Caring for individuals at the end of life in a curative care unit: Privileges and heartbreaks

Marie-Laurence Fortin, Louise Bouchard

Abstract


The objective of this study was to describe the experience of caring for individuals at the end of life by five nurses working in curative care units. Semi-structured interviews were conducted to gain a better understanding of the meaning nurses give to this experience. The analysis of results, based on Giorgi’s phenomenological method (1997), highlighted a central meaning: it is a human experience fraught with paradoxes where the bedside nurse feels both privileged to be accompanying these individuals at the end of their lives and torn between the medical priority given to curative care and the lesser priority given to palliative care. This study offers relevant options for nurse managers wanting to improve these nurses’ work environment and the quality of care for individuals at the end of life.

Full Text:

PDF

References


Ariès, P. (1975). Essais sur l’histoire de la mort en Occident, du

Moyen âge à nos jours. Éditions du seuil.

Bertero, C. (2002). District nurses’ perceptions of palliative care in

the home. American Journal of Hospice and Palliative

Medicine, 19(6), 387–391.

Bram, P.J., & Katz, L.F. (1989). A study of burnout in nurses working

in hospice and hospital oncology settings. Oncology Nursing

Forum, 16(4), 555–560.

Brockopp, D.Y., King, D.B., & Hamilton, J.E. (1991). The dying

patient: A comparative study of nurse caregiver characteristics.

Death Studies, 15(3), 245–258.

Byrne, D., & McMurray, A. (1997). Caring for the dying: Nurses’

experiences in hospice care. Australian Journal of Advanced

Nursing, 15(1), 4–11.

Cara, C. (2002). La méthodologie phénoménologique, une

approche qualitative à découvrir. Notes de cours SOI-6103.

Recherche en sciences infirmières. Université de Montréal.

Davies, B., Clarke, D., Connaughty, S., Cook, K., MacKenzie, B.,

McCormick, J., et al. (1996). Caring for dying children: Nurses’

experiences. Pediatric Nursing, 22(6), 500–507.

Dechêne, G., Dion, D., Gratton, J. (2004). Où meurent les

Québécois?—Recherche sur la population québécoise de 1994 Ã

Le Médecin du Québec, 39(4), 111–121.

Dongois, M. (2003). Soigner aux portes de la mort. L’Actualité

Médicale, Août, 24–35.

Ferrell, B.R., & Coyle, N. (2002). An overview of palliative nursing

care. Case Management; Managing the Process of Patient

Care, 7(4), 163–168.

Fillion, L., Fortier, M., & Goupil, R. (2005). Education needs of palliative

care nurses in Quebec. Journal of Palliative Care, 21(1), 12–18.

Frommelt, K. (1991). The effects of death education on nurses’ attitudes

toward caring for terminally ill persons and their families. The

American Journal of Hospice & Palliative Care, Sept./Oct. 37–43.

Georgaki, S., Kalaidopoulou, O., Liarmakopoulos, I., & Mystakidou,

K. (2002). Nurses’ attitudes toward truthful communication with

patients with cancer. Cancer Nursing, 25(6), 436–441.

Giorgi, A. (1997). The theory, practice and evaluation of the

phenomenological method as a qualitative research procedure.

Journal of Phenomenological Psychology, 28(2) 235– 261.

Gray-Toft, P.A., & Anderson, J.G. (1987). Sources of stress in nursing

terminal patients in a hospice. Omega. 17(1), 27–39.

Hare, J., & Pratt, C. (1989). Nurses’ fear of death and comfort level

with dying patients. Death Studies, 13(4), 349–360.

Hopkinson, J.B. (2002). The hidden benefit: The supportive function

of the nursing handover for qualified nurses caring for dying

persons in hospital. Journal of Clinical Nursing, 11(2), 168–175.

Jacobs, L.G., Bonuck, K., Burton, W., & Mulvihill, M. (2002).

Hospital care at the end of life: An institutional assessment.

Journal of Pain and Symptom Management, 24(3), 291–298.

Kulbe, J. (2001). Stressors and coping measures of hospice nurses.

Home Healthcare Nurse, 19(11), 707–711.

Lambert, P., & Lecompte, M. (2002). L’état de situation sur les

soins palliatifs au Québec. Association québécoise de soins

palliatifs. 467 p.

McGrath, P., Yates, P., Clinton, M., & Hart, G. (1999). What should I

say? Qualitative findings on dilemmas in palliative care nursing.

Palliative Care Nursing, 14(2), 17–33.

Oberle, K., Hughes, D. (2001). Doctors’ and nurses’ perceptions of

ethical problems in end-of-life decisions. Journal of Advanced

Nursing, 33(6), 707–715.

Oiler, C. (1982). The phenomenological approach in nursing research.

Nursing Research, 31(3), 178–181.

Omery, A. (1983). Phenomenology: A method for nursing research.

Advances in Nursing Science, 5(2), 49–63.

Plante, A. (1993). La relation entre l’épuisement professionnel, le

stress occupationnel et le soutien professionnel chez les

infirmières en oncologie. Mémoire de maîtrise. Université de

Montréal.

Rittman, M., Rivera, J., & Godown, I. (1997). Phenomenological

study of nurses caring for dying patients. Cancer Nursing, 20(2),

–119.

Rooda, L.A., Clements, R., & Jordan, M.L. (1999). Nurse’s attitudes

toward death and caring for dying patients. Oncology Nursing

Forum, 26(10), 1683–1687.

Sadala, M.L.A, & Adorno, R. de C.F. (2002). Phenomenology as a

method to investigate the experience lived: A perspective from

Husserl and Merleau Ponty’s thought. Journal of Advanced

Nursing, 37(3), 282–293.

Thompson, E.H. (1985). Palliative and curative care nurses’ attitudes

toward dying and death in the hospital setting. Omega, 16(3),

–242.

Vachon, M.L.S. (1987). Occupational stress in the care of the

critically ill, the dying, and the bereaved (pp. 51–73).

Washington, DC: Publication Hemisphere.

Wallerstedt, B., & Andershed, B. (2007). Caring for dying patients

outside special palliative care settings: Experiences from a nursing

perspective. Scandinavian Journal of Caring Sciences, 21(1),

–40.

Wotton, K., Borbasi, S., & Redden, M. (2005). When all else has

failed: Nurses’ perception of factors influencing palliative care for

patients with end-stage heart failure. Journal of Cardiovascular

Nursing, 20(1), 18–25.


Refbacks

  • There are currently no refbacks.