Using journey maps to understand patient-reported outcome measures in the cancer journey

Jae-Yung Kwon, Melissa Moynihan, Angela C. Wolff, Geraldine Irlbacher, Amanda L. Joseph, Lorraine Wilson, Hilary Horlock, Lillian Hung, Leah K. Lambert, Francis Lau, Richard Sawatzky

Abstract


Purpose: The purpose of this qualitative study is to demonstrate the use of patient-reported outcome measure-based journey maps in facilitating clinicians’ ability to communicate with patients about their well-being at each phase of their cancer journey.

Methods: Individual semi-structured online and phone interviews were conducted with older adults in British Columbia, Canada. Participants (n = 6) were asked to describe their cancer experiences associated with their well-being score using the Edmonton Symptom Assessment System revised questionnaire throughout their cancer journey (i.e., pre-diagnosis, diagnosis, treatment, to post-treatment).

Results: Six older adults who received cancer treatment were interviewed. Six journey maps were developed with evidence of fluctuation in participants’ level of well-being through their cancer journeys.

Conclusion: Journey maps can facilitate patient-clinician communication for tailoring interventions and draw clinicians’ attention to additional prompts to better understand patients’ well-being throughout the cancer journey.

Keywords: patient-reported outcome measures, journey maps, radiation therapy, cancer care, older adults

DOI:10.5737/23688076344443


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