Défis entourant la tenue, dans les services ambulatoires, de conversations sur la sexualité : Partie I — les perspectives des patients

Margaret I. Fitch, Gerry Beaudoin, Beverley Johnson

Abstract


Introduction : Un diagnostic de cancer et le traitement qui s’ensuit ont une incidence significative sur la qualité de vie de la personne touchée. Il y a notamment atteinte à l’image corporelle et à la sexualité. Cependant, on a de plus en plus d’indications que les conversations sur ces conséquences ne surviennent pas souvent entre les patients atteints de cancer et leurs prestataires de soins de santé. Ceci vaut tout particulièrement pour les services ambulatoires surchargés.

Objectif : Cette étude a été entreprise afin d’explorer les perspectives des patients atteints de cancer relativement aux conversations tenues dans la pratique quotidienne sur la sexualité suite à un diagnostic de cancer. On souhaite mieux comprendre les obstacles à la tenue de ce genre de conversations.

Méthodes : Trente-deux patients atteints de cancer ont participé aux entrevues visant à explorer leurs expériences en matière de conversations sur la sexualité. Les transcriptions des entrevues ont fait l’objet d’une analyse thématique standard du contenu.

Résultats : Les patients ont décrit les nombreux changements survenant dans leur organisme du fait du traitement anticancéreux et pouvant éventuellement avoir une incidence sur leur sexualité, mais les préoccupations ou problèmes réels relatifs à la sexualité étaient grandement individualisés. Peu de patients avaient tenu des conversations sur la sexualité avec leurs prestataires de soins. La plupart jugeaient qu’il incombait à l’équipe soignante d’oncologie « d’entrouvrir la porte » sur ce sujet.

Conclusion : Les résultats confirment la notion selon laquelle peu de conversations sur la sexualité se produisent entre les patients atteints de cancer et leurs prestataires de soins. Des approches novatrices sont nécessaires afin de mieux répondre aux besoins des patients.


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References


Andersen, B.L., Woods, X.A., & Copeland, L.J. (1997). Sexual

self-schema and sexual morbidity among gynecologic

cancer survivors. J Consul Clin Psychol, 65(2), 221–229. doi:

1037/0022-006X.65.2.221

Avis, N.E., & Deimling, G.T. (2008). Cancer survivorship and aging.

Cancer, 113 (Suppl. 12), 3519–3529.

Braude, H.D., Macdonald, N., & Chasen, M. (2008). Healing and

survivorship: What makes a difference? Current Oncology, 15(4),

–22.

Brearley, S.G., Stamataki, Z., Addington-Hall, J., Foster, C., Hodges,

L., Jarrett, N., Richardson, A., … Amir, Z. (2011). The physical

and practical problems experienced by cancer survivors: A

rapid review and synthesis of the literature. European Journal of

Oncology Nursing, 15(3), 204–212.

Canadian Cancer Society. (2011). Canadian Cancer Statistics. http://

www.cancer.ca/canada-wide/about%20cancer/Cancer%20

statistics/Past%20statistics.aspx?sc lang=en

Denzin, N.K., & Lincoln, Y.S. (Eds.) (2000). Handbook of Qualitative

Research, 2nd Ed. Thousand Oaks, CA: Sage.

Eton, D., & Lepore, S.J. (2002). Prostate cancer and quality of life: A

review of the literature. Psycho-oncology, 11, 307–326.

Fitch, M.I., Beaudoin, G., & Johnson, B. (2011). Challenges having

conversations about sexuality in ambulatory settings: Part II –

Health Care Provider Perspectives (in review).

Fitch, M.I., Deane, K., & Howell, D. (2003). Living with ovarian cancer:

Women’s perspectives on treatment and treatment decisionmaking.

Canadian Oncology Nursing Journal, 13(1), 8–13.

Fitch, M.I., Miller, D., Sharir, S., & McAndrew, A. (2010). Radical

cystectomy for bladder cancer: A qualitative study of patient

experiences and implications for practice. Canadian Oncology

Nursing Journal, 20(4), 177–181.

Fitch, M.I., Page, B.D., & Porter, H.B. (Eds.) (2008). Supportive Care

Framework: A foundation for person-centred care. Pembroke, ON:

Pappin Communications.

Harrison. J.D., Young, J.M., Price, M.A., Butow, P.N., & Solomon, M.J.

(2009). What are the unmet supportive care needs of people with

cancer? A Systematic Review. Supportive Care in Cancer, 17,

–1128.

Hordern, A. (2008). Intimacy and sexuality after cancer: A critical

review of the literature. Cancer Nurse, 31(2), E9–E17.

Hughes, M.K. (2000). Sexuality and the cancer survivor: A silent

co-existence. Cancer Nursing, 23(6), 477–482.

Institute of Medicine (2007). Cancer Care for the Whole Patient:

Meeting psychosocial health needs. Washington, DC: National

Academies Press.

