Enquête sur les stratégies d’adaptation et de soutien social parmi des patients canadiens atteints d’un mélanome

Melanie Kalbfleisch, Annette Cyr, Nancy Gregorio, Joyce Nyhof-Young

Abstract


Les besoins de soutien en jeu dans l’adaptation à un diagnostic de mélanome sont complexes. Cette étude visait à déterminer les niveaux de soutien social perçu et l’utilisation de stratégies d’adaptation efficaces et inefficaces par des patients canadiens atteints d’un mélanome. Nous avons également examiné l’impact du degré de soutien social sur le recours aux stratégies d’adaptation. Nous avons mesuré le niveau de soutien social et les stratégies d’adaptation au moyen du Medical Outcomes Study Social Support Survey (MOS-SSS; Étude des résultats médicaux - Enquête sur le soutien social) et du questionnaire Brief COPE en 28 énoncés, respectivement. Les niveaux perçus de soutien affectif/informationnel étaient significativement plus faibles que les niveaux de soutien affectueux et d’interaction sociale positive. Les stratégies d’adaptation les plus fréquemment utilisées étaient l’acceptation, l’adaptation active et le recours aux sources de soutien affectif. Les patients qui avaient des degrés plus élevés de soutien social perçu affichaient des scores d’adaptation significativement plus élevés que les patients qui avaient des niveaux de soutien social moins élevés. Les professionnels de la santé ont un rôle important à jouer dans la promotion de la sensibilisation et de l’accès aux ressources de soutien affectif et informationnel et donc dans la hausse des niveaux de soutien social perçu.


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References


Boyle, D.A. (2003). Psychological adjustment to the melanoma experience. Semin Oncol Nurs, 19, 70–77.

Costa Requena, G., Salamero, M., & Gil, F. (2007). Validity of the questionnaire MOS-SSS of social support in neoplastic patients. Medicina Clinica (Barc),128, 687–691.

Daly, B.J., Douglas, S., Lipson, A., & Foley, H. (2009). Needs of older caregivers of patients with advanced cancer. J Am Geriatr Soc, Suppl, 2, 293–295.

Dancey, A., Rayatt, S., Courthold, J., & Roberts, J. (2004) Views of UK melanoma patients on routine follow-up care. Brit J Plast Surg, 58, 245–250.

Devine, D., Parker, P.A., Fouladi, R.T., & Cohen. L. (2003) The association between social support, intrusive thoughts, avoidance, and adjustment following an experimental cancer treatment. Psycho-Oncol, 12, 453–462.

Eakin, E.G., & Strycker, L.A. (2001). Awareness and barriers to use of cancer support and information resources by HMO patients with breast, prostate, or colon cancer: Patient and provider perspectives. Psycho-Oncol, 10, 103–113.

Fawzy, N.W. (1995). A psychoeducational nursing intervention to enhance coping and affective state in newly diagnosed malignant melanoma patients. Cancer Nurs, 18, 427–438.

Garbe, C., & Leiter, U. (2009). Melanoma epidemiology and trends. Clin Dermatol, 27, 3–9.

Hamama-Raz, Y., Solomon, Z., Schachter, J., & Azizi, E. (2007) Objective and subjective stressors and the psychological adjustment of melanoma survivors. Psycho-Oncol, 16, 287–294.

Hetz, S., & Tomasone, J.R. (2009). Besoins en soins de soutien, au Canada, des survivants du mélanome et des individus atteints de cette pathologie. Revue canadienne de soins infirmiers en oncologie, 22, 252–256.

Kasparian, N.A., McLoone, J.K., & Butow, P.N. (2009). Psychological responses and coping strategies among patients with malignant melanoma. Arch Dermatol, 145, 1415–1427.

Kongsved, S.M., Basnov, M., Holm-Christensen, K., & Hjollund, N.J. (2007) Response rate and completeness of questionnaires: A randomized study of internet versus paper-and-pencil versions. J Med Internet Res, 9, e25.

Lehto-Jarnstedt, U.S., Ojanen, M., & Kellokumpu-Lehtinen, P. (2004) Cancer-specific social support received by newly diagnosed cancer patients: Validating the new structural-functional social support scale (SFSS) measurement tool. Support Care Canc, 12, 326–337.

