Psychosocial needs of parents with children suffering from cancer in Rwanda: A cross-sectional study

Emmanuella Mukambonyi, Joseph Imanishimwe, Japhet Ishimwe, Parfait Ndizeye, Samuel Ishimwe, Jean Baptiste Niyombabazi, Vedaste Baziga, Peace Uwambaye, Margaret I. Fitch

Abstract


Background: Each year, approximately 400,000 children between the ages of 0 and 19 are diagnosed with cancer worldwide. The parents of these children experience heightened psychosocial challenges while managing their care throughout the treatment process. Recognizing these needs is essential for creating targeted interventions. This research project aimed to explore the psychosocial needs of parents with children undergoing cancer treatment.

Methodology: A community-based cross-sectional study was conducted to gather data from 100 parents or caregivers of children who received cancer treatment at Butaro Cancer Center of Excellence. Data were analyzed using descriptive statistics with SPSS version29.

Results: Participants faced significant psychosocial challenges, including managing emotions, such as anxiety, fear, and grief (Mean (M) = 2.2, Standard deviation (SD) = 1.45) and seeking peace of mind (M = 2.1, SD = 1.42), with 28% and 33% reporting extreme effects on emotional support and coping mechanisms. Informational needs were also a concern, as 29% felt uninformed about community resources (M = 2.20, SD = 1.428). Social support needs were notable, particularly the necessity of having someone to stay with the child (M = 2.57, SD = 1.53) was extremely important for 46% of the participants. Financial assistance to cover additional expenses was another challenge, with a mean score of 2.30, reflecting its critical importance.

Conclusion: This study offers important insights into the psychosocial needs of parents with children diagnosed with cancer, in Rwanda. Addressing and prioritizing these needs, while creating tailored interventions that target the identified areas, could improve the holistic care significantly and promote interventions to meet the psychosocial needs of parents of children suffering from cancer.

Keywords: parents, childhood cancer, psychosocial needs, information needs, financial needs

DOI:10.5737/23688076356828


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References


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