Email this article 
Besoins en soins de soutien des personnes atteintes de cancer du poumon
Abstract
Le but principal de la présente étude était de déterminer la gamme des besoins en soins de soutien des patients diagnostiqués d’un cancer du poumon et fréquentant, en ambulatoire, un centre régional de cancérologie. Le cancer du poumon n’a pas seulement un impact physique sur les personnes qu’il frappe, cependant, relativement peu de recherches ont été effectuées sur leurs besoins, mis à part les besoins liés à la gestion des symptômes physiques.
Un total de 86 patients a participé à cette étude en remplissant un questionnaire d’auto-évaluation. Les données indiquaient clairement qu’il existe chez ce groupe de patients une gamme de besoins à la fois physiques et psychosociaux et que ceux-ci demeurent insatisfaits. Ils rapportaient le plus fréquemment un manque d’énergie, des douleurs et des inquiétudes pour leurs proches. Les patients exprimaient également de la détresse parce qu’ils avaient de la difficulté à gérer leurs besoins; beaucoup rapportaient vouloir obtenir de l’aide face aux défis qu’ils rencontraient. Toutefois, une proportion assez importante (de 45 à 58 % d’entre eux) indiquaient ne pas vouloir recevoir d’aide du personnel du centre de cancérologie pour certains de leurs besoins particuliers malgré l’énorme détresse provoquée par l’insatisfaction de leurs besoins (p. ex. le manque d’énergie, la peur que le cancer ne se propage, ne plus être capables de faire les choses qu’ils faisaient auparavant). Des suggestions relatives à la pratique et aux recherches à réaliser à l’avenir sont offertes en vue d’améliorer les soins prodigués à ce groupe de patients.
Full Text:
PDFReferences
Ashbury, F.D., Findley, H., Reynolds, B., & McKerracher, K. (1998).
A Canadian survey of cancer patients’ experiences: Are their needs
being met? Journal of Pain and Symptom Management, 16(5),
–306.
Bailey, A.J., Parmar, M.K.B., & Stephens, R.J. (1998). Patientreported
short-term and long-term physical and psychological
symptoms. Journal of Clinical Oncology, 16, 3082–3093.
Bonevski, B., Sanson-Fisher, R., Girgis, A., Burton, L., Cook, P.,
Boyes, A., et al. (2000). Evaluation of an instrument to assess the
needs of patients with cancer. Cancer, 88(1), 217–225.
Bradley, N., Davis, L., & Chow, E. (2005). Symptom distress in
patients attending an outpatient palliative radiotherapy clinic.
Journal of Pain and Symptom Management, 30(2), 123–131.
Brown, J., & Radke, K. (1998). Nutritional assessment, intervention,
and evaluation of weight loss in patients with non-small cell lung
cancer. Oncology Nursing Forum, 25, 547–553.
Bruera, E., Michaud, M., Vigano, A., Neumann, C., Watanabee, S., &
Hanson, J. (2001). Multidisciplinary symptom control clinic in a
cancer centre: A retrospective study. Supportive Care in Cancer,
, 162–168.
Bultz, B., & Carlson, L.E. (2005). Emotional distress: The sixth vital
sign in cancer care. Journal of Clinical Oncology, 23, 6440–6441.
Chapple, A., Ziebland, S., & MacPherson, A. (2004). Stigma, shame,
and blame experienced by patients with lung cancer: A qualitative
study. British Medical Journal, 328, 1470–1474.
Charles, K., Sellick, S.M., Montesanto, B., & Mohide, E.A. (1996).
Priorities for cancer survivors regarding psychosocial needs.
Journal of Psychosocial Oncology, 14(2), 57–72.
Chow, E., Tsao, M., & Harth, T. (2004). Does psychosocial
intervention improve survival in cancer? A meta-analysis.
Palliative Medicine, 18(1), 25–31.
Corner, J., Plant, H., A’Hern, R., & Bailey, C. (1996). Nonpharmacological
intervention for breathlessness in lung cancer.
Palliative Medicine, 10(4), 299–305.
Edmonds, P., Karlsen, S., Khan, S., & Addington-Hall, J. (2001). A
comparison of the palliative care needs of patients dying from
chronic respiratory diseases and lung cancer. Palliative Medicine,
(4), 287–295.
Fallen, H., & Schmidt, M. (2004). Prognostic value of depressive
coping and depression in survival of lung cancer patients. Psycho-
Oncology, 13(5), 359–363.
Fitch, M.I., Porter, H.B., & Page, B.D. (Eds.). (2008). Supportive
care framework: A foundation for person-centred care.
Pembroke, ON: Pappin Communications.
Given, C.W., Given, B.A., & Stommel, M. (1994). The impact of age,
treatment, and symptoms on the physical and mental health of
cancer patients. Cancer, 74, 2128–2138.
Hill, K.M., Amir, Z., Muers, M.F., Connolly, C.K., & Round, C.E.
