CANO-ACIO/ONS/ISNCC JOINT SYMPOSIUM AT THE CANO-ACIO CONFERENCE IN CALGARY ALBERTA: Global perspectives on cancer survivorship: From lost in transition to leading into the future

Tracy L. Truant, Margaret I. Fitch, Colleen O'Leary, Jan Stewart

Abstract


In the decade since the Institute of Medicine’s 2006 landmark report, entitled From cancer patient to cancer survivor: Lost in transition, cancer survivorship increasingly has become a distinct phase in the cancer journey. While much progress has been made toward creating a system of care that optimally addresses survivors’ needs, significant gaps remain. An international symposium to discuss and explore global challenges in cancer survivorship care was held at the Canadian Association of Nurses in Oncology (CANO/ACIO) conference in Calgary, Alberta, in October 2016. In this paper, we summarize presentations from that symposium, exploring cancer survivorship care from Canadian, American, and International perspectives, and describing challenges, issues and gaps. Strategies are also discussed for oncology nurses, individually and collectively, to provide future leadership in shaping survivorship care to be more person centered and equity oriented.


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References


Canadian Cancer Society (2016). Canadian Cancer Statistics. Toronto: author.

Hewitt, M. E., Greenfield, S., & Stovall, E. (2006). From cancer patient to cancer survivor: Lost in transition. Washington, D.C: National Academies Press, Institute of Medicine.

Ahmed, S. & Shahid, R.K. (2012). Disparity in cancer care: A Canadian perspective. Current Oncology, 19(6), e376.

Blinder, V.S. & Griggs, J.J. (2013). Health disparities and the cancer survivor. Seminars in Oncology, 40(6), 796–803. http://dx.doi.org.ezproxy.library.ubc.ca/10.1053/j.seminoncol.2013.09.003

Brooks, C.M. (2009). Aboriginal women’s visions of breast cancer survivorship: Intersections of race(ism)/Class/Gender and “...diversity as we define it”. ProQuest, UMI Dissertations Publishing.

Campbell, H.S., Sanson-Fisher, R., Turner, D., Hayward, L., Wang, X.S., & Taylor-Brown, J. (2011). Psychometric properties of cancer survivors’ unmet needs survey. Supportive Care in Cancer, 19(2), 221–230.

Canadian Association of Nurses in Oncology (2001). Standards of care, roles in oncology nursing and role competencies. Retrieved from http://c.ymcdn.com/sites/cano.malachite-mgmt.com/resource/resmgr/standards/Oncology_Nursing_Standards_o.pdf

Canadian Association of Nurses in Oncology (2006). Practice standards and competencies for the specialized oncology nurse. Retrieved from http://c.ymcdn.com/sites/cano.malachite-mgmt.com/resource/resmgr/standards/CONEP_Standards2006September.pdf

Canadian Partnership Against Cancer (n.d.). The Canadian Partnership Against Cancer. Accessed at http://www.partnershipagainstcancer.ca/

Canadian Partnership Against Cancer (2014). Examining Disparities in Cancer Control: A System Performance Special Focus Report. Toronto, ON: Author. Retrieved from www.cancerview.ca/systemperformancereport

Canadian Partnership Against Cancer, Cancer Journey Action Group (2008). Canadian invitational cancer survivorship workshop: Creating an agenda for cancer survivorship: Final report. Toronto, ON: Author. Retrieved from http://www.partnershipagainstcancer.ca/wp-content/uploads/2.4.0.2.6-CPAC_CJ_Survivorship_0308_Final_E.pdf

Casillas, J, & Ayanian, J. Z. (2011). Disparities in care for cancer survivors. In M. Feuerstein & P.A. Ganz (Eds.), Health Services for Cancer Survivors (pp.153–168). Bethesda, MD: Springer. doi:10.1007/978-1-4419-1348-7_7

Gould, J., Sinding, C., Mitchell, T.L., Gustafson, D.L., Peng, I., McGillicuddy, P., … Burhansstipanov, L. (2009). “Below their notice”: Exploring women’s subjective experiences of cancer system exclusion. Journal of Cancer Education, 24(4), 308–314. doi:10.1080/08858190902997324

Grunfeld, E. & Earle, C.C. (2010). The interface between primary and oncology specialty care: Treatment through survivorship. Journal of the National Cancer Institute Monographs, 40, 25–30.

Hewitt, M.E., Greenfield, S., & Stovall, E. (2006). From cancer patient to cancer survivor: Lost in transition. Washington, D.C: National Academies Press, Institute of Medicine.

Hodgkinson, K., Butow, P., Hobbs, K.M., & Wain, G. (2007). After cancer: The unmet supportive care needs of survivors and their partners. Journal of Psychosocial Oncology, 25(4), 89–104.

