Email this article 
Passer à l’action : une exploration des actions des infirmières et infirmiers en oncologie exemplaires dans les situations où un sentiment d’impuissance et de futilité est éprouvé par le personnel infirmier dans le cadre du diagnostic, du traitement et de
Abstract
« Il n’y a plus rien à faire » est une phrase qui peut de temps à autre venir à l’esprit des infirmières et infirmiers en oncologie. Le présent article examine les actions d’infirmières et infirmiers en oncologie exemplaires qui ont fait face à de telles situations alors que leurs collègues abandonnaient la partie ou s’en détournaient. La question de recherche « Quelles actions les infirmières et infirmiers en oncologie clinique exemplaires entreprennent-ils dans des situations de soins aux patients où de nouvelles interventions infirmières semblent futiles? » orientait la collecte de données par l’intermédiaire d’un site Web sécurisé où 14 infirmières en oncologie clinique du Canada ont documenté leurs actions au moyen de récits. L’analyse thématique faisait appel au logiciel QRS NVivo 10 et au codage manuel. Quatre thèmes se sont dégagés de l’analyse des données : défense des droits et intérêts, ne pas abandonner, présence authentique et enfin, courage moral. Les implications pour la pratique et la recherche future sont présentées.
« Il n’y a plus rien à faire. » En plus d’apprendre qu’ils ont le cancer, entendre (ou sentir qu’ « il n’y a plus rien à faire » dans leur cas est peut-être la plus dévastatrice des expériences pour les patients (Doell, 2008). Perry (2006) signale que les infirmières et infirmiers en oncologie exemplaires cherchent toujours à faire quelque chose de plus pour les patients lorsque les interventions infirmières habituelles se sont avérées inefficaces ou lorsque les autres intervenants s’abstiennent d’agir. Il faudra effectuer davantage de recherche afin de mieux comprendre les interventions infirmières particulières qui pourraient aider l’ensemble des infirmières et infirmiers en oncologie à agir dans ces cas-là (2006). Le but de cette étude de recherche est de décrire les actions d’infirmières en oncologie clinique exemplaires qui ont posé des gestes alors que leurs collègues abandonnaient la partie ou s’en détournaient.
Full Text:
PDFReferences
Attia, A.K., Abd-Elazis, W.W., & Kanded, N.A. (2013). Critical care nurses’ perception of barriers and supportive behaviors in end-of-life care. American Journal of Hospice Palliative Medicine, 30(3), 297–304.
Baille, L. (2007). The impact of staff behaviour on patient dignity in hospitals. Nursing Times, 103(34), 30–31. Retrieved from http://www.nursingtimes.net/home/
Beckstrand, R.L., Callister, L.C., & Kirchhoff, K.T. (2006). Providing a ‘good death’: Critical care nurses’ suggestions for improving end-of-life care. American Journal of Critical Care, 15(1), 38–45.
Beng, T.S., Guan, N.C., Seang, L.K., Pathmawathi, S., Ming, M., Jane, L.E., … Loong, L.C. (2013). The experiences of suffering of palliative care informal caregivers in Malaysia: A thematic analysis. American Journal of Hospice & Palliative Medicine, 30(5), 473–489.
Benner, P., & Wrubel, J. (1989). The primacy of caring: Stress and coping in nursing. London: Chapman/Hall.
Birnbaum, M.H. (2004). Human research and data collection via the Internet. Annual Review of Psychology, 55, 803–832. Retrieved from http://www.uvm.edu/~pdodds/teaching/courses/2009-08UVM-300/docs/others/2004/ birnbaum2004a.pdf
Boyle, D.A. (2000). Pathos in practice: Exploring the affective domain of oncology nursing. Oncology Nursing Forum, 27(6), 915–919.
Burston, A.S., & Tuckett, A.G. (2013). Moral distress in nursing: Contributing factors, outcomes and interventions. Nursing Ethics, 20(3), 312–324.
Cohen, M.Z., Ferrell, B.R., Vrabel, M., Visovsky, C., & Schaefer, B. (2010). What does it mean to be an oncology nurse? Re-examining the life cycle concepts. Oncology Nursing Forum, 37(5), 561–570.
