Comment améliorer les services communautaires et les soins de santé aux jeunes adultes atteints du cancer : suggestions présentées au cours d’un atelier multipartite

Karine Bilodeau, Benedicta Hartono, Virginia Lee, Nathalie Folch, Danielle Charpentier, Marie-France Vachon, Marie-Pascale Pomey, Serge Sultan, Billy Vinette, Ali El-Akhras

Abstract


Contexte et objectifs : Bien qu’il existe des soins de santé et des services communautaires aux survivants, ceux-ci sont sous-utilisés par les jeunes adultes atteints du cancer (c’est-à-dire âgés de 18 à 39 ans). Un atelier a été organisé à Montréal (Canada) visant à cerner les besoins des JAC signalés par cette population au cours de la transition post-thérapeutique et à examiner les services qui leur sont offerts actuellement.

Méthodologie : Dix-sept intervenants (n = 17) ont été recrutés, dont 7 jeunes adultes ayant eu le cancer (JAC), et nous leur avons demandé de prendre part à un atelier d’une journée visant à examiner les meilleures approches et pratiques qui permettraient de combler les besoins des JAC après le traitement. Toutes les discussions ont été transcrites, puis une analyse qualitative des thèmes a été effectuée.

Résultats : Deux grands constats ressortent : les différences et les similitudes entre les parties prenantes concernant les perceptions des besoins post-traitement ; et des suggestions pour répondre aux besoins des JAC, après le traitement.

Conclusions : Les résultats montrent l’importance de la collaboration entre les différents intervenants, y compris les JAC, lorsqu’il s’agit de concevoir des services destinés aux JAC. Les résultats comprennent des suggestions visant à améliorer la qualité des services offerts dans la collectivité et les établissements de soins de santé.

Mots clés : participation du patient, participation de la collectivité, survie, jeune adulte, cancer, services de soins de santé


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References


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