Soutien des frères et sœurs d’un jeune touché de cancer : soins collaboratifs pour les familles

Charlotte Gélinas-Gagné, Miranda D’Amico

Abstract


Objectif : Cette étude examine les systèmes de soutien et les besoins des frères et sœurs des jeunes touchés par un cancer, mettant en lumière les défis émotionnels et informationnels auxquels les frères et sœurs sont confrontés. Ce domaine a reçu relativement peu d'attention.

Devis et méthodologie : Des entretiens qualitatifs ont été menés et une analyse thématique a été utilisée pour obtenir des perspectives approfondies sur les expériences et les points de vue des frères et sœurs. Bien que la taille relativement petite de l'échantillon de l'étude et l'homogénéité des participants soient reconnues comme des limites, l'approche présente plusieurs forces, notamment la pertinence et la diversité des participants dans les cohortes d'âge.

Résultats : Les résultats soulignent le rôle essentiel des professionnels de la santé, en particulier des infirmières pour fournir du soutien émotionnel et informationnel aux frères et sœurs. Une approche centré sur la famille, un soutien psycho- social, et des interventions personnalisées sont recommandés pour répondre de manière efficace aux besoins spécifiques de la fratrie.

Conclusion : Dans l'ensemble, cette étude met en lumière l'importance de reconnaître et de répondre aux besoins de soutien des frères et sœurs dans les soins en oncologie pédiatrique, en mettant en avant leur rôle en tant que composante essentielle du système familial. Cette étude souligne l'importance de fournir un soutien à la fratrie pendant et après l'expérience du cancer.

Mots-clés : cancer pédiatrique, cancer chez les jeunes, frères et sœurs, éducation en santé, soutien, soins infirmiers, professionnels de la santé, soutien psychologique, soutien informationnel


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