Soutien aux survivants du cancer par les infirmières en oncologie, du diagnostic de la maladie jusqu’au congé de l’hôpital : cas exemplaire

Carrie MacDonald-Liska, Pegah Torabi, Kelly-Anne Baines, Karine Bilodeau

Abstract


Le présent article résume l’atelier du groupe d’intérêt spécial sur la survivance qui s’est tenu lors de la conférence annuelle de 2023 de l’ACIO. Cet atelier visait à souligner, à l’aide d’un cas exemplaire, les besoins particuliers de la personne atteinte du cancer tout au long de la trajectoire de la maladie. Il visait aussi à aider l’infirmière en oncologie à mieux connaître les stratégies de soutien à l’autogestion susceptibles d’aider le patient à calmer ses inquiétudes liées à la survie. Au cours d’une discussion avec les participants à cet atelier, on a montré comment ces stratégies pouvaient aider à combler les besoins particuliers du patient à trois étapes précises de la lutte contre le cancer : la chirurgie, la chimiothérapie et la transition vers les soins primaires. Quatre-vingt-treize pour cent des participants ont reconnu que l’atelier leur avait permis de mieux comprendre la question de la survivance. Les participants ont aussi affirmé que l’atelier avait eu un effet positif sur leur pratique; cela leur avait permis d’apprendre de nouvelles stratégies pour appuyer les patients durant les étapes de transition et les avait incités à intégrer rapidement à leur pratique le soutien à l’autogestion par les patients.

Mots-clés : survie au cancer, soins infirmiers en oncologie, soutien à l’autogestion, atelier, information

DOI:10.5737/23688076352312


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References


Adams, K., Greiner, A., & Corrigan, J. (2004). Institute of Medicine (US). Committee on the Crossing the Quality Chasm: Next steps toward a new health care system. Report of a summit: The 1st Annual Crossing the Quality Chasm Summit—a focus on communities

Barlow, J., Wright, C., Sheasby, J., Turner, A., & Hainsworth, J. (2002). Self-management approaches for people with chronic conditions: A review. Patient education and counseling, 48(2), 177–187. https://doi.org/10.1016/s0738-3991(02)00032-0

Bilodeau, K., Henriksen, C., Lee, V., Vachon, M. F., Charpentier, D., Folch, N., Pepin, J., Pomey, M. P., Piché, L., & Fernandez, N. (2022). The experiential learning pathway of cancer survivors as they recover their lives post-treatment: A qualitative study. Global Qualitative Nursing Research, 9, 23333936221083026. https://doi.org/10.1177/23333936221083026

Bilodeau, K., Lee, V., Pepin, J., Pomey, M. P., Sultan, S., Folch, N., Charpentier, D., Vachon, M. F., Dumont-Lagacé, É., & Piché, L. (2021). Learning through the experience of cancer survivorship: Differences across age groups. J Psychosoc Oncol, 39(4), 553–570. https://doi.org/10.1080/07347332.2021.1878316

Boland, L., Bennett, K., & Connolly, D. (2018). Self-management interventions for cancer survivors: A systematic review. Supportive Care in Cancer, 26(5), 1585–1595. https://doi.org/10.1007/s00520-017-3999-7

Budge, C., Taylor, M., & Curtis, C. (2021). Support for living well with long-term conditions: How people manage. Journal of Clinical Nursing, 30(3-4), 475–487. https://doi.org/10.1111/jocn.15560

Canadian Cancer Statistics. (2023). Canadian cancer statistics advisory committee in collaboration with the Canadian Cancer Society, Statistics Canada and the Public Health Agency of Canada. Canadian Cancer Society; 2023. https://cancer.ca/Canadian-Cancer-Statistics-2023-EN

Chan, R. J., Agbejule, O. A., Crawford-Williams, F., Yates, P. M., Koczwara, B., Erickson, J., So, W. K. W., & Howell, D. (2023). Development of an international competency framework for nurses in the provision of self-management support to cancer populations. Cancer Nurs, 46(6), 477–487. https://doi.org/10.1097/ncc.0000000000001143

