Developing an educational resource for gynecological cancer survivors and their caregivers: A methods and experience paper

Jacqueline Galica, Amina Silva, Kathleen Robb


Building upon the need for greater education identified by gynecological cancer survivors and their caregivers, the objective of this paper is to describe our patient-clinician-researcher partnership to develop an evidence- and experiential-based educational resource. We engaged in five phases using multiple research methods: 1) assembling the essential expertise, 2) reviewing the literature, 3) drafting the resource, 4) testing the resource, and 5) disseminating the resource. Our diverse partnership provided expertise toward multiple research methods that produced results useful for each successive phase. This combination – a diverse partnership and multiple research methods - resulted in a useful resource to fulfill a gap identified by knowledge users. The combined features described in our paper fill a procedural gap for clinicians and researchers intending to develop educational resources that are empirically and experientially founded.

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Boden, C., Edmonds, A. M., Porter, T., Bath, B., Dunn, K., Gerrard, A., Goodridge, D., & Stobart, C. (2021). Patient partners’ perspectives of meaningful engagement in synthesis reviews: A patient‐oriented rapid review. Health Expectations, 24(4), 1056-1071.

Canadian Cancer Statistics Advisory in collaboration with the Canadian Cancer Society; Statistics Canada and the Public Health Agency of Canada. (2022). Canadian Cancer Statistics: A 2022 special report on cancer prevalence. Canadian Cancer Society,.

Canadian Partnership Against Cancer/Partenariat canadien contre le cancer. (2018). Living with Cancer: A Report on the Patient Experience. Canadian Partnership Against Cancer/Partenariat canadien contre le cancer.

Galica, J., Giroux, J., Francis, J.-A., & Maheu, C. (2020). Coping with fear of cancer recurrence among ovarian cancer survivors living in small urban and rural settings: A qualitative descriptive study. European Journal of Oncology Nursing, 44.

Galica, J., Saunders, S., Romkey-Sinasac, C., Silva, A., Ethier, J., Giroux, J., Jull, J., Maheu, C., Ross-White, A., Stark, D., & Robb, K. (2022). The needs of gynecological cancer survivors at the end of primary treatment: A scoping review and proposed model to guide clinical discussions. Patient Education and Counseling, 105(7), 1761-1782.

Hawkins, J., Madden, K., Fletcher, A., Midgley, L., Grant, A., Cox, G., Moore, L., Campbell, R., Murphy, S., Bonell, C., & White, J. (2017). Development of a framework for the co-production and prototyping of public health interventions. BMC Public Health, 17(1).

Kent, E. E., Rowland, J. H., Northouse, L., Litzelman, K., Chou, W.-Y. S., Shelburne, N., Timura, C., O'Mara, A., & Huss, K. (2016). Caring for caregivers and patients: Research and clinical priorities for informal cancer caregiving. Cancer, 122(13), 1987-1995.

Lebel, S., Tomei, C., Feldstain, A., Beattie, S., & McCallum, M. (2013). Does fear of cancer recurrence predict cancer survivors' health care use? Supportive Care in Cancer, 21(3), 901-906.

Liska, C. M., Morash, R., Paquet, L., & Stacey, D. (2018). Empowering cancer survivors to meet their physical and psychosocial needs: An implementation evaluation. Canadian Oncology Nursing Journal, 28(2), 76-81.

Lyon, A. R., & Koerner, K. (2016). User-Centered Design for Psychosocial Intervention Development and Implementation. Clinical Psychology, 23(2), 180-200.

Morris, Z. S., Wooding, S., & Grant, J. (2011). The answer is 17 years, what is the question: understanding time lags in translational research. Journal of the Royal Society of Medicine, 104(12), 510-520.

Munn, Z., Peters, M. D. J., Stern, C., Tufanaru, C., Mcarthur, A., & Aromataris, E. (2018). Systematic review or scoping review? Guidance for authors when choosing between a systematic or scoping review approach. BMC Medical Research Methodology, 18(1).

Nekhlyudov, L., Mollica, M. A., Jacobsen, P. B., Mayer, D. K., Shulman, L. N., & Geiger, A. M. (2019). Developing a Quality of Cancer Survivorship Care Framework: Implications for Clinical Care, Research, and Policy. JNCI: Journal of the National Cancer Institute, 111(11), 1120-1130.

O'Cathain, A., Croot, L., Duncan, E., Rousseau, N., Sworn, K., Turner, K. M., Yardley, L., & Hoddinott, P. (2019). Guidance on how to develop complex interventions to improve health and healthcare. BMJ Open, 9(8), e029954.

O’Cathain, A., Croot, L., Sworn, K., Duncan, E., Rousseau, N., Turner, K., Yardley, L., & Hoddinott, P. (2019). Taxonomy of approaches to developing interventions to improve health: a systematic methods overview. Pilot and Feasibility Studies, 5(1).

Vaismoradi, M., Turunen, H., & Bondas, T. (2013). Content analysis and thematic analysis: Implications for conducting a qualitative descriptive study. Nursing and Health Sciences, 15.

Yardley, L., Morrison, L., Bradbury, K., & Muller, I. (2015). The Person-Based Approach to Intervention Development: Application to Digital Health-Related Behavior Change Interventions. Journal of Medical Internet Research, 17(1), e30.

Yusoff, M. S. B. (2019). ABC of Content Validation and Content Validity Index Calculation. Education in Medicine Journal, 11(2), 49-54.


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