Improving community and healthcare services for young adults living with cancer: Suggestions from a multiple stakeholder workshop

Karine Bilodeau, Benedicta Hartono, Virginia Lee, Nathalie Folch, Danielle Charpentier, Marie-France Vachon, Marie-Pascale Pomey, Serge Sultan, Billy Vinette, Ali El-Akhras


Background and objectives: Despite the availability of healthcare and community services dedicated to cancer survivors, these remain underutilized by young adults living with cancer (YAC; aged 18-39). A workshop was organized in Montréal, Canada, to identify the needs of YAC during their post-treatment transition period and explore existing services dedicated to YAC.

Methods: We recruited seventeen stakeholders (N = 17), including seven YAC, to participate in a one-day workshop to consult about best approaches and practices to meet the needs of YAC, post-treatment. All discussions were transcribed, and a thematic qualitative analysis was performed.

Results: Two main findings were identified: differences and similarities among stakeholders about perceptions of post-treatment needs; and suggestions to meet YAC needs following treatment.

Conclusions: Results demonstrate the importance of collaboration among multiple stakeholders, including YAC, when designing services for YAC. Results include suggestions to improve services available through community or healthcare centres.

Keywords: patient engagement, community engagement, survivorship, young adult, cancer, healthcare services

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