Soins de soutien au Nouveau-Brunswick (Canada) : analyse de l’environnement

Charlotte Schwarz, Alison Luke, Lauren Renée Ashfield, Julie Easley, Stephanie McIntosh-Lawrence, Danie Beaulieu, Shelley Doucet

Abstract


Le diagnostic et le traitement du cancer laissent rarement les survivants et leurs proches physiquement et psychologiquement indemnes. Les services dont ils ont besoin dépassent le seul traitement médical, c’est-à-dire qu’il leur faut une variété de soins de soutien répondant à leurs besoins physiques, sociaux, informationnels et émotionnels. La présente étude a pour objectif de répertorier les services de soutien destinés aux survivants du cancer, aux membres de leur famille et à leurs proches aidants qui sont disponibles dans la province du Nouveau-Brunswick, au Canada. Pour ce faire, nous avons procédé à une analyse de l’environnement, ce qui nous a permis de constater que les services disponibles dans la province ne sont pas facilement repérables ou accessibles. On a observé tout particulièrement des lacunes dans les services aux survivants, à leur famille et à leurs proches, en phase post-traitement.


Full Text:

PDF

References


Beesley, V., Eakin, E., Steginga, S., Aitken, J., Dunn, J., & Battistutta, D. (2008). Unmet needs of gynaecological cancer survivors: Implications for developing community support services. Psycho-Oncology, 17(4), 392–400. https://doi.org/10.1002/pon.1249

Berman, R., Davies, A., Cooksley, T., Gralla, R., Carter, L., Darlington, E., Scotté, F., & Higham, C. (2020). Supportive care: An indispensable component of modern oncology. Clinical Oncology (Royal College of Radiologists (Great Britain)), 32(11), 781–788. https://doi.org/10.1016/j.clon.2020.07.020

Bolesnikov, G., Kumar, E., Savoie, R., Zhang, B., Clarkson, J., Easley, J., & Lemieux, L. (2020). Cancer system performance 2019. New Brunswick Cancer Network, New Brunswick Department of Health, 0–36.

Butow, P. N., Phillips, F., Schweder, J., White, K., Underhill, C., Goldstein, D., & Clinical Oncological Society of Australia. (2012). Psychosocial well-being and supportive care needs of cancer patients living in urban and rural/regional areas: A systematic review. Supportive Care in Cancer, 20(1), 1–22. https://doi.org/10.1007/s00520-011-1270-1

Carrieri, D., Peccatori, F. A., & Boniolo, G. (2018). Supporting supportive care in cancer: The ethical importance of promoting a holistic conception of quality of life. Critical Reviews in Oncology/Hematology, 131, 90–95. https://doi.org/10.1016/j.critrevonc.2018.09.002

Charlton, P., Doucet, S., Azar, R., Nagel, D. A., Boulos, L., Luke, A., Mears, K., Kelly, K. J., & Montelpare, W. J. (2019). The use of the environmental scan in health services delivery research: A scoping review protocol. BMJ Open, 9(9), e029805. https://doi.org/10.1136/bmjopen-2019-029805

Fincham, L., Copp, G., Caldwell, K., Jones, L., & Tookman, A. (2005). Supportive care: Experiences of cancer patients. European Journal of Oncology Nursing, 9(3), 258–268. https://doi.org/10.1016/j.ejon.2004.08.004

Fitch, M. I. (1994). Providing supportive care for individuals living with cancer. Toronto, Canada: Ontario Cancer Treatment and Research Foundation.

