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Détresse morale des proches aidants de personnes atteintes de cancer en soins palliatifs : une étude qualitative
Abstract
La présente étude visait à comprendre les causes de la détresse morale chez les proches aidants de personnes atteintes de cancer recevant des soins palliatifs. Pour cette étude qualitative longitudinale où le concept de détresse morale sert de référence interprétative, dix proches aidants se sont livrés à des entrevues approfondies. Les données ont été analysées à l’aide d’une technique thématique inductive, qui a permis de faire ressortir deux grands thèmes. Pour le premier thème, « Les répercussions du diagnostic », les participants ont parlé des incertitudes qu’ils ont ressenties après qu’un membre de leur famille ait reçu un diagnostic de cancer. Avec le deuxième thème, « Bouleversement de la vie quotidienne », les participants ont exprimé combien le fait de s’occuper d’un membre de leur famille atteint de cancer a transformé leur vie de tous les jours. Il ne faut pas oublier que les proches aidants vivent eux aussi des dilemmes et des incertitudes qui génèrent une certaine détresse morale pendant tout le parcours avec la maladie.
DOI:10.5737/23688076352368
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