Regards sur les séquelles psychosociales des cancers pédiatriques sur le parcours de réintégration des jeunes survivants devenus adultes : étude qualitative exploratoire

Shanelle Racine, Otto Sanchez, Manon Lemonde, Michael S. Taccone, Fiona Schulte

Abstract


Contexte : Environ 82 % des personnes atteintes d’un cancer pendant l’enfance survivent plus de 5 ans après le diagnostic. La survivance transforme leur quotidien et entraîne parfois des difficultés psycho­sociales. Les séquelles psychosociales – rarement étudiées – sont inter­reliées, surtout en ce qui concerne la réinsertion aux activités normales.

Objectif : Examiner les effets psychosociaux de la survie au cancer pédiatrique et la réinsertion sociale des jeunes adultes.

Méthodologie : Des entrevues individuelles semi-structurées détaillées ont été réalisées auprès de personnes ayant survécu à un cancer pédiatrique afin d’étudier les aspects psychologiques du retour au travail, à l’école et en société après la rémission. Après la transcription manuelle des entrevues, on a procédé à une analyse phénoménologique interprétative. Un groupe de discussion a été organisé pour permettre aux survivants de discuter des résultats de l’étude et de l’interprétation des données.

Résultats : Les entrevues individuelles et le groupe de discussion ont fait ressortir trois grands thèmes : le regard porté sur la réinsertion, le regard porté sur l’adaptation et le regard porté sur le cancer.

Conclusions : La présente recherche amorce une démarche visant à comprendre en quoi le regard que portent les survivants sur l’adaptation et les obstacles liés au système de santé influence la réintégration après le cancer. Les survivants ont exprimé le besoin d’obtenir des renseignements fiables sur la survivance au cancer et d’être mieux informés par leurs professionnels de la santé afin de se préparer à la vie après le cancer. Ces aspects devront faire l’objet d’autres études qualitatives détaillées.

Mots-clés :  cancer pédiatrique, survivance, réinsertion, transition, effet psychosocial, jeune adulte


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References


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