Chan, R. J., Mayer, D. K., Koczwara, B., Loerzel, V., Charalambous, A., Agbejule, O. A., & Howell, D. (2020). Building capacity in cancer nurses to deliver self-management support: A call for action paper. Cancer Nursing, 43(5). https://doi.org/10.1097/NCC.0000000000000855

Charalambous, A. (2019). Individualised nursing care in cancer care. In R. Suhonen, M. Stolt, & E. Papastavrou (Eds.), Individualized Care: Theory, Measurement, Research and Practice (pp. 131–139). Springer International Publishing. https://doi.org/10.1007/978-3-319-89899-5_12

Charalambous, A., Wells, M., Campbell, P., Torrens, C., Östlund, U., Oldenmenger, W., Patiraki, E., Sharp, L., Nohavova, I., & Domenech-Climent, N. (2018). A scoping review of trials of interventions led or delivered by cancer nurses. International Journal of Nursing Studies, 86, 36–43.

Coates, V. (2017). Role of nurses in supporting patients to self-manage chronic conditions. Nurs Stand, 31(38), 42–46. https://doi.org/10.7748/ns.2017.e10742

Duprez, V., Beeckman, D., Verhaeghe, S., & Van Hecke, A. (2017). Self-management support by final year nursing students: A correlational study of performance and person-related associated factors. Int J Nurs Stud, 74, 120–127. https://doi.org/10.1016/j.ijnurstu.2017.06.010

El-Akhras, A., & Bilodeau, K. (2023). L’accompagnement infirmier personnalisé aux besoins des jeunes hommes atteints d’un cancer. Can Oncol Nurs J, 33(2), 231–238. https://doi.org/10.5737/23688076332231 (L’accompagnement infirmier personnalisé aux besoins des jeunes hommes atteints d’un cancer.)

Fitch, M., Zomer, S., Lockwood, G., Louzado, C., Shaw Moxam, R., Rahal, R., & Green, E. (2019). Experiences of adult cancer survivors in transitions. Supportive Care in Cancer, 27(8), 2977–2986. https://doi.org/10.1007/s00520-018-4605-3

Foster, C. (2022). The need for quality self-management support in cancer care. BMJ Quality & Safety, 31(1), 1–4.

Hackel, J., & Fawcett, J. (2018). Teaching and learning from case studies: The added value of using a nursing conceptual model to construct cases. Nursing Science Quarterly, 31(3), 263–271. https://doi.org/10.1177/0894318418774872

Hassankhani, H., Orujlu, S., Rahmani, A., Sanaat, Z., Dadashzadeh, A., & Allahbakhshian, A. (2023). Enhancing cancer pain self-management: A holistic supporting model. SAGE Open Nursing, 9, 23779608231197581. https://doi.org/10.1177/23779608231197581

Herron, E. K., Powers, K., Mullen, L., & Burkhart, B. (2019). Effect of case study versus video simulation on nursing students’ satisfaction, self-confidence, and knowledge: A quasi-experimental study. Nurse Education Today, 79, 129–134. https://doi.org/https://doi.org/10.1016/j.nedt.2019.05.015

Howell, D., Mayer, D. K., Fielding, R., Eicher, M., Verdonck-de Leeuw, I. M., Johansen, C., Soto-Perez-de-Celis, E., Foster, C., Chan, R., Alfano, C. M., Hudson, S. V., Jefford, M., Lam, W. W. T., Loerzel, V., Pravettoni, G., Rammant, E., Schapira, L., Stein, K. D., & Koczwara, B. (2021). Management of cancer and health after the clinic visit: A call to action for self-management in cancer care. J Natl Cancer Inst, 113(5), 523–531. https://doi.org/10.1093/jnci/djaa083

Howell, D. D. (2018). Supported self-management for cancer survivors to address long-term biopsychosocial consequences of cancer and treatment to optimize living well. Current Opinion in Supportive and Palliative Care, 12(1), 92–99. https://doi.org/10.1097/spc.0000000000000329