Howell, D., Hack, T.F., Oliver, T.K., Chulak, T., Mayo, S., Aubin, M., …Tompson, M. (2011). A Pan-Canadian Practice Guideline Pan-Canadian Guidance on Organization and Structure of Survivorship Services and Psychosocial-Supportive Care Best Practices for Adult Cancer Survivors. Toronto, Canada: Canadian Partnership Against Cancer (Cancer Journey Action Group) and the Canadian Association of Psychosocial Oncology. Accessed at http://www.capo.ca/pdf/ENGLISH_Survivorship_Guideline_Sept2011.pdf

Kazanjian, A., Doll, R., & Smillie, K. (2010). Fostering Cancer Survivorship Research in Canada—Proceedings from National Consortium. Vancouver, Canada: Canadian Partnership Against Cancer/British Columbia Cancer Agency. Accessed at http://med-fom-spph.sites.olt.ubc.ca/files/2013/11/Consortium_Proceedings.pdf

Maddison, A R., Asada, Y., & Urquhart, R. (2011). Inequity in access to cancer care: A review of the Canadian literature. Cancer Causes & Control, 22(3), 359–366.

Maheu, C., & Parkinson, M. (n.d.). Cancer and Work. Toronto, Canada: Canadian Partnership Against Cancer/The British Columbia Cancer Agency. Retrieved from https://www.cancerandwork.ca/

Palaty, C. (2008). The national forum on cancer care for all Canadians: Improving access and minimizing disparities for vulnerable populations in Canada. Forum proceedings. Vancouver, Canada: British Columbia Cancer Agency/Canadian Partnership Against Cancer. Accessed at http://www.partnershipagainstcancer.ca/wp-content/uploads/2.4.0.2.8.1-National_Forum_Proceedings_Part1_Final_E.pdf

Park, E.M. & Rosenstein, D.L. (2014). Living with advanced cancer: Unmet survivorship needs. North Carolina Medical Journal, 75(4), 279.

Skinner, D. (2012). The gendering of cancer survivorship. Health, Culture and Society, 3(1), 63–76.

Sofaer, S. (2009). Navigating poorly charted territory: Patient dilemmas in health care “non-systems”. Medical Care Research and Review, 66(1), 75S–93S.

Willems, R.A., Bolman, C.A. W., Mesters, I., Kanera, I. M., Beaulen, A.A.J.M., & Lechner, L. (2016). Cancer survivors in the first year after treatment: The prevalence and correlates of unmet needs in different domains. Psycho‐oncology, 25(1), 51–57. doi:10.1002/pon.3870

American Cancer Society (n.d.). Survivorship during and after treatment. Retrieved from http://www.cancer.org/treatment/survivorshipduringandaftertreatment/index

American Society of Clinical Oncology (n.d.). Survivorship resources. Retrieved from http://www.asco.org/

American Society of Clinical Oncology (2016). Survivorship. Retrieved from http://www.cancer.net/survivorship

Centers for Disease Control. (2016). Cancer Survivorship. Retrieved from https://www.cdc.gov/cancer/survivorship/

National Cancer Institute. (2016). Statistics. Retrieved from https://cancercontrol.cancer.gov/ocs/statistics/statistics.html

National Coalition for Cancer Survivorship (n.d.). Our Mission. Retrieved from https://www.canceradvocacy.org/about-us/our-mission/

National Comprehensive Cancer Network (2016). About NCCN. Retrieved from https://www.nccn.org/about/default.aspx

Oncology Nursing Society (n.d.). About ONS. Retrieved from https://ons.org/about

Smith, J.L., Pollack, L.A., Rodriguez, J.L., Hawkins, N.A., Smith, T., Rechis, R., … Stone-Wiggins, B. (2013). Assessment of the status of a National Action Plan for cancer survivorship in the U.S.A. Journal of Cancer Survivorship, 7(3), 425–438.

Galassi, A., Al-Ruzzieh, M.A., Ayala de Calvo, L.E, Bigirimana, J.B., Burg, A., Buswell, L., … Williams, M. (2012). Strengthening the Oncology Nursing Workforce in Low-and Middle-Income Countries to Address the Growing Cancer Burden. Vancouver, Canada: International Society for Nurses in Cancer Care. Retrieved from http://c.ymcdn.com/sites/www.isncc.org/resource/resmgr/publications/White_Paper_Final_Revisions_.pdf

International Society of Nurses in Cancer Care (2016). Nursing and the World Cancer Declaration. Vancouver, Canada: Author. Retrieved from http://c.ymcdn.com/sites/www.isncc.org/resource/resmgr/publications/Nursing_and_World_Cancer_Dec.pdf

International Society of Nurses in Cancer Care (2015). World No Tobacco Day 2015. Vancouver, Canada: Author. Retrieved from http://c.ymcdn.com/sites/www.isncc.org/resource/resmgr/Position_Statements/World_No_Tobacco_Day_Joint_S.pdf

Union for International Cancer Control (2014). Global access to pain relief initiative (GAPRI). Geneva, Switzerland: Author. Retrieved from http://www.uicc.org/sites/main/files/atoms/files/UICC_OnePager_GAPRI.pdf

Union for International Cancer Control (2013). World cancer declaration. Geneva, Switzerland: author. Retrieved from http://www.uicc.org/sites/main/files/private/131119_UICC_WorldCancerDeclaration_2013_1.pdf

World Health Organization/ World Palliative Care Alliance (2014). Global Atlas of Palliative Care at the End of Life. Geneva, Switzerland: Author. Retrieved from http://www.who.int/nmh/Global_Atlas_of_Palliative_Care.pdf?ua=1


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