Standardized versus personalized survivorship care plans for breast cancer survivors: A program evaluation

Nicole Rutkowski, Carrie MacDonald-Liska, Kelly-Anne Baines, Vicky Samuel, Cheryl Harris, Sophie Lebel


The Wellness Beyond Cancer Program provides survivorship care plans (SCPs) to cancer survivors, as they transition from cancer centres back to their primary care provider (PCP) upon treatment completion. A program evaluation examined whether standardized SCPs resulted in comparable outcomes on perceived knowledge and patient activation as personalized SCPs. Breast cancer survivors who received either standardized or personalized SCPs completed pre- and post-surveys during their discharge appointment, which included an in-house measure on perceived knowledge, The Perceived Efficacy in Patient-Physician Interactions, and The Patient Activation Measure. Eighty-seven breast cancer survivors completed the surveys (personalized SCP n = 43; standardized SCP n = 44). Standardized SCPs resulted in comparable knowledge and activation outcomes as personalized SCPs. Cost-efficient standardized SCPs may help alleviate human resource constraints and may be considered for further evaluation and implementation in cancer centres. 

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Birken, S. A., Urquhart, R., Munoz-Plaza, C., Zizzi, A. R., Haines, E., Stover, A., Mayer, D. K, & Hahn, E. E. (2018). Survivorship care plans: Are randomized controlled trials assessing outcomes that are relevant to stakeholders? Journal of Cancer Survivorship, 12(4), 495–508.

Brennan, M. E., Boyle, F. M., Butow, P. N., & Spillane, A. J. (2015). Evaluation of a survivorship care plan: Long-term use, care coordination and quality of life in breast cancer survivors. Breast Cancer Management, 4(3), 145–157.

Cancer Journey Portfolio. (2012). Advances in survivorship care: Resources, lessons learned and promising practices.

Chahine, S., & Urquhart, R. (2019). A cross-sectional population-based survey looking at the impact of cancer survivorship care plans on meeting the needs of cancer survivors in the posttreatment stage. Supportive Care in Cancer, 27(10), 3785-3792.

Dawes, A. J., Hemmelgarn, M., Nguyen, D. K., & Sacks, G. D. (2015). Are primary care providers prepared to care for survivors of breast cancer in the safety net? Cancer,121(8), 1249-1256.

Dulko, D., Pace, C. M., Dittus, K. L., Sprague, B. L., Pollack, L. A., Hawkins, N. A., & Geller, B. M. (2013). Barriers and facilitators to implementing cancer survivorship care plans. Oncology Nursing Forum, 40(6), 575–580.

Grunfeld, E., Julian, J. A., Pond, G., Maunsell, E., Coyle, D., Folkes, A., Joy, A. A, Provencher, L., Rayson, D., Rheaume, D. E., Porter, G. A., Paszat, L. F., Pritchard, K. I., Robidoux, A., Smith, S., Sussman, J., Dent, S., Sisler, J., Wiernikowski, J., & Levine, M. N. (2020). Evaluating survivorship care plans: Results of a randomized, clinical trial of patients with breast cancer. Journal of Clinical Oncology, 29(36), 1-8.

Hawley, S. T., Janz, N. K., Lillie, S. E., Friese, C. R., Griggs, J. J., Graff, J. J., Hamilton, A. S., Jain, S., & Katz, S. J. (2010). Perceptions of care coordination in a population-based sample of diverse breast cancer patients. Patient Education and Counseling, 81, S34-S40.

Hibbard, J. H., & Mahoney, E. (2010). Toward a theory of patient and consumer activation. Patient Education and Counseling, 78(3), 377–381.

Hibbard, J. H., Mahoney, E. R., Stock, R., & Tusler, M. (2007). Do increases in patient activation result in improved self-management behaviors? Health Services Research, 42(4), 1443–1463.