Jongerden, I. P., Slev, V. N., van Hooft, S. M., Pasman, H. R., Verdonck-de Leeuw, I. M., de Veer, A. J. E., van Uden-Kraan, C. F., & Francke, A. L. (2019). Self-management support in patients with incurable cancer: How confident are nurses? Oncol Nurs Forum, 46(1), 104-112. https://doi.org/10.1188/19.Onf.104-112

Lewandowska, A., Rudzki, G., Lewandowski, T., & Rudzki, S. (2020). The problems and needs of patients diagnosed with cancer and their caregivers. International journal of environmental research and public health, 18(1). https://doi.org/10.3390/ijerph18010087

Lorig, K. R., & Holman, H. R. (2003). Self-management education: History, definition, outcomes, and mechanisms. Annals of behavioral medicine, 26(1), 1–7.

MacDonald-Liska, C., Bilodeau, K., & Baines, K. A. (2024). How can I support cancer survivorship from diagnosis to discharge? A workshop for clinical oncology nurses. Canadian Oncology Nursing Journal / Revue canadienne de soins infirmiers en oncologie, 34(1). Niagara Falls. https://canadianoncologynursingjournal.com/index.php/conj/article/view/1455

Otero-Sabogal, R., Arretz, D., Ngo, V., McKown, J., Li, J., Lee, R., & Newman, J. (2008). Positive impact of a self-management program on improving asthma symptoms amoung inner-city children: St. Luke’s healthfirst center for education and prevention. California Association for Healthcare Quality Journal, 32, 16–29.

Ose, D., Winkler, E. C., Berger, S., Baudendistel, I., Kamradt, M., Eckrich, F., & Szecsenyi, J. (2017). Complexity of care and strategies of self-management in patients with colorectal cancer. Patient preference and adherence, 11, 731–742. https://doi.org/10.2147/ppa.s127612

Poirier, A. E., Ruan, Y., Walter, S. D., Franco, E. L., Villeneuve, P. J., King, W. D., Volesky, K. D., O’Sullivan, D. E., Friedenreich, C. M., & Brenner, D. R. (2019). The future burden of cancer in Canada: Long-term cancer incidence projections 2013–2042. Cancer Epidemiology, 59, 199–207. https://doi.org/10.1016/j.canep.2019.02.011

Tharani, A., Van Hecke, A., Ali, T. S., & Duprez, V. (2021). Factors influencing nurses’ provision of self-management support for patients with chronic illnesses: A systematic mixed studies review. International Journal of Nursing Studies, 120, 103983. https://doi.org/10.1016/j.ijnurstu.2021.103983

van Dongen, S. I., de Nooijer, K., Cramm, J. M., Francke, A. L., Oldenmenger, W. H., Korfage, I. J., Witkamp, F. E., Stoevelaar, R., van der Heide, A., & Rietjens, J. A. C. (2020). Self-management of patients with advanced cancer: A systematic review of experiences and attitudes. Palliative Medicine, 34(2), 160–178. https://doi.org/10.1177/0269216319883976

Vinette, B., & Bilodeau, K. (2021). Progression of self-management learning experiences of young adults following an allogeneic hematopoietic stem cell transplantation: A qualitative study. Eur J Oncol Nurs, 52, 101951. https://doi.org/10.1016/j.ejon.2021.101951

Watson, L., Maheu, C., Champ, S., & Fitch, M. I. (2021). Empowering oncology nurses through knowledge and practice to improve transitions following treatment and survivorship care. Asia Pac J Oncol Nurs, 8(5), 555–559. https://doi.org/10.4103/apjon.apjon-215

Young, A. M., Charalambous, A., Owen, R. I., Njodzeka, B., Oldenmenger, W. H., Alqudimat, M. R., & So, W. K. W. (2020). Essential oncology nursing care along the cancer continuum. The Lancet Oncology, 21(12), e555–e563. https://doi.org/10.1016/S1470-2045(20)30612-4


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