Avoir sa santé en main : le sentiment d’habilitation tel que perçu par les jeunes adultes souffrant d’un cancer avancé

Rosalind Garland, Saima Ahmed, Carmen G. Loiselle

Abstract


Contexte : Le sentiment d'habilitation sur sa santé (health related empowerment) est un concept fondamental des soins centrés sur la personne. Toutefois, on en sait peu sur la manière dont ce concept s’articule chez les jeunes adultes ayant un diagnostic de cancer avancé. 

Objectif : Explorer le sentiment d’habilitation à la lumière des expériences de soins de santé vécues par les jeunes adultes en phase de cancer avancé. 

Cadre et participants : Douze jeunes adultes (âgés de 21 à 39 ans) ont été recrutés dans un grand centre de cancérologie de Montréal, au Québec. 

Méthodologie : Des entretiens en profondeur durant entre 36 et 90 minutes ont été menés individuellement, enregistrés et retranscrits mot pour mot, puis analysés par thèmes. 

Résultats : Tout au long de l’expérience du cancer, les participants ont témoigné du désir soutenu de participer activement à leur traitement et à leurs soins. Quatre thèmes sont ressortis des données décrivant les processus d’attente, de prise en charge de la maladie, de mise en action et de recadrage. Sous-jacents à ces thèmes se trouvent les notions de conscience du corps, les obstacles à surmonter pour obtenir des soins, l’optimisation de la santé et la réflexion sur l’héritage qu’on laisse derrière soi. 

Conclusions : De façon générale, les participants voulaient demeurer en contrôle de la situation malgré les multiples difficultés inhérentes à un cancer de stade avancé. Si elles sont corroborées par d’autres recherches, ces conclusions pourraient orienter les approches de soins en oncologie afin qu’elles soient véritablement adaptées aux besoins des jeunes adultes.

Mots clés : cancer avancé; cancer; habilitation; contrôle sur sa santé; oncologie; soutien par les pairs; jeunes adultes


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References


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