Fitch, M. I. (2008). Supportive care framework. Canadian Oncology Nursing Journal, 18(1), 6–14. https://doi.org/10.5737/1181912x181614

Fitch, M., Zomer, S., Lockwood, G., Louzado, C., Shaw Moxam, R., Rahal, R., & Green, E. (2019). Experiences of adult cancer survivors in transitions. Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer, 27(8), 2977–2986. https://doi.org/10.1007/s00520-018-4605-3

Götze, H., Friedrich, M., Taubenheim, S., Dietz, A., Lordick, F., & Mehnert, A. (2020). Depression and anxiety in long-term survivors 5 and 10 years after cancer diagnosis. Supportive Care in Cancer, 28(1), 211–220. https://doi.org/10.1007/s00520-019-04805-1

Gouvernement de Canada. (2022a, 9 février). Census Profile, 2021 Census of Population. https://www12.statcan.gc.ca/census-recensement/2021/dp-pd/prof/index.cfm?Lang=E

Gouvernement de Canada. (2022b, 9 février). Population growth in Canada’s rural areas, 2016 to 2021. https://www12.statcan.gc.ca/census-recensement/2021/as-sa/98-200-x/2021002/98-200-x2021002-eng.cfm

Graham, P., Evitts, T., & Thomas-MacLean, R. (2008). Environmental scans: How useful are they for primary care research? Canadian Family Physician, 54(7), 1022–1023.

Harrison, J. D., Young, J. M., Price, M. A., Butow, P. N., & Solomon, M. J. (2009). What are the unmet supportive care needs of people with cancer? A systematic review. Supportive Care in Cancer, 17(8), 1117–1128. https://doi.org/10.1007/s00520-009-0615-5

Hui, D., De La Cruz, M., Mori, M., Parsons, H. A., Kwon, J. H., Torres-Vigil, I., Kim, S. H., Dev, R., Hutchins, R., Liem, C., Kang, D.-H., & Bruera, E. (2013). Concepts and definitions for “supportive care,†“best supportive care,†“palliative care,†and “hospice care†in the published literature, dictionaries, and textbooks. Supportive Care in Cancer, 21(3), 659–685. https://doi.org/10.1007/s00520-012-1564-y

Hutchison, S. D., Steginga, S. K., & Dunn, J. (2006). The tiered model of psychosocial intervention in cancer: A community based approach. Psycho-Oncology, 15(6), 541–546. https://doi.org/10.1002/pon.973

Inhestern, L., Beierlein, V., Bultmann, J. C., Möller, B., Romer, G., Koch, U., & Bergelt, C. (2017). Anxiety and depression in working-age cancer survivors: A register-based study. BMC Cancer, 17(1), 347. https://doi.org/10.1186/s12885-017-3347-9

Jablotschkin, M., Binkowski, L., Markovits Hopii, R. & Weis, J. (2022). Benefits and challenges of cancer peer led support groups: A systematic review of qualitative studies. European Journal of Cancer Care, 31(6), 1- 17. https://doi.org/10.1111/ecc.13700

Jordan, K., Aapro, M., Kaasa, S., Ripamonti, C. I., Scotté, F., Strasser, F., Young, A., Bruera, E., Herrstedt, J., Keefe, D., Laird, B., Walsh, D., Douillard, J. Y., & Cervantes, A. (2018). European Society for Medical Oncology (ESMO) position paper on supportive and palliative care. Annals of Oncology, 29(1), 36–43. https://doi.org/10.1093/annonc/mdx757

Kent, E. E., Lee, S., Asad, S., Dobbins, E. E., Aimone, E. V., & Park, E. M. (2023). “If I wasn’t in a rural area, I would definitely have more support†: social needs identified by rural cancer caregivers and hospital staff. Journal of Psychosocial Oncology, 41(4), 393–410. https://doi.org/10.1080/07347332.2022.2129547

Kirsten, L., Butow, P., Price, M., Hobbs, K., & Sunquist, K. Who helps the leaders? Difficulties experienced by cancer support group leaders. Supportive Care in Cancer, (14), 770–778. https://link.springer.com/article/10.1007/s00520-005-0896-2

Klastersky, J, Libert, I., Michel, B., et a. (2016). Supportive/palliative care: quo vadis? Supportive Care in Cancer, 24, 1883–1888. https://doi.org/10.1007/s00520-015-2961-9

