Gaining a better understanding of the support function of oncology nurse navigators from their own perspective and that of people living with cancer: Part 2

Johanne Hébert, Lise Fillion

Abstract


Individuals living with cancer have a wide range of needs throughout the disease trajectory. To better meet them, the PQLC [French acronym of the Quebec Cancer Control Program] implemented the oncology nurse navigator (ONN) role. A first article presented the nature of the needs of individuals living with cancer and of the support provided by ONNs. This second article aims at gaining a better understanding of the ONN support function from the ONNs’ own perspective and to complete an exploratory description of their support interventions for individuals living with cancer and their loved ones throughout the care trajectory. The sample includes ten ONNs. They reported doing support interventions for all the various types of needs, especially in the informational (44%) and practical areas such as coordinating appointments for exams, practitioners and various services (35%). The results also suggest that a needs assessment is a prerequisite to intervention. Lastly, all participants underscored the importance of the helping relation and trusting relationship to clarify their support function. These results are consistent with the findings of several recent articles on the psychosocial role of oncology nurses.


Full Text:

PDF

References


Ahlberg, K., Ekman, T., & Gaston-Johansson, F. (2005). Fatigue,

psychological distress, coping resources, and functional status

during radiotherapy for uterine cancer. Oncology Nursing Forum,

(3), 633–640.

Ahmed, N., Ahmedzai, S.H., Vora, V., Hillam, V., & Paz, S. (2004).

Supportive care for patients with gastrointestinal cancer (Review).

Cochrane Database of Systematic Reviews, 3, art. No.: CD003445.

DOI:10.1002/14651858.CD003445.pub2

Bauwens, S., Baillon, C., Distelmans, W., & Theuns, P. (2009). The

Distress Barometer: Validation of method of combining the

Distress Thermometer with a rated complaint scale. Psycho-

Oncology, 18(5), 534–542.

Bultz, B., Carlson, L., Dudgeon, D., Fillion, L., Fitch, M., Groff, S., et al.

(2009). Implementation screening for distress, the 6th vital sign:

Background, recommendations, and implementation. Toronto:

Canadian Partenership against Cancer (cancer journey action group).

Conseil québécois de lutte contre le cancer (CQLC). (2000).

L’intervenant pivot en oncologie : un rôle d’évaluation,

d’information et de soutien pour le mieux-être des personnes

atteintes de cancer. Québec. Ministère de la Santé et des Services

sociaux.

Crooks, D.L., Whelan, T.J., Reyno, L., Willan, A., Tozer, R., Mings, D.,

et al. (2004). The Initial Health Assessment: An intervention to

identify the supportive care needs of cancer patients. Support

Care Cancer, 12, 19–24.

Cruickshank, S., Kennedy, C., Lockhart, K., Dosser, I., & Dallas, L.

(2008). Specialist breast care nurses for supportive care of women

with breast cancer. Cochrane Database of Systematic Reviews, 1.

Art. No.:CD005634. doi 10.1002/14651858.CD005634.pub2

De Serres, M., & Rochette, M. (2004). Les infirmières pivots en oncologie

au Québec: l’état de la situation en 2004. Présentation faite au

forum sur l’infirmière pivot en oncologie, Longueuil, 26 mars.

Direction de la lutte contre le cancer (DLCC). (2005). Pour optimiser

la contribution de l’infirmière à la lutte contre le cancer. Comité

de l’évolution de la pratique infirmière en oncologie (CEPIO).

Québec. Ministère de la Santé et des Services sociaux.

Direction de la lutte contre le cancer. (2008). Rôle de l’infirmière

pivot en oncologie. Comité consultatif des infirmières en

oncologie. Québec. Ministère de la Santé et des Services sociaux.

Doll, R., Barroetavena, M.C., Ellwood, A.L., Fillion, L., Habra, M.E.,

Linden, W., & Stephen, J. (2007). The Cancer Care Navigator:

Toward a conceptual framework for a new role in oncology.

Oncology Exchange, 6(4),28–35.

Fillion, L., Morin, D., & Saint-Laurent, L. (2000). Description du

concept de l’intervenant pivot : approche théorique et qualitative

(rapport présenté à l’équipe de recherche sur le dossier clinique

informatisé en oncologie). Québec. Université Laval.

Fillion, L., de Serres, M., Lapointe-Goupil, R., Bairati, I., Gagnon, P.,

Deschamps et al. (2006). Implantation d’une infirmière pivot

en oncologie dans un centre hospitalier universitaire. Revue

canadienne de soins infirmiers en oncologie, 16(1), 5–17.

Fillion, L., de Serres, M., Cook, S., Goupil, R. L., Bairati, I., & Doll, R.

(2009). Professional patient navigation in head and neck cancer.

Seminars in Oncology Nursing, 25(3), 212–221.

Fitch, M.I. (1994). Providing supportive care for individuals living with

cancer. Toronto. Cancer Treatment and Research Foundation.

Fitch, M.I. (2003). Psychosocial management of patients with

recurrent ovarian cancer: Treating the whole patient to improve

quality of life. Seminars in Oncology Nursing, 19(3), 40–53.

Fitch, M.I. (2008). Cadre des soins de soutien. Revue canadienne de

soins infirmiers en oncologie, 18(1), 15–24.

Fraser, A. (1995). Pour une meilleure compréhension des besoins des

personnes atteintes de cancer. Québec. Comité consultatif sur le

cancer. Ministère de la Santé et des Services sociaux.