Hibbard, J. H., Stockard, J., Mahoney, E. R., & Tusler, M. (2004). Development of the Patient Activation Measure (PAM): Conceptualizing and measuring activation in patients and consumers. Health Services Research, 39(4p1), 1005–1026.

Hill, R. E., Wakefield, C. E., Cohn, R. J., Fardell, J. E., Brierley, M. E., Kothe, E., Jacobsen, P. B., Hetherington, K., & Mercieca-Bebber, R. (2019). Survivorship care plans in cancer: A meta-Analysis and systematic review of care plan outcomes. The Oncologist, 25(2), e351.

Institute of Medicine and National Research Council. (2006). From cancer patient to cancer survivor: Lost in transition. The National Academies Press.

Jabson, J. (2015). Follow up care instructions, treatment summaries, and cancer survivors’s receipt of follow-up health care and late/long term effects. Supportive Care in Cancer, 23(7), 1851-1856.

Jacobsen, P. B., DeRosa, A. P., Henderson, T. O., Mayer, D. K., Moskowitz, C. S., Paskett, E. D., & Rowland, J. H. (2018). Systematic review of the impact of cancer survivorship care plans on health outcomes and health care delivery. Journal of Clinical Oncology, 36(20), 2088–2100.

Jeppesen, M. M., Ezendam, N. P. M., Pijnenborg, J. M. A., Caroline Vos, M., Boll, D., Kruitwagen, R. F. P. M., Jensen, P. T., & van de Poll-Franse, L. V. (2018). The impact of the survivorship care plan on health care use: 2-year follow-up results of the ROGY care trial. Journal of Cancer Survivorship, 12(1), 18–27.

Liska, C. M., Morash, R., Paquet, L., & Stacey, D. (2018). Empowering cancer survivors to meet their physical and psychosocial needs: An implementation evaluation. Canadian Oncology Nursing Journal, 28(2), 76–81.

Maly, R. C., Frank, J. C., Marshall, G. N., DiMatteo, M. R., & Reuben, D. B. (1998). Perceived Efficacy in Patient-Physician Interactions (PEPPI): Validation of an instrument in older persons. Journal of the American Geriatrics Society, 46(7), 889–894.

Maly, R. C., Liang, L. J., Liu, Y., Griggs, J. J., & Ganz, P. A. (2017). Randomized controlled trial of survivorship care plans among low-income, predominantly latina breast cancer survivors. Journal of Clinical Oncology, 35(16), 1814–1821.

Mattison, C.A., Moat, K.A., Waddell, K., & Lavis, J.N. (2018, March). Citizen brief. Optimizing patient and family transitions from cancer treatment to primary- and community-care supports in Canada. McMaster Health Forum.

O’Brien, M. A., Grunfeld, E., Sussman, J., Porter, G., & Hammond Mobilio, M. (2015). Views of family physicians about survivorship care plans to provide breast cancer follow-up care: Exploration of results from a randomized controlled trial. Current Oncology, 22(4), 252–259.

Rademakers, J., Nijman, J., Van Der Hoek, L., Heijmans, M., & Rijken, M. (2012). Measuring patient activation in the Netherlands: Translation and validation of the American short form Patient Activation Measure (PAM13). BMC Public Health, 12(1), 1.

Rushton, M., Morash, R., Larocque, G., Liska, C., Stoica, L., DeGrasse, C., & Segal, R. (2015). Wellness beyond cancer program: Building an effective survivorship program. Current Oncology, 22(6), e419–e434.

Singh-Carlson, S. W., Wong, F., & Oshan, G. (2018). Evaluation of the delivery of survivorship care plans for South Asian female breast cancer survivors residing in Canada. Current Oncology, 25(4), e265–e274.

Smith, S. L., Singh-Carlson, S., Downie, L., Payeur, N., & Wai, E. S. (2011). Survivors of breast cancer: Patient perspectives on survivorship care planning. Journal of Cancer Survivorship, 5(4), 337–344.


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