Les soins aux survivants du cancer : vers une grande qualité, en toute équité

Tracy L.O. Truant, Colleen Varcoe, Carolyn C. Gotay, Sally Thorne

Abstract


Les modèles de soins aux survivants du cancer évoluent rapidement, mais des disparités en matière de santé sont néanmoins de plus en plus évidentes entre les survivants de la maladie. Le Canada n’y échappe pas, et on observe que certains survivants privilégiés reçoivent des soins de plus grande qualité et conservent donc une meilleure santé que d’autres. La présente étude a pour but d’améliorer les soins aux survivants en aidant les cliniciens et les décideurs à mieux comprendre comment le vécu des survivants, les stratégies de gestion des soins et différents facteurs psychologiques et politiques peuvent influencer l’offre de soins aux survivants de grande qualité développés au Canada, ainsi que l’accès à ces soins. La présente étude descriptive et interprétative en trois étapes se fonde sur une approche infirmière épistémologique adoptant une perspective tant critique que multidimensionnelle. Nous avons procédé à une analyse textuelle critique de sources documentaires, de même qu’à une analyse secondaire de transcriptions d’entrevues provenant d’une base de données déjà existante; nous avons également mené des entrevues qualitatives auprès de 34 survivants et de 12 intervenants du système de santé. Nous avons ensuite extrait de ces données les facteurs individuels, collectifs et systémiques qui contribuent à creuser le fossé entre l’expérience de soins attendue et le vécu réel des survivants. En comprenant ce qui fait varier les soins aux survivants et les ressources qui leur sont allouées, nous espérons contribuer à éclaircir cette question complexe et encourager les cliniciens et les décideurs à adopter des approches à plusieurs niveaux pour assurer l’équité des soins de grande qualité.


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References


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