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L’incidence du rôle d’infirmière clinicienne spécialisée dans le programme des néoplasies myéloprolifératives : Deuxième partie – L’expérience des soins des patients et de l’équipe
Abstract
Les néoplasies myéloprolifératives forment un groupe de troubles clonaux rares des cellules progénitrices hématopoïétiques; elles sont associées à des symptômes propres à la maladie, à des événements thrombotiques et à un risque d’évolution vers la leucémie myéloblastique aiguë (Tefferi, 2021). La relative rareté de cette pathologie ainsi que la complexité des soins ont mené à la création du programme des néoplasies myéloprolifératives du Centre de cancérologie Princess Margaret. Le programme applique un modèle de soins partagés avec des hématologues de la région (qui deviennent partenaires des soins partagés) pour assurer aux patients l’accès à un spécialiste des néoplasies myéloprolifératives tout en continuant de recevoir des soins près de chez eux (Cheung et al., 2021). En place depuis 2016, le rôle d’infirmière clinicienne spécialisée (ICS) a fait son apparition non seulement pour appuyer le modèle de soins partagés, mais aussi pour faciliter le triage des patients nouvellement aiguillés vers le centre, et faciliter les consultations et le suivi. Bien que ce rôle fasse partie du système de santé depuis les années 1940, sa définition et ses avantages demeurent parfois flous pour l’équipe interdisciplinaire. La série d’articles décrit, à l’aide d’une approche multiméthode, le processus et les résultats quantitatifs de l’évaluation des effets du rôle d’ICS sur le programme des néoplasies myéloprolifératives. Cette seconde partie traite de l’expérience des soins que font les patients et les soignants de la présence de l’ICS au sein de l’équipe de professionnels.
Mots-clés : infirmière clinicienne spécialisée, influence du rôle, économie de coûts
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