Besoins en soins de soutien des personnes atteintes de cancer du poumon

Margaret I. Fitch, Rose Steele

Abstract


Le but principal de la présente étude était de déterminer la gamme des besoins en soins de soutien des patients diagnostiqués d’un cancer du poumon et fréquentant, en ambulatoire, un centre régional de cancérologie. Le cancer du poumon n’a pas seulement un impact physique sur les personnes qu’il frappe, cependant, relativement peu de recherches ont été effectuées sur leurs besoins, mis à part les besoins liés à la gestion des symptômes physiques.

Un total de 86 patients a participé à cette étude en remplissant un questionnaire d’auto-évaluation. Les données indiquaient clairement qu’il existe chez ce groupe de patients une gamme de besoins à la fois physiques et psychosociaux et que ceux-ci demeurent insatisfaits. Ils rapportaient le plus fréquemment un manque d’énergie, des douleurs et des inquiétudes pour leurs proches. Les patients exprimaient également de la détresse parce qu’ils avaient de la difficulté à gérer leurs besoins; beaucoup rapportaient vouloir obtenir de l’aide face aux défis qu’ils rencontraient. Toutefois, une proportion assez importante (de 45 à 58 % d’entre eux) indiquaient ne pas vouloir recevoir d’aide du personnel du centre de cancérologie pour certains de leurs besoins particuliers malgré l’énorme détresse provoquée par l’insatisfaction de leurs besoins (p. ex. le manque d’énergie, la peur que le cancer ne se propage, ne plus être capables de faire les choses qu’ils faisaient auparavant). Des suggestions relatives à la pratique et aux recherches à réaliser à l’avenir sont offertes en vue d’améliorer les soins prodigués à ce groupe de patients.


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