Lichtenthal, W.G., Cruess, D.G., Schuchter, L.M., & Ming, M.E. (2003) Psychosocial factors related to the correspondence of recipient and provider perceptions of social support among patients diagnosed with or at risk for malignant melanoma. J Health Psychol, 8, 705–719.

Loquai, C., Scheurich V., Syring N., Schmidtmann I., Muller-Brenne T., Werner A., … Beutel, M.E. (2014) Characterizing psychosocial distress in melanoma patients using the expert rating instrument PO-Bado SF. JEADV. doi:10.1111/jdv.12361 [Epub ahead of print]

Murtaza Kasi, P., Naqvi, H.A., Afghan, A.K., Khawar, T., Khan, F.H., Khan, U.Z., … Khan, H.M. (2012). Coping styles in patients with anxiety and depression. ISRN Psych, ID, 128672, 1–7.

Paredes, T.F., Canavarro, M.C., & Simões, M.R. (2012) Social support and adjustment in patients with sarcoma: The moderator effect of the disease phase. J Psychosoc Oncol, 30, 402–425.

Rand Health. (2011). Medical outcomes study: Social support survey scoring instructions. Retrieved from http://www.rand.org/health/surveys_tools/mos/mos_socialsupport_scoring.html

Réseau mélanome Canada. Récupéré de http://www.melanomanetwork.ca/fr/

Rubin, K.M. (2013) Management of primary cutaneous and metastatic melanoma. Sem Oncol Nurs, 29, 195–205.

Rudy, R.R., Rosenfeld, L.B., Galassi, J.P., Parker, J., & Schanberg, R. (2001) Participants’ perceptions of a peer-helper, telephone-based social support intervention for melanoma patients. Health Commun, 13, 285–305.

Schreurs, K.M. & DeRidder, D.T. (1997). Integration of coping and social support perspectives: Implications for the study of adaptation to chronic diseases. Clinic Psychol Rev, 17, 89–112.

Sherbourne, C.D., & Stewart, A.L. (1991). The MOS social support survey. Soc Sci Med, 32, 705–714.

Sollner, W., Zschocke, M., Zingg-Schir, B., Stein, G., Rumpold, P., Fritsch, P. & Augustin, M. (1999). Interactive patterns of social support and individual coping strategies in melanoma patients and their correlations with adjustment to illness. Psychosomatics, 40, 239–250.

Thompson, T., Rodebaugh, T.L., Perez, M., Schootman, M., & Jeffe, D.B. (2013). Perceived social support change in patients with early stage breast cancer and controls. Health Psychol, 32, 886–895.

Trapp, M., Trapp, E.M., Richtig, E., Egger, J.W., Zampetti, A., Sampogna, F., … Linder, M.D. (2012). Coping strategies in melanoma patients. Acta Derm-Venereol, 92, 598–602.

Trask, P.C., Paterson, A.G., Hayasaka, S., Dunn, R.L., Riba, M., Johnson, T. (2001). Psychosocial characteristics of individuals with non-stage IV melanoma. J Clin Oncol., 19(11), 2844–2850.

Vurnek, M., Buljan, M., & Situm, M. (2007). Psychological status and coping with illness in patients with malignant melanoma. Coll Antropol, 31, 53–56.

Winterbottom, A., & Harcourt, D. (2004). Patients’ experience of the diagnosis and treatment of skin cancer. J Adv Nurs, 48, 226–233.

Yusoff, N., Low, W.Y., & Yip, C.H. (2010). Reliability and validity of the brief COPE scale (English version) among women with breast cancer undergoing treatment of adjuvant chemotherapy: A Malaysian study. Med J Malaysia, 65, 41–44.

Zabora, J., Brintzenhofeszoc, K., Curbow, B., Hooker, C., & Piantadosi, S. (2001). The prevalence of psychological distress by cancer site. Psycho-Oncol, 10, 19–28.

Zhou, E.S., Penedo, F.J., Bustillo, N.E., Benedict, C., Rasheed, M., Lechner, S., … Antoni, M.H. (2010). Longitudinal effects of social support and adaptive coping on the emotional well-being of survivors of localized prostate cancer. J Support Oncol, 8, 196–201.


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