Self-help groups: Oncology nurses’ perspectives

Margaret I. Fitch, Ross E. Gray, Marlene Greenberg, June Carroll, Pamela Chart, Vanessa Orr

Abstract


During the past decade in North America, the number of self-help groups for cancer patients has grown dramatically. Nurses’ knowledge and attitudes about self-help groups could influence their practice behaviours and the information they provide to cancer patients. However, little is known about oncology nurses’ views regarding self-help groups.

This study used a cross-sectional survey to gather information about knowledge, attitudes, and practice behaviours of Canadian oncology nurses regarding self-help groups. A total of 676 nurses completed the survey (response rate of 61.3%). The respondents had spent, on average, 21.6 years in nursing and 11.6 years in oncology nursing. Results indicated that a large majority of nurses knew about available self-help groups. Approximately one-fifth of the nurses are speaking frequently about self-help groups with patients (20.7%) and are initiating the conversation on a frequent basis (22.0%). Overall, oncology nurses rated self-help groups as helpful with regards to sharing common experiences (79.5%), sharing information (75.6%), bonding (74.0%), and feeling understood (72.0%). The most frequently identified concern regarding the groups was about misinformation being shared (37.9%), negative effects of associating with the very ill (22.1%), and promoting unconventional therapies (21.2%). Implications from the study suggest that oncology nurses would benefit from learning more about the nature of self-help groups and being able to talk with patients about the self-help experience.


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References


Bauman, L.J., Gervey, R., & Siegel, K. (1992). Factors associated

with cancer patients’ participation in support groups. Journal of

Psychosocial Oncology, 10(3), 1-20.

Borkman, T. (1990). Self-help groups at the turning point: Emerging

egalitarian alliances with the formal health care system?

American Journal of Community Psychology, 18, 321-332.

Bradburn, J., Maher, E.J., Young, J., & Young, T. (1992). Community

based cancer support groups: An undervalued resource? Clinical

Oncology, 4, 377-380.

Dillman, D., Carpenter, E.H., Christenson, J.A., & Brooks, R.M.

(1974). Increasing mail questionnaire response: A four state

comparison. American Sociological Review, 39, 744-56.

Falke, R.L., & Taylor, S.E. (1983). Support groups of cancer patients.

UCLA Cancer Centre Bulletin, 10, 13-15.

Fawzy, F.I., Fawzy, N.W., Hyun, C.S., Elashoff, R., Guthrie, D.,

Fahey, J.L., & Morton, D.L. (1993). Effects of an early structured

psychiatric intervention, coping, and affective state on recurrence

and survival 6 years later. Archives of General Psychiatry, 50,

-689.

Gordon, W.A., Freidenbergs, I., Diller, I., Hibbard, M., Wolf, C.,

Levine, L., Lipkins, R., Ezrachi, O., & Lucido, D. (1980). Efficacy

of psychosocial intervention with cancer patients. Journal of

Consulting Clinical Psychologists, 48, 743-59.

Gray, R.E., Doan, B.D., & Church, K. (1991). Empowerment issues

in cancer. Health Values, 15, 22-28.

Gray, R.E., Fitch, M.I., Davis, C., & Phillips, C. (1997a). Interviews

with men with prostate cancer about their self-help group

experience. Journal of Palliative Care, 13, 15-21.

Gray, R.E., Fitch, M.I., Davis, C., & Phillips, C. (1997b). A

qualitative study of breast cancer self-help groups. Psychosocial

Oncology, 6, 279-289.

Gray, R.E., Greenberg, M., McBurney, T., & Douglas, M.S. (1997).

Partnerships between self-help networks and health care facilities:

The case of the Bayview Support Network. Health Management

Forum, 10, 55-56.

Gray, R.E., Orr, V., Carroll, J., Chart, P., Fitch, M.I., & Greenberg, M.

(1998). Self-help groups: Family physicians’ attitudes, awareness

and practices. Canadian Family Physician, 44, 2137-2142.

Guidry, J.J., Aday, L.A., Zhang, D., & Winn, R.J. (1997). The role of

informal and formal social support networks for patients with

cancer. Cancer Practice, 5(4), 241-46.

Helgeson, V.S., Cohen, S., Schultz, R., & Yasko, J. (1999). Education

and peer discussion group interventions and adjustment to breast

cancer. Archives of General Psychiatry, 56, 340-47.

Hitch, P.J., Fielding, R.G., & Llewelyn, S.P. (1994). Effectiveness of

self-help and support groups for cancer patients: A review.

Psychology and Health, 9, 437-448.

Hyndman, B. (1997). Does self-help help? A review of the literature

on the effectiveness of self-help programs. Toronto:

ParticipACTION.

Kurtz, L.F. (1990). The self-help movement: Review of the past

decade of research. Social Work with Groups, 13(3), 101-115.

Lavoie, F., Borkman, T., & Gidron, B. (Eds.) (1994). Self-help and

mutual aid groups: International and multicultural

perspectives (pp. 333-339). New York: Haworth Press.

Maisaik, R., Caine, M., Yarbro, C., & Josef, L. (1981). Evaluation of

TOUCH: An oncology self-help group. Oncology Nursing

Forum, 8, 20-25.

Phillips, C., Gray, R.E., Davis, C., & Fitch, M. (1996). What breast

cancer self-help groups want you to know. Canadian Family

Physician, 42, 1447-1449.

Pilisuk, M., Wentzel, P., Barry, O., & Tennant J. (1997). Participant

assessment of a non-medical breast cancer support group.

Alternative Therapies, 3(5), 72-80.

Spiegel, D., Bloom, J., Kraemer, H.C., & Gottheil, E. (1989). Effects

of psychosocial treatment and survival of patients with metastatic

breast cancer. Lancet, 2, 888-891.

Stevenson, B.S., & Coles, P.M. (1993). A breast cancer support group:

Activities and value to mastectomy patients. Journal of Cancer

Education, 8(3), 239-242.

Stewart, M.J. (1989). Nurses’ preparedness for health promotion

through linkage with mutual-aid and self-help groups. Canadian

Journal of Public Health, 80, 110-114.

Stewart, M.J. (1990). Professional interface with mutual-aid self-help

groups: A review. Social Science Medicine, 31, 1143-1158.

van den Borne, H.W., Pruyn, J.F., & van Dam-de Mey, K. (1986).

Self-help in cancer patients: A review of studies on the effects of

contacts between fellow patients. Patient Education

Counselling, 8, 367-385.

Wilson, J. (1993). Vital yet problematic - self-help groups and

professionals: A review of the literature in the last decade. Health

& Social Care in the Community, 1(4), 211-218.


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