le rôle important que joue l’information dans leur capacité à gérer la situation. Trois thèmes globaux ont été dégagés : les hommes avaient des questions et des inquiétudes tout au long de la période qui a suivi le diagnostic; le manque d’information leur a rendu la vie difficile; et enfin, les professionnels de la santé pourrait être utiles. Ces hommes ont eu du mal à trouver de l’information pertinente et à démêler ce qui s’appliquait à leur propre situation. Ils ont constaté que peu d’information s’adressait spécifiquement aux conjoints. L’évaluation réalisée par les infirmières en oncologie devrait inclure les besoins d’information des conjoints et leur capacité à traiter l’information d’un bout à l’autre de l’expérience du cancer.
Full Text:
PDFReferences
Baider, L, Andritsch, E., Goldzweig, G., Uziely, B, Ever-Hadani, P.,
Hofman, G., Krenn, G., & Samonigg, H. (2004). Changes in
psychosocial distress of women with breast cancer in long term
remission and their husbands. Psychosomatics, 45(1), 58-68.
Baider, L., & De-Nour, A.K. (1984). Couples’ reactions and
adjustment to mastectomy: A preliminary report. Journal of
Psychiatry in Medicine, 14, 265-76.
Bultz, B.D., Speca, M., Brasher, P.M., Geggie, P.H., & Page, S.A.
(2000). A randomized controlled trial of a brief psychoeducational
support group for partners of early stage breast cancer
patients. Psycho-oncology, 9(4), 303-13.
Carlsson, M., & Hamrin, E. (1994). Psychological and psychosocial
aspects of breast cancer and breast cancer treatment: A literature
review. Cancer Nursing, 17, 418-28.
Ervin, J. (1973). Psychological adjustment to mastectomy. Medical
Aspects of Human Sex, 7, 42-65.
Fitch, M.I., Nicoll, I., & Keller-Olaman, S. (2005). Breast cancer
information dissemination: Finding out what works. Supportive
Care in Cancer, 13(6), 22-167 (p. 469).
Gray, R.E., Fitch, M., Greenberg, M., Hampson, A. Doherty, M., &
Lebrecque, M. (1998). The information needs of well, longer-term
survivors of breast cancer. Patient Education and Counselling,
, 245-255.
Hilton, B.A. (1996). Getting back to normal: The family experience
during early stage breast cancer. Oncology Nursing Forum, 23,
-14.
Hilton, B.A., Crawford, J.A., & Tarko, M.A. (2000). Men’s
perspectives on individual and family coping with their wives’
breast cancer and chemotherapy. Western Journal of Nursing
Research, 22(4), 438-59.
Institut national du cancer du Canada. (2005). Statistiques
canadiennes sur le cancer 2005. Toronto : Auteur.
Kent, S. (1975). Coping with sexual identity crises after mastectomy.
Geriatrics, 30, 145-6.
Kilpatrick, M.G., Kristjanson, L.J., Tataryn, D.J., & Fraser, V.A.
(1998). Information needs of husbands of women with breast
cancer. Oncology Nursing Forum, 25(9), 1595-601.
Lewis, F. (2004, August). The impact of cancer on the family.
Robert Tiffany Lectureship. 13th International Conference on
Cancer Nursing. Sydney, Australia.
Lewis, F.M., & Hammond, M.A. (1996). The father’s, mother’s and
adolescent’s adjustment to a mother’s breast cancer. Family
Relations, 45, 456-65.
Lewis, F.M., Hammond, M.A., & Woods, N.F. (1993). The family’s
functioning with newly diagnosed breast cancer in the mother: The
development of an exploratory model. Journal of Behavioral
Medicine, 16, 351-370.
Lewis, F.M., Woods, N.F., Hough, E.E., & Bensley, L.S. (1989). The
family’s functioning with chronic illness in the mother: The
spouse’s perspective. Social Science Medicine, 29, 1261-69.
McGuire, P. (1981). The repercussions of mastectomy on the
family. International Journal of Family Psychiatry, 1, 485-
Nikoletti, S., Kristjanson, L.J., Tataryn, D., McPhee, I., & Burt, L.
(2003). Information needs and coping styles of primary family
caregivers of women following breast cancer surgery. Oncology
Nursing Forum, 30(6), 987-96.
Northouse, L. (1988). Social support in patients’ and husbands’
adjustment to breast cancer. Nursing Research, 37, 91-5.
Northouse, L., & Swain, M.A. (1987). Adjustment of patients and
husbands to the initial impact of breast cancer. Nursing Research,
, 221-5.
Oberst, M.T., & James, R.H. (1985). Going home: Patient and spouse
adjustment following cancer surgery. Topics in Clinical Nursing,
, 41-57.
Ontario Breast Cancer Information Exchange Partnership.
www.obciep.on.ca
Rees, C.E., & Bath, P.A. (2000). Exploring the information flow:
Partners of women with breast cancer, patients, and health care
professionals. Oncology Nursing Forum, 27(8), 1267-75.
Rees, C.E., & Bath, P.A. (2000). The information needs and source
preferences of women with breast cancer and their family
members: A review of the literature published between 1988 and
Journal of Advanced Nursing, 31, 833-41.
Rendle, K. (1997). Survivorship and breast cancer: The psychosocial
issues. J Clin Nursing, 6, 403.
Samms, M.C. (1999). The husband’s untold account of his wife’s
breast cancer: A chronologic analysis. Oncology Nursing Forum,
(8), 1351-8.
Silverman, D. (2000). Doing qualitative research: A practical
guide. London: Sage.
Trussler, T. (2001). Uncovering the gaps: The journey to
supportive care. Vancouver: Canadian Breast Cancer
Foundation/BC and Yukon Division.
Wellisch, D.K., Jamieson, K.R., & Pasnau, R.O. (1978). Psychosocial
aspects of mastectomy II: The man’s perspective. American
Journal Psychiatry, 135, 543-546.
Woods, N.F., & Lewis, F.M. (1995). Living with chronic illness:
Women’s perspectives on their families’ adaptation. Health Care
Women International, 16, 135-48.
Yates, P. (1999). Family coping: Issues and challenges for cancer
nursing. Cancer Nursing, 22(1), 63-71.
Refbacks
- There are currently no refbacks.