Gaining a better understanding of the support function of oncology nurse navigators from their own perspective and that of people living with cancer: Part 1

Johanne Hébert, Lise Fillion

Abstract


Individuals living with cancer have a wide range of needs throughout the disease trajectory. To better meet them, the Quebec Cancer Control Program (PQLC) implemented the oncology nurse navigator role. While this practitioner has already been integrated into the majority of oncology teams, the role still lacks precision when it comes to its functions within care teams. The support function that deals indiscriminately with “the full spectrum of care and services” consolidated under the larger constructs of adaptation and rehabilitation provided to the individual with cancer and their loved ones requires professional skills and organizational resources, which would improve with clarifying.

The goal of this study is to better understand the oncology nurse navigator (ONN) support function, first from the perspective of individuals living with cancer and, second, from the perspective of ONNs themselves. The first objective, detailed in this first part of two, is to explore, from the perspective of people living with cancer, the nature of their needs and support provided by the ONN along the disease trajectory. In all, five individuals living with cancer and provided with an ONN were recruited. The participants expressed support needs at all levels regarding the ONN particularly in the emotional (56%) and informational areas. Moreover results suggest that symptom management (physical area) and all-around coordination (care interventions, appointments, exams, practitioners) in the practical area are paramount throughout the care trajectory.


Full Text:

PDF

References


Adam, E. (1991). Être infirmière. Un modèle conceptuel (3ème éd.).

Montréal : Études Vivantes.

Ahlberg, K., Ekman, T., & Gaston-Johansson, F. (2005). Fatigue,

psychological distress, coping resources, and functional status

during radiotherapy for uterine cancer. Oncology Nursing Forum,

(3), 633–640.

Ahmed, N., Ahmedzai, S.H., Vora, V., Harrison, V., & Paz, S. (2004).

Supportive care for patients with gastrointestinal cancer (Review).

Cochrane Database of Systematic Reviews, 3, art. No.: CD003445.

DOI:10.1002/14651858.CD003445.pub2

Direction de la lutte contre le cancer (2005a). Le soutien, l’adaptation

et la réadaptation en oncologie au Québec. Recommandations.

Comité de soutien, d’adaptation et de réadaptation (SAR).

Québec. Ministère de la Santé et des Services sociaux.

Direction de la lutte contre le cancer (2005b). Pour optimiser la

contribution de l’infirmière à la lutte contre le cancer. Comité

de l’évolution de la pratique infirmière en oncologie (CEPIO).

Québec. Ministère de la Santé et des Services sociaux.

Doll, R., Barroetavena, M.C., Ellwood, A.L., Fillion, L., Habra, M.E.,

Linden, W., & Stephen, J. (2007). The Cancer Care Navigator:

Toward a conceptual framework for a new role in oncology.

Oncology Exchange, 6(4), 28–35.

Fillion, L., Cook, S., Veillette, A.M., Aubin, M., Rainville, F., Doll,

R., & Fitch, M. (2009). Professional navigation framework:

Empirical validation with Canadian applications. Manuscrit en

préparation.

Fillion, L., de Serres, M., Lapointe–Goupil, R., Bairati, I., Gagnon, P.,

Deschamps, et al. (2006). Implantation d’une infirmière pivot

en oncologie dans un centre hospitalier universitaire. Revue

canadienne de soins infirmiers en oncologie, 16(1), 5–17.

Fitch, M.I. (1994). Providing supportive care for individuals living with

cancer. Toronto : Cancer Treatment and Research Foundation.

Fitch, M.I. (2008). Cadre des soins de soutien. Revue canadienne de

soins infirmiers en oncologie, 18(1), 15–24.

Fitch, M.I., Porter, H.B., & Page, B.D. (2008). Supportive Care

Framework: A foundation for person–centred care. Ontario:

Pappin Communications.

Fraser, A. (1995). Pour une meilleure compréhension des besoins des

personnes atteintes de cancer. Québec. Comité consultatif sur le

cancer. Ministère de la Santé et des Services sociaux.

Glaser, B.G., & Strauss, A.L. (1967). The discovery of grounded theory:

strategies for qualitative research. Chicago: Aldine.

Gould, J., Wilson, S., & Grassau, P. (2008). Réflexions sur la spiritualité

dans le context du diagnostic et du traitement du cancer du sein.

Revue canadienne de soins infirmiers en oncologie, 18(1), 34–39.

Griffiths, J., Willard, C., Burgess, A., Amir, Z., & Luker, K. (2007).

Meeting the ongoing needs of survivors of rarer cancer. European

Journal of Oncology Nursing, 11, 434–441.

