The role of the internet in the cancer experience: Synthesizing patient and provider views to forge new directions for care

Kristen R. Haase


The CANO/ACIO Clinical Lectureship highlights an innovative nursing intervention or nursing-led study that aims to improve the quality of life for individuals on the cancer journey. People with cancer have high information and supportive care needs, and despite the best efforts of cancer care clinicians, these needs are sometimes left unmet. The advent of the internet has allowed for the democratization of cancer knowledge and the development of online cancer resources, applications, and communities. To date, little research explores the role of cancer-related internet information (CRII) in the cancer experience, particularly the role it plays in the healthcare professional relationships and the selection and use of healthcare services. In this lectureship, I present key findings from a mixed methods study exploring how the use of CRII informs the patient experience, with an emphasis on how oncology nurses, as integral members of the cancer care team, can incorporate these findings into their practice. 

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Alfaro-LeFevre, R. (2014). Overview of nursing process, clinical reasoning, and nursing practice today. In, Applying nursing process: The foundation for clinical reasoning (pp. 1-45). Philidelphia, PA: Lippincott Williams & Wilkins.

Bottorff, J.L. (1991). Nursing: A practical science of caring. Advances in Nursing Science, 14(1), 26–39.

Bultz, B.D., & Carlson, L.E. (2006). Emotional distress: the sixth vital sign-future directions in cancer care. Psycho-Oncology, 15(2), 93–95.

Canadian Cancer Society. (2018). Canadian Cancer Statistics 2018. Special topic: cancer incidence by stage.

Carper, B.A. (1978). Fundamental patterns of knowing in nursing. Advances in Nursing Science, 1(1), 13–24.

Cresswell, J.W. (2014). Basic features of mixed methods research. A concise introduction to mixed methods research (pp. 1-9). Thousand Oaks: Sage.

Cresswell, J.W., & Plano Clark, V.L. (2011). Designing and conducting mixed methods research. Thousand Oaks, CA: Sage.

Dodd, M., Janson, S., Facione, N., Faucett, J., Froelicher, E.S., Humphreys, J., … Rankin, S. (2001). Advancing the science of symptom management. Journal of Advanced Nursing, 33(5), 668–676.

Fawcett, J., Watson, J., Neuman, B., Walker, P.H., & Fitzpatrick, J.J. (2001). On nursing theories and evidence. Journal of nursing scholarship, 33(2), 115–119.

Feeley, N., & Gottlieb, L. (2000). Nursing approaches for working with family strengths and resources. Journal of Family Nursing, 16(3), 9–24.

Fillion, L., de Serres, M., Lapointe-Goupil, R., Bairati, I., Gagnon, P., Deschamps, M., … Demers, G. (2006). Implementing the role of a patient-navigator nurse at a university hospital centre. Canadian Oncology Nursing Journal, 16, 11–17.

Gottlieb, L.N., Feeley, N., & Dalton, C. (2006). The collaborative partnership approach to care: A delicate balance. Toronto, ON: Elsevier Health Sciences.

Haase, K.R., Thomas, R., Gifford, W., & Holtslander, L. (2018a). Healthcare professional views on the intersection of patient internet use, relationships, and health service use in cancer care. European Journal of Cancer Care, In Press

Haase, K.R., Thomas, R., Gifford, W., & Holtslander, L. (2018b). Managing cancer experiences: An interpretive description study of internet information use. Cancer nursing. doi:10.1097/NCC.0000000000000619

Haase, K.R., Thomas, R., Gifford, W., & Holtslander, L. (2018c). Ways of knowing on the internet: A qualitative review of cancer websites from a critical nursing perspective. Nursing Inquiry, 25(3).

Leykin, Y., Thekdi, S.M., Shumay, D.M., Muñoz, R.F., Riba, M., & Dunn, L.B. (2012). Internet interventions for improving psychological well-being in psycho-oncology: Review and recommendations. Psycho-Oncology, 21, 1016–1025. doi:10.1002/pon.1993

Lustria, M.L.A., Smith, S.A., & Hinnant, C.C. (2011). Exploring digital divides: An examination of eHealth technology use in health information seeking, communication and personal health information management in the USA. Health Informatics Journal, 17(3), 224–243.

Marbach, T.J., & Griffie, J. (2011). Patient preferences concerning treatment plans, survivorship care plans, education, and support services. Oncology Nursing Forum, 38(3), 335–342.

Matsuyama, R.K., Kuhn, L.A., Molisani, A., & Wilson-Genderson, M.C. (2013). Cancer patients’ information needs the first nine months after diagnosis. Patient Education and Counseling, 90(1), 96–102.

McCabe, C., & Timmins, F. (2013). Communication skills. Communication skills for nursing practice (pp. 71–92). UK: Palgrave Macmillan.

McCorkle, R., Ercolano, E., Lazenby, M., Schulman-Green, D., Schilling, L.S., Lorig, K., & Wagner, E.H. (2011). Self-management: Enabling and empowering patients living with cancer as a chronic illness. CA: A Cancer Journal for Clinicians, 61(1), 50–62.

Nasi, G., Cucciniello, M., & Guerrazzi, C. (2015). The performance of mHealth in cancer supportive care: A research agenda. J Med Internet Res., 17(2).

Pedersen, A.F., & Hack, T.F. (2010). Pilots of oncology health care: A concept analysis of the patient navigator role. Oncology Nursing Forum, 37(1), 55–60. Retrieved from doi:10.1188/10.onf.55-60

Powe, B.D., & Finnie, R. (2003). Cancer fatalism: The state of the science. Cancer nursing, 26(6), 454–467.

Registered Nurses Association of Ontario. (2008). Nurses and the use of computer technology: Health Education Fact Sheet from nurses for you. Retrieved from

Registered Nurses Association of Ontario. (2012). Facilitating client centred learning: Clinical Best Practice Guidelines. Retrieved from

Rothman, A.A., & Wagner, E.H. (2003). Chronic illness management: What is the role of primary care? Annals of Internal Medicine, 138(3), 256261.

Sanford, R.C. (2000). Caring through relation and dialogue: A nursing perspective for patient education. Advances in Nursing Science, 22(3), 115.

Shipley, S.D. (2010). Listening: A concept analysis. Nursing Forum, 45(2), 125–134.

Smith, J.A., & Zsohar, H. (2013). Patient-education tips for new nurses. Nursing 2015, 43(10), 1–3.

Thomas-MacLean, R.L., Hack, T.F., Kwan, W., Towers, A., Miedema, B., & Tilley, A. (2008). Arm morbidity and disability after breast cancer: New directions for care. Oncology Nursing Forum, 35(1), 65–71.

Thorne, S. (2016). Interpretive description. Walnut Creek, CA: Left Coast Press.

Thorne, S. (2019). The study of nursing. Nursing Inquiry, 26(1). Retrieved from

Ventura, F., Öhlén, J., & Koinberg, I. (2013). An integrative review of supportive e-health programs in cancer care. European Journal of Oncology Nursing, 17(4), 498–507.

Wald, H.S., Dube, C.E., & Anthony, D.C. (2007). Untangling the web—The impact of Internet use on health care and the physician–patient relationship. Patient Education and Counseling, 68(3), 218–224.

Ziebland, S., Chapple, A., Dumelow, C., Evans, J., Prinjha, S., & Rozmovits, L. (2004). How the internet affects patients’ experience of cancer: A qualitative study. BMJ, 328(7439), 564.


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