S’engager auprès des patients qui veulent mourir : interprétation, présence et contrainte

David Kenneth Wright, Marina Chirchikova, Véronique Daniel, Vasiliki Bitzas, James Elmore, Marie-Laurence Fortin

Abstract


Les soins de fin de vie changent au Canada. À la lumière des récentes modifications législatives sur l’aide à mourir (euthanasie et suicide assisté), il y a lieu d’examiner le point de vue des infirmières sur les soins à donner aux patients qui veulent mourir. Cette étude descriptive et qualitative rapporte les résultats d’entrevues réalisées auprès de 11 infirmières en oncologie sur leur engagement auprès de patients qui veulent mourir. Les résultats offrent d’importants éléments sur la façon dont les infirmières en oncologie interprètent le désir de mort des patients et sur la présence thérapeutique qu’elles exercent auprès d’eux. De plus, ces résultats témoignent des forces contextuelles qui entravent l’engagement thérapeutique. Les entrevues ont été réalisées avant que les lois changent au Canada, mais offrent des perspectives pertinentes et plus que jamais applicables, car le nombre de patients qui songent et demandent à être assistés dans la mort ira en s’accroissant dans le nouveau paysage des soins prodigués à ce chapitre au pays.


Full Text:

PDF

References


Association des infirmières et infirmiers du Canada (AIIC/CNA). (2015). Sommaire à l’intention du Comité externe sur les options de réponse législative à Carter c. Canada (2015) établi par le gouvernement du Canada. Consulté sur https://www.cna-aiic.ca/~/media/cna/page-content/pdf-fr/aide-medicale-a-mourir_sommaire-a-lintention-du-comite-externe-sur-les-options-de-reponse-legislative-a-carter-c-canada.pdf?la=fr

Austin, W.J. (2011). The incommensurability of nursing as a practice and the customer service model: An evolutionary threat to the discipline. Nursing Philosophy, 12, 158–166.

Barnard, A., Hollingum, C. et Hartfiel, B. (2006). Going on a journey: Understanding palliative care nursing. International Journal of Palliative Care, 12(1), 6–12.

Beagan, B. et Ells, C. (2009). Values that matter, barriers that interfere: The struggle of Canadian nurses to enact their values. Canadian Journal of Nursing Research, 41(1), 86–107.

Bergum, V. (2004). Relational ethics in nursing. Dans J.L. Storch, P.A. Rodney et R.C. Starzomski (Éd.), Toward a moral horizon: Nursing ethics for leadership and practice. Toronto (Ont.) : Pearson Canada Inc. 485–503.

Bergum, V. (2013). Relational ethics for health care. Dans J.L. Storch, P.A. Rodney et R.C. Starzomski (Éd.), Toward a moral horizon: Nursing ethics for leadership and practice. Toronto (Ont.) : Pearson. 127–142.

Carter c. Canada (2015). Procureur général, 2015 CSC 5.

Cramer, C.F. (2002). To live until you die: Quality of life at the end of life. Clinical Journal of Oncology Nursing, 14(1), 53–56.

Cronqvist, A., Theorell, T., Burns, T. et Lutzen, K. (2004). Caring about – caring for: Moral obligations and work responsibilities in intensive care nursing. Nursing Ethics, 11(1), 63–76.

Davies, B. et Oberle, K. (1990). Dimensions of the supportive role of the nurse in palliative care. Oncology Nurses Forum, 17(1), 87–94.

De Bal, N., Dierckx de Casterle, B., De Beer, T. et Gastmans, C. (2006). Involvement of nurses in caring for patients requesting euthanasia in Flanders (Belgium): A qualitative study. International Journal of Nursing Studies, 43(5), 589–599.

De Beer, T., Gastmans, C. et Dierckx de Casterle, B. (2004). Involvement of nurses in euthanasia: A review of the literature. Journal of Medical Ethics, 30(5), 494–498.

Denier, Y., Dierckx de Casterle, B., De Bal, N. et Gastmans, C. (2009). Involvement of nurses in the euthanasia care process in Flanders (Belgium): An exploration of two perspectives. Journal of Palliative Care, 25(4), 264–274.

