Living with ovarian cancer: Women’s perspectives on treatment and treatment decision-making

Margaret I. Fitch, Karen Deane, Doris Howell

Abstract


In the year 2002, 2,500 women will have been diagnosed with ovarian cancer. Treatment for ovarian cancer is arduous, involving invasive surgery, chemotherapy, and/or radiation therapy. Studies have described the side effects of ovarian cancer treatment, but little has been written about women’s perspectives on receiving that treatment.

This work was undertaken to describe women’s perceptions of living with ovarian cancer and their experiences with treatment. Eighteen women who had been diagnosed with ovarian cancer were interviewed in depth and theme analysis was undertaken with their transcripts. Three prominent themes emerged during the analysis: 1) initial treatment plans were overwhelming, 2) involvement in treatment decision-making was minimal, and 3) treatment had many side effects and complications.


Full Text:

PDF

References


Averill, J.F. (1973). Personal control over aversive stimuli and its

relationship to stress. Psychological Bulletin, 80, 286-303.

Balat, O., Kudelka, A.P., Tunca, J.C., Edwards, C.L., Verschraegen, C.,

& Kavanaugh, J.J. (1996). Prolonged stabilization of progressive

platinum-refractory ovarian cancer with paclitaxil: Brief report.

European Journal of Gynaecological Oncology, 18(4), 264-266.

Blanchard, C.G., LaBrecque, M.S., Ruckdeschel, J.C., & Blanchard,

E.B. (1988). Information and decision-making preferences of

hospitalized adult cancer patients. Social Science and Medicine,

, 1139-1145.

Brandt, B. (1991). Information needs and selected variables in

patients receiving brachytherapy. Oncology Nursing Forum, 18,

-1227.

Cassileth, B.R., Zupkis, R.V., Sutton-Smith, K., & March, V. (1980).

Information and participation preferences among cancer patients.

Annals of Internal Medicine, 92, 832-836.

Cohen, F., & Lazarus, R.S. (1979). Coping with stress of illness. In

G.C. Stone, F. Cohen, & N.E. Adler (Eds.), Health psychology

(pp. 217-224). San Francisco: Jossey-Bass.

Davison, B.J., Degner, L.F., & Morgan, T.R. (1995). Information and

decision-making preferences of men with prostate cancer.

Oncology Nursing Forum, 22(9), 1401-8.

Degner, L.F., & Aquino-Russell, C. (1988). Treatment for treatment

control among adults with cancer. Research in Nursing &

Health, 11, 367-374.

Degner, L.F., & Beaton, J.I. (1987). Life-death decisions in health

care. New York: Hemisphere Publishing.

Degner, L.F., Kristjanson, L.J., Bowman, D., Sloan, J.A., Curriere,

K.C., O’Neil, J., et al. (1997). Information needs and decisional

preferences in women with breast cancer. Journal of the

American Medical Association, 227(18), 1485-92.

Degner, L.F., & Sloane, J.A. (1992). Decision-making during serious

illness: What role do patients really want to play? Journal of

Clinical Epidemiology, 45, 941-950.

Dennis, K.E. (1987). Dimensions of client control. Nursing

Research, 36, 151-6.

Derdiarian, A. (1987). Informational needs of recently diagnosed

cancer patients. Part II: Method and description. Cancer Nursing,

(2), 156-63.

Dollinger, M., Rosenbaum, E.H., & Cable, G. (Eds.). (1997).

Everyone’s guide to cancer therapy. Kansas City, MO: Andrews

McMeel Publishing.

Hack, T.F., Degner, L.F., & Dyck, D. (1994). Relationship between

preferences for decisional control and illness information among

women with breast cancer: A quantitative and qualitative analysis.

Social Science and Medicine 39, 279-289.

Howell, D., Fitch, M.I., Deane, K., & Gray, R. (2002). Women’s

experiences with recurrent ovarian cancer. Manuscript in

preparation.

Kornblith, A.B., Thaler, H.T., Wong, G., Vlamis, V., Lepore, J.M., &

Loseth, D.B. (1995). Quality of life of women with ovarian cancer.

Cancer, 19(2), 231-42.

Miller, D. (1999, May). Treating ovarian cancer. Paper presentation

at the National Forum on Ovarian Cancer, Toronto, ON.

Moore, D.H. (1994). Ovarian cancer in the elderly patient. Oncology,

(12), 21-38.

National Cancer Institute of Canada [NCIC]. (2002). Canadian

cancer statistics 2002. Toronto, ON: Author.

Portenoy, R.K., Kornblith, A.B., Wong, G., Vlamis, Y., Lepore, J.M.,

Loseth, D.B., et al. (1994). Pain in ovarian cancer: Prevalence,

characteristics and associated symptoms. Cancer, 74(3), 907-15.

Schaefer, K.M., Ladd, E.C., Lammers, S.E., & Echenberg, R.J.

(1999). In your skin you are different: Women living with ovarian

cancer during childbearing years. Qualitative Health Research

(2), 227-242.

Sutherland, H.J., Llewellyn-Thomas, H.A., Lockwood, G.A.,

Trichler, D.L., & Till, J.E. (1989). Cancer patients: Their desire for

information and participation in treatment decisions. Journal of

the Royal Society of Medicine 82, 260-263.

Thompson, S.D., Szukiewicz-Nugent, J.M., & Walczak, J.R. (1996).

When ovarian cancer strikes. Nursing 96, October, 33-38.


Refbacks

  • There are currently no refbacks.