Comprendre le rôle du soutien informationnel sur le cancer dans l’utilisation des services de santé chez les personnes nouvellement diagnostiquées

Sylvie Dubois, Carmen G. Loiselle

Abstract


Cette étude qualitative a été réalisée dans le but d’explorer le rôle du soutien informationnel dans l’utilisation des services de santé par des individus diagnostiqués d’un cancer. Des entrevues individuelles en profondeur ont été faites avec des participants (N=20) nouvellement diagnostiqués avec un cancer du sein ou avec un cancer de la prostate et recevant des traitements de radiothérapie en clinique d’oncologie à Montréal, Québec. Une analyse de contenu révèle que l’expérience vécue par les participants varie selon les dimensions suivantes : (1) le soutien informationnel tangible, lequel facilite, confirme, normalise et oriente les décisions des participants dans l’utilisation des services de santé; (2) le soutien informationnel paralysant, lequel amène de la détresse psychologique, de l’opposition, de la méfiance et de la confusion dans l’utilisation des services; et (3) le soutien informationnel mixte lié aux perceptions d’avoir reçu à la fois de l’information aidante et non aidante (et tolérée) qui optimise peu l’utilisation des services. Les connaissances sur le comment et le moment où le soutien informationnel est le plus pertinent peuvent optimiser le bien-être et l’utilisation mieux informée des services en oncologie.


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