2011 Helene Hudson Lectureship: Lived experiences of nurses as family caregivers in advanced cancer
Abstract
Research regarding experiences of nurses caring for family members with a cancer diagnosis is limited. To address this gap, a hermeneutic phenomenology approach was used to explore lived experiences of five nurses caring for family members living with advanced cancer. Their experiences were fraught with tensions and conflicts as they balanced the roles of nurse and caregiver. At the heart of their experiences was a sense of being caught in a web of conflicting expectations. Their struggles of expectations stemmed from anticipating the illness trajectory, expectations from family, expectations from other health professionals, and expectations from the nurse caregivers of themselves. Conflict between their professional and personal lives was most challenging. Implications of this care-giving situation are described.
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Andrews, J., Manthorpe, J., & Watson, R. (2005). Employment
transitions for older nurses: A qualitative study. Journal
of Advanced Nursing, 51(3), 298–306. doi:10.1111/
j.1365-2648.2005.03501.x
Björk, M., Wiebe, T., & Hallström, I. (2005). Striving to survive:
Families lived experiences when a child id diagnosed with cancer.
Journal of Pediatric Oncology Nursing, 22(5), 265–275. doi:10.117
/1043454205279303
Caron, D., & Bowers, B.J. (2003). Deciding whether to continue, share
or relinquish caregiving: Caregiving views. Qualitative Health
Research, 13(9), 1252–1271. doi:10.1177/1049732303257236
College of Registered Nurses of Nova Scotia (CRNNS). (2006).
Retirement and Retention of Late Career Nurses in Nova Scotia.
Halifax, Canada. Author.
Dumont, S., Turgeon, J., Allard, P., Gagnon, P., Charbonneau, C., &
Vezina, l. (2006). Caring for a loved one with advanced cancer:
Determinants of psychological distress in family caregivers. Journal
of Palliative Medicine, 9(4), 912–921. doi:10.1089/jpm.2006.9.912
Eldredge, D.H., Nail, L., Maziarz, R.T. Hansen, L.K., Ewing, D., &
Archbold, P.G. (2006). Explaining family caregiving role strain
following autologous blood and marrow transplantation. Journal of
Psychological Oncology, 24(3), 53–74. doi:10.1300/J077v24n03_03
Grande, G., Stajduhar, K., Aoun, S., Toye, C., Funk, L., Addington-Hall,
J., Payne, S., & Todd, C. (2009). Supporting lay carers in end of
life care: Current gaps and future priorities. Palliative Medicine,
, 339–344. doi:10.1177/0269216309104875
Kim, Y., Baker, F., Spillers, R.L., & Wellisch, D.K. (2006). Psychological
adjustment of cancer caregivers with multiple roles. Psychooncology,
, 795–806. doi:10.1002/pon.1013
Koerner, S.S., & Kenyon, D.B. (2007). Understanding “good days†and
“bad daysâ€: Emotional and physical reactivity among caregivers
for elder relatives. Family Relations, 56(1), 1–11. doi:10.1111/
j.1741-3729.2007.00435.x
Lefaiver, C.A., Keough, V., Letizia, M., & Lanuza, D.M. (2009). Quality
of life in caregivers providing care for lung transplant candidates.
Progress in Transplantation, 19(2), 142–52.
Lockwood, N.R. (2003). The reality of the impact of older workers
and eldercare in the workplace. HR Magazine, 48(12), 1–11.
Mills, J., & Aubeeluck, A. (2006). Nurses’ experiences of caring for
their own family members. British Journal of Nursing, 15(3), 160–
Nevidjon, B. (2004). Managing from the middle: Integrating midlife
challenges of children, elder parents, and career. Clinical
Journal of Oncology Nursing, 8(1), 72–75. doi:10.1188/04.
CJON.72-75
O’Brien-Pallas, L., Alksnis, C., & Wang, S. (2003). Bringing the Future
into focus: Projecting RN Retirement in Canada. Ottawa: Canadian
Institute for Health Information.
Osse, B.H., Vernooij-Dassen, M.J., Schade, E.., & Grol, R.P. (2006).
Problems experienced by informal caregivers of cancer
patients and their needs for support. Cancer Nursing, 29(5),
–388.
Perreault, A., Fothergill-Bourbonnais, F., & Fiset, V. (2004). The
experience of family members caring for a dying loved one.
International Journal of Palliative Nursing, 10(3), 133–143.
Schumacher, K.L., Beidler, S.M., Beeber, A.S., & Gambino, P. (2006). A
transactional model of cancer family caregiving skill. Advances
in Nursing Science, 29(3), 271–286.
Scott, L.D., Hwang, W.T., & Rogers, A.E. (2006). The impact of multiple
caregiving roles on fatigue, stress, and work performance among
hospital staff nurses. Journal of Nursing Administration, 36(2),
–95.
van Manen, M. (1997). Researching Lived Experience. London:
University of Western Ontario.
Villeneuve, M., & MacDonald, J. (2006). Towards 2020: Visions of
Nursing. Ottawa: Canadian Nurses Association.
Ward-Griffin, C. (2004). Nurses as caregivers of elderly relatives:
Negotiating personal and professional boundaries. Canadian
Journal of Nursing Research, 36(1), 92–114.
Williams, L.A. (2007). Whatever it takes: Informal caregiving
dynamics in blood and marrow transplantation. Oncology
Nursing Forum.,34(2), 379–387. doi:10.1188/07.ONF.379-387
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