Goodell, T.T., & Nail, L.M. (2005). Operationalizing symptom distress

in adults with cancer: A literature synthesis. Oncology Nursing

Forum, 32(2), 42–47.

Howell, D., Currie, S., Mayo, S., Jones, G., Boyle, M., Hack, T., et al.

(2009). A Pan-Canadian clinical practice guideline: Assessment of

psychosocial health care needs of the adult Cancer Patient. Toronto:

Canadian Partnership Against Cancer (Cancer Journey Action

Group) and the Canadian Association of Psychosocial Oncology.

Kerr, L.-M.J., Harrison, M.B., & Medves, J. (2004). Supportive care

needs of parents of children with cancer: Transition from

diagnosis to treatment. Oncology Nursing Forum, 31(6), 116–126.

Kerr, L.-M.J., Harrison, M.B., Medves, J., Tranmer, J.E., & Fitch, M.I.

(2007). Understanding the supportive care needs of parents of

children with cancer: An approach to local needs assessment.

Journal of Pediatric Oncology Nursing, 24(5), 279–293.

Kruijver, I.P., Kerkstra, A., Bensing, J.M., & van de Wiel, H.B. (2000).

Nurse-patient communication in cancer care: A review of the

literature. Cancer Nursing, 23(1), 20–31.

Kuuppelomäki, M. (2002). Spiritual support for families of

patientswith cancer: A pilot study of nursing staff assessments.

Cancer Nursing, 25(3), 209–218.

Lazarus, R., & Folkman, S. (1984). Stress, appraisal and coping. New

York: Springer.

Liu, J.-E., Mok, E., & Wong, T. (2005). Perceptions of supportive

communication in Chinese patients with cancer: Experiences and

expectations. Journal of Advanced Nursing, 52(3), 262–270.

Long, A.F., Kneafsey, R., Ryan, J., & Berry, J. (2002). The role of the

nurse within the multi-professional rehabilitation team. Journal

of Advanced Nursing, 37(1), 70–78.

Manning-Walsh, J. (2005a). Social support as a mediator between

symptom distress and quality of life in women with breast

cancer. Journal of Obstetric, gynecologic, & Neonatal Nursing,

(4), 482–493.

Manning-Walsh, J. (2005b). Psychospiritual well-being and symptom

distress in women with breast cancer. Oncology Nursing Forum,

(3), 56–62.

Ministère de la Santé et des Services sociaux. (1998). Programme

québécois de lutte contre le cancer. Pour lutter efficacement

contre le cancer, formons équipe. Comité consultatif.

Bibliothèque Nationale du Québec. Octobre.

National comprehensive cancer network (NCCN). (2008). Distress

management. Clinical practice guidelines in oncology, V.1.

Page, M.S., Berger, A.M., & Johnson, L.B. (2006). Putting evidence

into practice: Evidence-based interventions for sleep-wake

disturbances. Clinical Journal of Oncology Nursing, 10(6), 753–

Patton, M.Q. (1990). Qualitative evaluation and research methods

(2nd ed., p. 532). Newbury Park, CA: Sage Publications.

Patton, M.Q. (1997). Utilization-focused evaluation: The new century

text (3rd ed., p. 431). Thousand Oaks, CA: Sage Publications.

Pigott, C., Pollard, A., Thomson, K., & Aranda, S. (2008). Unmet needs

in cancer patients: Development of a supportive needs screening

tool (SNST). Support Care Cancer, 17(1), 33–45.

Richardson, A., Medina, J., Brown, V., & Sitzia, J. (2007a). Patients’

needs assessment in cancer care: A review of assessment tools.

Support Cancer Care, 15, 1125–1144.

Richardson, A., Plant, H., Moore, S., Medina, J., Cornwall, A., & Recam,

E. (2007b). Developing supportive care for family members of

people with lung cancer: A feasibility study. Support Care Cancer,

, 1259–1269.

Ryan, H., Schofield, P., Cockburn, J., Buttow, P., Tattersall, M., Turner,

J., et al. (2005). How to recognize and manage psychological

distress in cancer patients. European Journal of Cancer Care, 14,

–15.

Skilbeck, J., & Payne, S. (2003). Emotional support and the role of

Clinical Nurse Specialist in palliative care. Journal of Advanced

Nursing, 43(5), 521–530.

Steele, R., & Fitch, M.I. (2008). Supportive care needs of women with

gynecologic cancer. Cancer Nursing, 31(4), 284–291.

Stephens, P.A., Osowski, M., Fidale, M.S., & Spagnoli, C. (2008).

Identifying the educational needs and concerns of newly

diagnosed patients with breast cancer after surgery. Clinical

Journal of Oncology Nursing, 12(2), 253–258.

Strang, S., Strang, P., & Ternestedt, B.M. (2002). Spiritual needs as

defined by Swedish nursing staff. Journal of Clinical Nursing, 11,

–57.

Thorne, S.E., Hislop, T.G., Armstrong, E.A., & Oglov, V. (2008). Cancer

care communication: The power to harm and the power to heal?

Patient Education and Counseling, 71, 34–40.

Tiffen, J., Sharp, L., & O’Toole, C. (2005). Depressive symptoms

prescreening and postscreening among returning participants

in an ovarian cancer early detection program. Cancer Nursing,

(4), 325–330.


Refbacks

  • There are currently no refbacks.