Living with ovarian cancer: Women’s perspectives on treatment and treatment decision-making
Abstract
In the year 2002, 2,500 women will have been diagnosed with ovarian cancer. Treatment for ovarian cancer is arduous, involving invasive surgery, chemotherapy, and/or radiation therapy. Studies have described the side effects of ovarian cancer treatment, but little has been written about women’s perspectives on receiving that treatment.
This work was undertaken to describe women’s perceptions of living with ovarian cancer and their experiences with treatment. Eighteen women who had been diagnosed with ovarian cancer were interviewed in depth and theme analysis was undertaken with their transcripts. Three prominent themes emerged during the analysis: 1) initial treatment plans were overwhelming, 2) involvement in treatment decision-making was minimal, and 3) treatment had many side effects and complications.
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Averill, J.F. (1973). Personal control over aversive stimuli and its
relationship to stress. Psychological Bulletin, 80, 286-303.
Balat, O., Kudelka, A.P., Tunca, J.C., Edwards, C.L., Verschraegen, C.,
& Kavanaugh, J.J. (1996). Prolonged stabilization of progressive
platinum-refractory ovarian cancer with paclitaxil: Brief report.
European Journal of Gynaecological Oncology, 18(4), 264-266.
Blanchard, C.G., LaBrecque, M.S., Ruckdeschel, J.C., & Blanchard,
E.B. (1988). Information and decision-making preferences of
hospitalized adult cancer patients. Social Science and Medicine,
, 1139-1145.
Brandt, B. (1991). Information needs and selected variables in
patients receiving brachytherapy. Oncology Nursing Forum, 18,
-1227.
Cassileth, B.R., Zupkis, R.V., Sutton-Smith, K., & March, V. (1980).
Information and participation preferences among cancer patients.
Annals of Internal Medicine, 92, 832-836.
Cohen, F., & Lazarus, R.S. (1979). Coping with stress of illness. In
G.C. Stone, F. Cohen, & N.E. Adler (Eds.), Health psychology
(pp. 217-224). San Francisco: Jossey-Bass.
Davison, B.J., Degner, L.F., & Morgan, T.R. (1995). Information and
decision-making preferences of men with prostate cancer.
Oncology Nursing Forum, 22(9), 1401-8.
Degner, L.F., & Aquino-Russell, C. (1988). Treatment for treatment
control among adults with cancer. Research in Nursing &
Health, 11, 367-374.
Degner, L.F., & Beaton, J.I. (1987). Life-death decisions in health
care. New York: Hemisphere Publishing.
Degner, L.F., Kristjanson, L.J., Bowman, D., Sloan, J.A., Curriere,
K.C., O’Neil, J., et al. (1997). Information needs and decisional
preferences in women with breast cancer. Journal of the
American Medical Association, 227(18), 1485-92.
Degner, L.F., & Sloane, J.A. (1992). Decision-making during serious
illness: What role do patients really want to play? Journal of
Clinical Epidemiology, 45, 941-950.
Dennis, K.E. (1987). Dimensions of client control. Nursing
Research, 36, 151-6.
Derdiarian, A. (1987). Informational needs of recently diagnosed
cancer patients. Part II: Method and description. Cancer Nursing,
(2), 156-63.
Dollinger, M., Rosenbaum, E.H., & Cable, G. (Eds.). (1997).
Everyone’s guide to cancer therapy. Kansas City, MO: Andrews
McMeel Publishing.
Hack, T.F., Degner, L.F., & Dyck, D. (1994). Relationship between
preferences for decisional control and illness information among
women with breast cancer: A quantitative and qualitative analysis.
Social Science and Medicine 39, 279-289.
Howell, D., Fitch, M.I., Deane, K., & Gray, R. (2002). Women’s
experiences with recurrent ovarian cancer. Manuscript in
preparation.
Kornblith, A.B., Thaler, H.T., Wong, G., Vlamis, V., Lepore, J.M., &
Loseth, D.B. (1995). Quality of life of women with ovarian cancer.
Cancer, 19(2), 231-42.
Miller, D. (1999, May). Treating ovarian cancer. Paper presentation
at the National Forum on Ovarian Cancer, Toronto, ON.
Moore, D.H. (1994). Ovarian cancer in the elderly patient. Oncology,
(12), 21-38.
National Cancer Institute of Canada [NCIC]. (2002). Canadian
cancer statistics 2002. Toronto, ON: Author.
Portenoy, R.K., Kornblith, A.B., Wong, G., Vlamis, Y., Lepore, J.M.,
Loseth, D.B., et al. (1994). Pain in ovarian cancer: Prevalence,
characteristics and associated symptoms. Cancer, 74(3), 907-15.
Schaefer, K.M., Ladd, E.C., Lammers, S.E., & Echenberg, R.J.
(1999). In your skin you are different: Women living with ovarian
cancer during childbearing years. Qualitative Health Research
(2), 227-242.
Sutherland, H.J., Llewellyn-Thomas, H.A., Lockwood, G.A.,
Trichler, D.L., & Till, J.E. (1989). Cancer patients: Their desire for
information and participation in treatment decisions. Journal of
the Royal Society of Medicine 82, 260-263.
Thompson, S.D., Szukiewicz-Nugent, J.M., & Walczak, J.R. (1996).
When ovarian cancer strikes. Nursing 96, October, 33-38.
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