Cresswell, J.W. (2012). Qualitative inquiry and research: Choosing among five approaches. Los Angeles, CA: Sage.
De Carvalho, E.C., Muller, M., de Carvalho, P.B., & de Souza Melo, A. (2005). Stress in the professional practice of oncology nurses. Cancer Nursing, 28(3), 187–192.
De Araujo Sartorio, N., & Zoboli, E.L. (2010). Images of a ‘good nurse’ presented by teaching staff. Nursing Ethics, 17(6), 687–694.
Dias, L. & Chabner, B.A., Lynch, T.J., & Penson, R.T. (2003). Breaking bad news: The patient’s perspective. The Oncologist, 8(6), 587–596.
Doell, H.J. (2008). Three little words no one wants to hear. Clinical Journal of Oncology Nursing, 12(4), 551–554.
Duff, P.A., & Bell, J.S. (2002). Narrative research in TESOL: Narrative inquiry: More than just telling stories. TESOL Quarterly, 36(2), 207–213. Retrieved from http://www.finchpark.com/courses/grad-dissert/articles/research/Narrative-Inquiry.pdf
Ferrell, B.R. (2006). Understanding moral distress of nurses witnessing medically futile care. Oncology Nursing Forum, 33(5), 922–930.
Fricker, R., & Schonlau, M. (2002). Advantages and disadvantages of Internet research surveys: Evidence from the literature. Field Methods, 14, 347–367. Retrieved from http://www.schonlau.net/publication/02fieldmethods.pdf
Goodrich, J., & Cornwell, J. (2008). Seeing the person in the patient. London: The King’s Fund.
Graber, G.R. (2004). Compassionate clinicians take care beyond the ordinary. Holistic Nursing Practice, 18(2), 87–94.
Griffiths, R. (2013). When does life sustaining treatment become futile? British Journal of Nursing, 22(10), 590–591.
Haylock, P.J. (2008). Giving voice to the vulnerable: Advocacy and oncology nursing. Doctoral Dissertation. Retrieved from http://etd.utmb.edu/theses/available/etd-12022008-171344/unrestricted/DissertationHaylock.pdf
Kadooka, Y., Asai, A., & Fukuyama, M. (2012). A comparative study on potentially futile treatments between Japanese nurses and laypeople. Nursing Ethics, 21(1), 64–75.
Kendall, S.F. (1999). Identifying outstanding clinical nurses: The ‘star’ shines on oncology. Nursing & Health Sciences, 1(2), 113–123.
Kerfoot, K.L. (2012). Courage, leadership, and end-of-life care: When courage counts. Nursing Economic$, 30(3), 176–178.
Kisvertrová, H., Klugar, & M., Kabelka, L. (2013). Spiritual Support interventions in nursing care for patients suffering death anxiety in the final phase of life. International Journal of Palliative Nursing, 19(12), 599–605.
Kooken, W.C. (2008). Vigilant experiences: Cancer patients, families and nurses. Unpublished doctoral dissertation, Indiana University School of Nursing, Indianapolis, IN.
Macnee C., & McCabe, S. (2008). Understanding nursing research: Reading and using research in evidence-based practice (2nd ed.). New York, NY: Lippincott, Williams & Wilkins.
McLennon, S.M., Uhrich, M., Lasiter, S., Chamness, A.R., & Helft, P.R. (2013). Oncology nurses narratives about ethical dilemmas and prognosis-related communication in advanced cancer patients. Cancer Nursing, 36(2), 114–121.
Miller, J.F. (2006). Opportunities and obstacles for good work in nursing. Nursing Ethics, 13(5), 471–487.
Olthuis, G. Dekkers, W., Leget, C., & Vogelaar, P. (2006). The caring relationship in hospice care: An analysis based on the ethics of the caring conversation. Nursing Ethics, 13(1), 29–40. Retrieved from http://nej.sagepub.com/
Olthuis, G., Leget, C., & Dekkers, W. (2007). Why hospice nurses need high self esteem. Nursing Ethics, 14(1), 62–71.