Ktistaki, P., Alevra, N., & Voulgari, M. (2017). Long-term survival of women with breast cancer. Overview supportive care needs assessment instruments. Advances in Experimental Medicine and Biology, 989, 281–284. https://doi.org/10.1007/978-3-319-57348-9_25

Loughery, J., & Woodgate, R. (2015). Supportive care needs of rural individuals living with cancer: A literature review. Canadian Oncology Nursing Journal/Revue canadienne de soins infirmiers en oncologie, 25(2), 157–166. https://doi.org10.5737/23688076252157166

MASCC. (n.d.). What is Supportive Care? Multinational Association of Supportive Care in Cancer MASCC. Retrieved July 5, 2022, from https://mascc.org/what-is-supportive-care/

Monnery, D., Benson, S., Griffiths, A., Cadwallader, C., Hampton-Matthews, J., Coackley, A., Cooper, M., & Watson, A. (2018). Multi-professional-delivered enhanced supportive care improves quality of life for patients with incurable cancer. International Journal of Palliative Nursing, 24(10), 510–514. https://doi.org/10.12968/ijpn.2018.24.10.510

Morrison, J. L. (1992). Environmental scanning. In M. A. Whitely, J. D. Porter, and R. H. Fenske (Eds.), A primer for new institutional researchers (pp. 86–99). Tallahassee, Florida: The Association for Institutional Research. http://horizon.unc.edu/courses/papers/enviroscan/

Olver, I., Keefe, D., Herrstedt, J., Warr, D., Roila, F., & Ripamonti, C. I. (2020). Supportive care in cancer—A MASCC perspective. Supportive Care in Cancer, 28(8), 3467–3475. https://doi.org/10.1007/s00520-020-05447-4

Romkey-Sinasac, C., Saunders, S., & Galica, J. (2021). Canadian resources, programs, and models of care to support cancer survivors’ transition beyond treatment: A scoping review. Current Oncology, 28(3), 2134–2145. https://doi.org/10.3390/curroncol28030198

Scotté, F. (2012). The importance of supportive care in optimizing treatment outcomes of patients with advanced prostate cancer. The Oncologist, 17(Suppl. 1), 23–30. https://doi.org/10.1634/theoncologist.2012-S1-23

Stiefel, F., & Guex, P. (1996). Palliative and supportive care: At the frontier of medical omnipotence. Annals of Oncology, 7(2), 135–138. https://doi.org/10.1093/oxfordjournals.annonc.a010539

Surbone, A., Baider, L., Weitzman, T. S., Brames, M. J., Rittenberg, C. N., Johnson, J., & MASCC Psychosocial Study Group Psychosocial Study Group. (2009). Psychosocial care for patients and their families is integral to supportive care in cancer: MASCC position statement. Supportive Care in Cancer, 18(2), 255–263. https://doi.org/10.1007/s00520-009-0693-4

Ugalde, A., Blaschke, S., Boltong, A., Schofield, P., Aranda, S., Phipps-Nelson, J., Chambers, S. K., Krishnasamy, M., & Livingston, P. M. (2019). Understanding rural caregivers’ experiences of cancer care when accessing metropolitan cancer services: a qualitative study. BMJ Open, 9(7), e028315. https://doi.org/10.1136/bmjopen-2018-028315

Yi, J. C., & Syrjala, K. L. (2017). Anxiety and Depression in Cancer Survivors. The Medical Clinics of North America, 101(6), 1099–1113. https://doi.org/10.1016/j.mcna.2017.06.005

Young, J., & Snowden, A. (2019). A qualitative study on the perceived impact of using an integrated community-based supportive cancer service. European Journal of Cancer Care, 28(3), e13001. https://doi.org/10.1111/ecc.13001

Zhang, B., Varner, L., Munro, M., Clarkson, J., Koch, S., Leonfellner, S., Bolesnikov, G., Vautier, R., Craig, E., Lemieux, L., Savoie, R., & Kumar, E. (2018). Cancer in New Brunswick 2007-2013. New Brunswick Cancer Network, New Brunswick Department of Health, 0–105.


Refbacks

  • There are currently no refbacks.