Denier, Y., Dierckx de Casterle, B., De Bal, N. et Gastmans, C. (2010). «It’s intense, you know.» Nurses’ experiences in caring for patients requesting euthanasia. Medicine Health Care and Philosophy, 13(1), 41–48.

Denier, Y., Gastmans, C., De Bal, N. et Dierckx de Casterle, B. (2010). Communication in nursing care for patients requesting euthanasia: A qualitative study. Journal of Clinical Nursing, 19(23–24), 3372–3380.

Dierckx de Casterle, B. (2015). Realising skilled companionship in nursing: A utopian idea or difficult challenge? Journal of Clinical Nursing, 24(21–22), 3327–3335.

Dierckx de Casterle, B., Denier, Y., De Bal, N. et Gastmans, C. (2010). Nursing care for patients requesting euthanasia in general hospitals in Flanders, Belgium. Journal of Advanced Nursing, 66(11), 2410–2420.

Dierckx de Casterle, B., Izumi, S., Godfrey, N.S. et Denhaerynck, K. (2008). Nurses’ responses to ethical dilemmas in nursing practice: Meta-analysis. Journal of Advanced Nursing, 63(6), 540–549.

Dierckx de Casterle, B., Verpoort, C., De Bal, N. et Gastmans, C. (2006). Nurses’ views on their involvement in euthanasia: A qualitative study in Flanders (Belgium). Journal of Medical Ethics, 32(4), 187–192.

Doane, G.H. et Varcoe, C. (2007). Relational practice and nursing obligations. Advances in Nursing Science, 30(3), 192–205.

(Anonyme). Nurses’ moral experience of assisted death: A meta-synthesis of qualitative research. Manuscrit en cours de révision pour Nursing Ethics.

Gallagher, A. (2012). Slow ethics for nursing practice. Nursing Ethics, 19(6), 711–713.

Gudat, H. (2015). From understanding to patient-centred management: Clinical pictures of a wish to die. Dans C. Rehmann-Sutter, H. Gudat et K. Ohnsorge (Éd.), The Patient’s Wish to Die: Research, Ethics, and Palliative Care. Oxford : Oxford University Press.

Harvath, T.A., Miller, L.L., Smith, K.A., Clark, L.D., Jackson, A. et Ganzini, L. (2006). Dilemmas encountered by hospice workers when patients wish to hasten death. Journal of Hospice and Palliative Nursing, 8(4), 200–209.

Houtepen, R. et Hendrikx, D. (2003). Nurses and the virtues of dealing with existential questions in palliative care. Nursing Ethics, 10(4), 377–387.

Hunt, M.R. et Carnevale, F.A. (2011). Moral experience: a framework for bioethics research. Journal of Medical Ethics, 37(11), 658–662.

Jacono, B., Cable-Williams, B., Foster, C., Mitchell, M.G., Lavoie, M., Richardson, H., ... Baxter, S. (2009). Principes et pratiques des soins infirmiers palliatifs et compétences en soins palliatifs à l’intention du personnel infirmier au Canada. Consulté sur http://casn.ca/wp-content/uploads/2014/12/MicrosoftWordCompetenciesDocumentFinalFR.pdf

Lincoln, Y. et Guba, E. (1985). Naturalistic Inquiry. Beverly Hills: Sage.

Mak, Y.Y.W. et Elwyn, G. (2005). Voices of the terminally ill: Uncovering the meaning of desire for euthanasia. Palliative Medicine, 19(4), 343–350.

Matzo, M.L. et Schwarz, J.K. (2001). In their own words: Oncology nurses respond to patient requests for assisted suicide and euthanasia. Applied Nursing Research, 14(2), 64–71.

Mok, E. et Chiu, P.C. (2004). Nurse-patient relationships in palliative care. Journal of Advanced Nuring, 48(5), 475–483.

Müller-Busch, H.C. (2015). Issues of palliative medicine in end-of-life care. Dans C. Rehmann-Sutter, H. Gudat et K. Ohnsorge (Éd.), The Patient’s Wish to Die: Research, Ethics, and Palliative Care. Oxford : Oxford University Press.

Nortvedt, P. (2001). Needs, closeness and responsibilities. An inquiry into some rival moral considerations in nursing care. Nursing Philosophy, 2(2), 112–121.

Norwood, F. (2007). Nothing more to do: euthanasia, general practice, and end-of-life discourse in the Netherlands. Medical Anthropology, 26(2), 139–174.