Institute of Medicine (2001). Crossing the Quality Chasm: A new

health system for the 21st century. Washington, DC: National

Academies Press.

International Union Against Cancer (UICC). www.uicc.org

Interprofessional Psychosocial Oncology Distance Education

(IPODE). (2008). http://www.ipode.ca/english/timeline.html

Jeffry, D. (2001). Overview: Cancer survivorship and sexual function.

J Sex Education Therapy, 26, 170.

Jonker-Pool, G., Van de Wiel, H.B., Hoekstra, H.J., Sleijfer, D.T., Van

Driel, M.F., Van Basten, J.P., & Schrafford Koops, H.S. (2001).

Sexual functioning after treatment for testicular cancer review

and meta-analysis of 36 empirical studies between 1975–2000.

Archives of Sexual Behavior, 30, 55–74.

Katz, A. (2005). The Sounds of Silence: Sexuality information for

cancer patients. Journal of Clinical Oncology, 23(1), 238–241.

Latini, D.M., Hart, S.L., Coon, D.W., & Knight, S.J. (2009). Sexual

rehabilitation after localized prostate cancer: Current

intervention and future directions. Cancer, 15, 34–40.

Lindau, S.T., Surawska, H., Paice, J., & Baron, S.R. (2011).

Communication about sexuality and intimacy in couples affected

by lung cancer and their clinical care providers. Psychooncology,

(2), 179–185. doi: 10.1002/pon.1787

Lockwood-Rayerman, S. (2006). Survivorship issues in ovarian

cancer: A review. Oncology Nursing Forum, 33(3), 553–62.

Mercadante, S., Vitrano, V., & Catania, V. (2010). Sexual issues in

early and late stage cancer: A review. Supportive Cancer Care, 18,

–665.

Meyerowitz, B.E., Desmond, K.A., Rowland, J.H., Wyatt, G.E., & Ganz,

P.A. (1999). Sexuality following breast cancer. J Sex Marital Ther,

, 237–250.

National Council on Aging (1998). Healthy sexuality and vital aging.

Washington, DC: Author.

Penson, R.T., Gallangher, J., Gioiella, M.E., Wallace, M., Borden, K.,

Duska, L.A., et al., (2000). Sexuality and cancer: Conversation

comfort zone. The Oncologist, 5, 336–344.

Redelman, M.J. (2008). Is there a place for sexuality in the holistic

care of patients in the palliative care phase of life? Am J Hosp

Palliat Care, 25, 366–371.

Reese, J.B. (2011). Coping with sexual concerns after cancer. Current

Perspective in Oncology, 23, 313–321.

Reese, J.B., Shelby, R.A., & Abernethy, A.P. (2011). Sexual concerns

in lung cancer patients: An examination of predictors and

moderating effects of age and gender. Supportive Cancer Care,

, 161–165.

Reese, J.B., Shelby, R.A., Keefe, F.J., Porter, L.S., & Abernethy, A.P.

(2010). Sexual concerns in cancer patients: A comparison of

GI and breast cancer patients. Supportive Cancer Care, 18,

–1189.

Sarna, L. (1993). Correlates of symptom distress in women with lung

cancer. Cancer Prac, 1, 21–28.

Shell, J.A. (2002). Evidence-based practices for symptom

management in adults with cancer: Sexual dysfunction. Oncol

Nurs Forum, 29(1), 53–68.

Stausmire, J.M. (2004). Sexuality at the end of life. Am J Hosp Palliat

Care, 21, 33–38.

Steele, R., & Fitch, M.I. (2008). Why patients with lung cancer do

not want help with some needs. Support Care Cancer, 16(3),

–259.

Sun, J., Chapman, J., Gordon, R., Sivaramakrishna, R., Link, M.,

& Fish, E. (2002). Survival from primary breast cancer after

routine clinical use of mammography. Breast Journal, 8(4),

–208.

Syrjala, K.L., Schroeder, T.C., Abrams, J.R., Atkins, T.Z., Brown,

W.S., Sanders, J.E., Schubert, M.A., & Heiman, J.R. (2000).

Sexual function measurement and outcomes in cancer

survivors and matched controls. J Sex Research, 37(3),

–225.

Tan, G., Waidman, K., & Bostick, R. (2002). Psychosocial issues,

sexuality, and cancer. Sex Disabil, 20(4), 297–318.

Tierney, D.K. (2008). Sexuality: A quality of life issue for cancer

survivors. Seminar Oncol Nurs, 24, 71–79.

World Health Organization (WHO). (2002). Defining sexual health.

Report of a technical consultation on sexual health, 28–31.

Geneva, Switzerland.

World Health Organization (WHO). www.who.int

Yi, J.C., & Syrjala, K.L. (2009). Sexuality after hematopoietic stem

cell transplantation. Cancer J, 15(1), 57–64. doi:10.1097/

PPO.0b013e318198c758


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