Utilisation de cartes de parcours pour comprendre les mesures des résultats rapportés par les patients tout au long de l’expérience du cancer
Abstract
Objectif : L’objectif de la présente étude qualitative est de montrer que l’utilisation de cartes de parcours établies à partir des résultats rapportés par les patients facilite la communication entre les cliniciens et les patients lorsqu’il est question de bien-être, à toutes les étapes de l’expérience du cancer.
Méthodologie : Des entrevues semi-structurées ont été menées en ligne et par téléphone auprès de 6 personnes âgées de la Colombie-Britannique, au Canada. Elles devaient décrire leur expérience du cancer et l’associer à un score de bien-être en utilisant le questionnaire révisé de l’échelle d’évaluation des symptômes d’Edmonton (revised Edmonton Symptom Assessment Scale ou ESAS-r) tout au long de la trajectoire des soins (pré-diagnostic, diagnostic, traitement, post-traitement).
Résultats : En tout, 6 personnes âgées ayant reçu un traitement oncologique ont participé aux entrevues, et 6 cartes de parcours ont été créées; on y constate une fluctuation du niveau de bien-être pendant l’expérience du cancer.
Conclusion : Les cartes de parcours facilitent la communication entre le patient et le clinicien, permettent d’adapter les interventions et attirent l’attention des cliniciens sur différents signes afin qu’ils comprennent mieux le bien-être des patients tout au long de l’expérience du cancer.
Mots-clés : mesures des résultats rapportés par les patients, cartes de parcours, radiothérapie, soins oncologiques, personnes âgées
DOI:10.5737/23688076344460
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