Ohnsorge, K., Gudat Keller, H.R., Widdershoven, G.A.M. et Rehmann-Sutter, C. (2012). ‘Ambivalence’ at the end of life: How to understand patients’ wishes ethically. Nursing Ethics, 19(5), 629–641.

Onwuteaka-Philipsen, B.D., Brinkman-Stoppelenburg, A., Penning, C., de Jong-Krul, G.J.F., van Delden, J.J.M. et van der Heide, A. (2012). Trends in end-of-life practices before and after the enactment of the euthanasia law in the Netherlands from 1990 to 2010: A repeated cross-sectional survey. Lancet, 380(9845), 908–915.

Oregon Public Health Division (2013). Oregon’s Death with Dignity Act — 2013. Consulté sur : http://public.health.oregon.gov/ProviderPartnerResources/EvaluationResearch/ DeathwithDignityAct/Documents/year16.pdf

Parlement du Canada. Projet de loi C-14 (2016). Consulté sur http://www.parl.gc.ca/HousePublications/Publication.aspx?DocId=8384014&Language=F

Assemblée nationale du Québec (2014). Projet de loi no 52 : Loi concernant les soins de fin de vie, 40e législature, 1re session. Consulté sur http://www.assnat.qc.ca/fr/travaux-parlementaires/projets-loi/projet-loi-52–40-1.html

Raus, K., Brown, J., Seale, C., Rietjens, J.A.C., Janssens, R., Bruinsma, S., ... Sterckx, S. (2014). Continuous sedation until death: the everyday moral reasoning of physicians, nurses and family caregivers in the UK, The Netherlands and Belgium. BioMed Central Medical Ethics, 15(1), 14–24.

Rietjens, J.A., van der Maas, P.J., Onwuteaka-Philipsen, B.D., van Delden, J.J. et van der Heide, A. (2009). Two decades of research on euthanasia from the Netherlands. What have we learnt and what questions remain. Journal of Bioethical Inquiry, 6(3), 271–283.

Roberts, D. et Snowball, J. (1999). Psychological care in oncology nursing: a study of social knowledge. Journal of Clinical Nursing, 8(1), 39–47.

Schwarz, J.K. (2003). Understanding and responding to patients’ requests for assistance in dying. Journal of Nursing Scholarship, 35(4), 377–384.

Schwarz, J.K. (2004). Responding to persistent requests for assistance in dying: A phenomenological inquiry. International Journal of Palliative Nursing, 10(5), 225–235.

Strang, S., Henoch, I., Danielson, E., Browall, M. et Melin-Johansson, C. (2014). Communication about existential issues with patients close to death – nurses’ reflections on content, process and meaning. Psychooncology, 23(5), 562–568.

Van de Scheur, A. et van der Arend, A. (1998). The Role of Nurses in Euthanasia: A Dutch study. Nursing Ethics, 5(6), 497–508.

Van der Mass, P.J., van Delden, J.J.M., Pignenborg, L. et Looman, C.W.N. (1991). Euthanasia and other medical decisions concerning the end of life. The Lancet, 338(8768), 669–673.

Volker, D.L. (2001). Oncology nurses’ experiences with requests for assisted dying from terminally ill patients with cancer. Oncology Nurses Forum, 28(1), 39–49.

Volker, D.L. (2003). Assisted dying and end-of-life symptom management. Cancer Nursing, 26(5), 392–399.

Woods, M. et Ascher, J.B. (2015). Nurses and the euthanasia debate: Reflections from New Zealand. International Nursing Review, 62(1), 13–20.

Wright, D. et Brajtman, S. (2011). Relational and embodied knowing: Nursing ethics within the interprofessional team. Nursing Ethics, 18(1), 20–30.

Wright, D, Brajtman, S. et Bitzas, V. (2009). Human relationships at the end of life: an ethical ontology for practice. Journal of Hospice and Palliative Nursing, 11(4), 219–227.

Wright, D.K. et Pugnaire Gros, C. (2012). Theory inspired practice for end-of-life cancer care: An exploration of the McGill Model of Nursing. Canadian Oncology Nursing Journal, 22(3), 175–181.


Refbacks

  • There are currently no refbacks.