Hileman, J.W., Lackey, N.R., & Hassanein, R.S. (1992). Identifying

the needs of home caregivers of patients with cancer. Oncology

Nursing Forum, 19(5), 771–777.

Janda, M., Steginga, S., Dunn, J., Langbecker, D., Walker, D., & Eakin,

E. (2008). Unmet supportive care needs and interest in services

among patients with a brain tumour and their careers. Patient

Education and Counseling, 71, 251–258.

Kérouac, S., Pépin, J., Ducharme, F., & Major, F. (2003). La pensée

infirmière (2e éd.). Laval : Groupe Beauchemin.

Kerr, L.–M.J., Harrison, M.B., & Medves, J. (2004). Supportive care

needs of parents of children with cancer: Transition from

diagnosis to treatment. Oncology Nursing Forum, 31(6), 116–126.

Kerr, L.–M.J., Harrison, M.B., Medves, J., Tranmer, J.E. & Fitch, M.I.

(2007). Understanding the supportive care needs of parents of

children with cancer: an approach to local needs assessment.

Journal of Pediatric Oncology Nursing, 24(5), 279–293.

Lauver, D.R., Connolly–Nelson, K., & Vang, P. (2007). Stressors

and coping strategies among female cancer survivors after

treatments. Cancer Nursing, 30(2), 101–111.

Lazarus, R., & Folkman, S. (1984). Stress, appraisal and coping. New

York: Springer.

Liao, M.–N., Chen, M.–F., Chen, S.–C., & Chen, P.–L. (2007). Healthcare

and support needs of women with suspected breast cancer.

Journal of Advanced Nursing, 60(3), 289–298.

Liu, J.–E., Mok, E., & Wong, T. (2005). Perceptions of supportive

communication in Chinese patients with cancer: experiences and

expectations. Journal of Advanced Nursing, 52(3), 262–270.

Long, A.F., Kneafsey, R., Ryan, J., & Berry, J. (2002). The role of the

nurse within the multi–professional rehabilitation team. Journal

of Advanced Nursing, 37(1), 70–78.

Manning–Walsh, J. (2005). Social Support as a mediator between

symptom distress and quality of life in women with breast

cancer. Journal of Obstetric, gynecologic, & Neonatal Nursing,

(4), 482–493.

Maslow, A.H. (1998). Toward a psychology of being (3rd ed.). Ontario:

John Wiley & Sons Canada Ltd.

Ministère de la Santé et des Services sociaux. (1998). Programme

québécois de lutte contre le cancer. Pour lutter efficacement

contre le cancer, formons équipe. Comité consultatif. Bibliothèque

Nationale du Québec. Octobre.

Nikoletti, S., Kristjanson, L.J., Tataryn, D., McPhee, I., & Burt, L.

(2003). Information needs and coping styles of primary family

caregivers of women following breast cancer surgery. Oncology

Nursing Forum, 30(6), 987–996.

Pigott, C., Pollard, A., Thomson, K., & Aranda, S. (2008). Unmet needs

in cancer patients: development of a supportive needs screening

tool (SNST). Support Care Cancer, 17(1), 33–45.

Richardson, A., Medina, J., Brown, V., & Sitzia, J. (2007a). Patients’

needs assessment in cancer care: a review of assessment tools.

Support Cancer Care, 15, 1125–1144.

Richardson, A., Plant, H., Moore, S., Medina, J., Cornwall, A., & Recam,

E. (2007b). Developing supportive care for family members of

people with lung cancer: A feasibility study. Support Care Cancer,

, 1259–1269.

Snyder, C.F., Garrett–Mayer, E., Brahmer, J.R., Carducci, M.A., Pili, R.,

Stearns, V., et al. (2008). Symptoms, supportive care needs, and

function in cancer patients: How are they related? Quality of Life

Research, 17, 665–677.

Steele, R., & Fitch, M.I. (2008). Supportive care needs of women with

gynecologic cancer. Cancer Nursing, 31(4), 284–291.

Strang, S., Strang, P., & Ternestedt, B.M. (2002). Spiritual needs as

defined by Swedish nursing staff. Journal of Clinical Nursing, 11,

–57.

Taylor, E.J. (2003). Spiritual needs of patients with cancer and family

caregivers. Cancer Nursing, 26(4), 260–266.

Tiffen, J., Sharp, L., & O’Toole, C. (2005). Depressive symptoms

prescreening and postscreening among returning participants

in an ovarian cancer early detection program. Cancer Nursing,

(4), 325–330.

Voogt, E., van Leeuwen, A.F., Visser, A.P., van der Heide, A., & van der

Maas, P.J. (2005). Information needs of patients with incurable

cancer. Support Cancer Care, 13, 943–948.


Refbacks

  • There are currently no refbacks.