(2003). Do newly diagnosed lung cancer patients feel their concerns
are being met? European Journal of Cancer Care, 12(1), 35–45.
Hollen, P.J., Gralla, R.J., & Rittenberg, C.N. (2004). Quality of life as
a clinical trial endpoint: Determining the appropriate interval for
repeated assessments in patients with advanced lung cancer.
Supportive Care in Cancer, 12, 767–773.
Hopwood, P., & Stephens, R.J. (1995). Symptoms at presentation for
treatment in patients with lung cancer: Implications for the
evaluation of palliative treatment. British Journal of Cancer, 71,
–36.
Hopwood, P., & Stephens, R.J. (2000). Depression in patients with
lung cancer: Prevalence and risk factors derived from quality-oflife
data. Journal of Clinical Oncology, 18(4), 893–903.
Institut national du cancer du Canada. (2008). Statistiques
canadiennes sur le cancer 2008. Toronto, ON : Auteur.
Jacobsen, P.B. (2007). Screening for psychological distress in cancer
patients: Challenges and opportunities. Journal of Clinical
Oncology, 25, 4526–4527.
John, L.D. (2001). Quality of life in patients receiving radiation
therapy for non-small cell lung cancer. Oncology Nursing
Forum, 28, 807–813.
Kennett, C., & Payne, M. (2005). Understanding why palliative care
patients “like day careâ€and “getting out.†Journal of Palliative
Care, 21(4), 292–298.
Kiteley C., & Fitch M.I. (2006). Comprendre les symptômes éprouvés
par les sujets atteints du cancer du poumon. Revue canadienne de
soins infirmiers en oncologie, 16(1), 31–36.
Krishnasamy, M., Wilkie, E., & Haviland, J. (2001). Lung cancer
health care needs assessment: Patients’ and informal carers’
responses to a national mail questionnaire survey. Palliative
Medicine, 15(3), 213–227.
Lia, J., & Girgis, A. (2006). Supportive care needs: Are patients with
lung cancer a neglected population? Psycho-Oncology, 15(6),
–516.
Maliski, S., Sarna, L., Evangelista, L., & Padilla, G. (2003). The
aftermath of lung cancer: Balancing the good and bad. Cancer
Nursing, 26(3), 237–244.
Mitchell, S.A., Beck, S.L., Hood, L.E., Moore, K., & Tanner, E.R.
(2007). Putting evidence into practice: Evidence-based
interventions for fatigue during and following cancer and its
treatment. Clinical Journal of Oncology Nursing, 11(1), 99–113.
Montazeri, A., Milroy, R., Hole, D., McEwen, J., & Gillis, C.R.
(2003). How do quality of life data contribute to our understanding
of cancer patients’ experiences? Quality of Life Research, 12(2),
–166.
Morasso, G., Capelli, M., Viterbori, P., DiLeo, S., Alberisio, A.,
Costantini, M., et al. (1999). Psychological and symptom distress
in terminal cancer patients with met and unmet needs. Journal of
Pain and Symptom Management, 17(6), 402–409.
Sarna, L., Brown, J.K., Cooley, M.E., Williams, R.D., Chernecky, C.,
Padilla, G., et al., (2005). Quality of life and meaning of illness of
women with lung cancer. Oncology Nursing Forum Online,
(1), E9–19.
Sarna, L., Evangelista, L., Tashkin, D., Padilla, G., Holmes, C.,
Brecht, M., et al. (2004). Impact of respiratory symptoms and
pulmonary function on quality of life of long-term survivors of
non-small cell lung cancer. Chest, 125, 439–445.
Sarna, L., Lindsey, A.M., Dean, H., Brecht, M.L., & McCorkle, R.
(1994). Weight change and lung cancer: Relationships with
symptom distress, functional status and smoking. Research in
Nursing & Health, 17(5), 371–379.
Solano, J., & Higginson, I. (2006). A comparison of symptom
prevalence in far advanced cancer, AIDS, heart disease, chronic
obstructive pulmonary disease and renal disease. Journal of Pain
and Symptom Management, 31(1), 58–68.
Trippoli, S., Varani, M., Lucioni, C., & Messori, A. (2001). Quality of
life and utility in patients with non-small cell lung cancer.
Pharmacoeconomics, 19, 855–863.
Voogt, E., van der Heide, A., van Leeuwen, A.F., Visser, A.P., Cleiren,
M.P., Passchier, J., et al. (2005). Positive and negative affect after
diagnosis of advanced cancer. Psycho-Oncology, 14(4), 262–273.
Whelan, T.J., Mohide, E.S., Willan, A.R., Arnold, A., Tew, A., Sellick,
S., et al. (1997). The supportive care needs of newly diagnosed
cancer patients attending a regional cancer centre. Cancer, 80,
–1524.
Zabora, J., Brintzenhofeszoc, K., Curbow, B., Hooker, C., &
Piantadosi, S. (2001). The prevalence of psychological distress by
cancer site. Psycho-Oncology, 10(1), 19–28.
Refbacks
- There are currently no refbacks.