Online Etymology Dictionary (2014a). Taking action. Retrieved from http://www.etymonline.com/index.php?allowed_in_frame=0
&search=take+action&searchmode=none
Online Etymology Dictionary (2014b). Take. Retrieved from http://www.etymonline.com/index.php?allowed_in_frame=0
&search=take&searchmode=none
Online Etymology Dictionary (2014c). Action. Retrieved from http://www.etymonline.com/index.php?allowed_in_frame=0
&search=action&searchmode=none
Online Etymology Dictionary (2014d). Taking. Retrieved from http://www.etymonline.com/index.php?allowed_in_frame=0
&search=taking&searchmode=none
Online Etymology Dictionary (2014e). Courage. Retrieved from http://www.etymonline.com/index.php?allowed_in_frame=0
&search=courage&searchmode=none
Osterman, P.L.C., Schwartz-Barcott, D., & Asselin, M.E. (2010). An exploratory study of nurses’ presence in daily care on an oncology unit. Nursing Forum, 45(3), 197–205.
Oudshoorn, A., Ward-Griffin, C., & McWilliam, C. (2007). Client-nurse relationships in home based palliative care: A critical analysis of power relations. Journal of Clinical Nursing, 16(8), 1435–1443.
Owen, W.F. (1984). Interpretative themes in relational communication. Quarterly Journal of Speech, 70(3), 274–287.
Papastavrou, E., Efstathiou, G., Tsangari, H., Suhoen, R., Leino-Kilpi, H. … Merkouris, A. (2012). Patients’ and nurses’ perceptions of respect through human caring behaviors: A comparative study. Nursing Ethics, 19(3), 369–379.
Pavlish, C., & Ceronsky, L. (2009). Oncology nurses’ perceptions of nursing roles and professional attributes in palliative care. Clinical Journal of Oncology Nursing, 13(4), 404–412.
Pavlish, C., Brown-Saltzman, K., Hersh, M., Shirk, M., & Rounkie, A. (2011). Nursing priorities, actions and regrets for ethical situations in clinical practice. Journal of Nursing Scholarship, 43(4), 385–395.
Pavlish, C., Brown-Saltzman, K., Jakel, P., & Rounkie, A. (2012). Nurses’ responses to ethical challenges in oncology practice: An ethnographic study. Clinical Journal of Oncology Nursing, 16(6), 592–600.
Perry, B. (2005a). Exemplary care of the palliative patient. Dynamics: The Official Journal of Canadian Association of Critical Care Nurses, 16(3), 16–21.
Perry, B. (2005b). The power of the simplest gesture: Prayer, music, touch and silence can all be therapeutic in caring for the seriously ill. Health Progress, 86(5), 50–53.
Perry, B. (2006). L’âme touchée par une infirmière : l’empreinte des soins infirmiers en oncologie exemplaires. Revue canadienne de soins infirmiers en oncologie, 16(1), 41–45.
Perry, B. (2008). Shine on: Achieving career satisfaction as a registered nurse. Journal of Continuing Education in Nursing, 39(1), 17–25.
Perry, B. (2009). More moments in time: Images of exemplary nursing. Edmonton, AB: AU Press.
Perry, B., Toffner, G., Merrick, T., & Dalton, J. (2010). Exploration du vécu de l’usure de compassion chez les infirmières œuvrant en oncologie clinique. Revue canadienne de soins infirmiers en oncologie, 21(2), 98–105.
QRS International (2013). NVivo10. Retrieved from http://www.qsrinternational.com/products.aspx
Slocum-Gori, S., Hemsworth, D., Chan, W.W.Y., Carson, A., & Kazanjian, A. (2013). Understanding compassion satisfaction, compassion fatigue and burnout: A survey of the hospice palliative care workforce. Palliative Medicine, 27(2), 172–178.
Vaartio-Rajalin, H., & Leino-Kilpi, H. (2011). Nurses as patient advocates in oncology care: Activities based on Literature. Clinical Journal of Oncology Nursing, 15(5), 526–532.
Varcoe, C., Pauly, B., Storch, J., Newton, L., & Makaroff, K. (2012). Nurses’ perceptions of and responses to morally distressing situations. Nursing Ethics, 19(4), 488–500.
Refbacks
- There are currently no refbacks.
